Anyone out there with Thymoma/Thymic Carcinoma

Posted by allisonsnow @allisonsnow, Jan 5, 2017

Am just trying to find anyone to have a discussion with that is currently or has had the struggle with either of these cancers.

Interested in more discussions like this? Go to the Cancer Support Group.

@shaycoe12

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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Can you tell me why robotic surgery was chosen. I'm surprised and sorry that you were left in pain. Nerves were disturbed? I'm looking for a speedy recovery.

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@shaycoe12

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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Yes I didn't have a biopsy either and he did robotic surgery it was my thoracic surgeon I hope it goes well please keep me posted.

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@shaycoe12

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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I have an enlarged thymus and the Thoracic surgeon recommended that it should be removed. He recommended not having a biopsy prior to the surgery. He is sending me to another surgeon who I see in a couple of days so I'll get a second opinion. I'm mostly concerned about the procedure and am hoping I can have laparoscopic surgery.

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@shaycoe12

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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Welcome to Connect, @annesgl
We look forward to getting to know more about you. Do you also have thymoma/thymic carcinoma?

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@shaycoe12

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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Robotic surgery

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@hopeful33250

Hello @shaycoe12 and welcome to Mayo Connect

I appreciate your posting about your successful surgery. I am glad to hear that your recovery went so well.

Please feel free to share more about your surgical experience if you are comfortable doing so. Will you need any follow-up treatment?

I look forward to hearing from you.

Teresa

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Hi Teresa yes I had robotic thymectomy and although it was quite painful for at least six weeks it was successful with little complications I was taking a medication for a while but now my pulmonologist says that he don't think I will have to worry about it coming back my chest has no feeling and itches a lot on the inside because the nerves we're disturbed the doctor said that my feeling should return soon and I take a nerve medication for that. He said that in my case it was better to remove it.

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@shaycoe12

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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What procedure was used to remove your thymus gland?

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Hello @shaycoe12 and welcome to Mayo Connect

I appreciate your posting about your successful surgery. I am glad to hear that your recovery went so well.

Please feel free to share more about your surgical experience if you are comfortable doing so. Will you need any follow-up treatment?

I look forward to hearing from you.

Teresa

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Yes I had my thymus gland removed in April very painful operation but I recovered very well.

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@andylevine
Glad to hear that your scan turned out so well ! Always heartening to hear the GOOD news. I am going thru an active stage so my protocol is different. I go every 3 months or more when in treatment. The one time they waited 6 months it came back showing a recurrence. Makes me leary of when they will suggest 6 months again. But that is not for a while so no sense worrying about it now. But back to your question ...it does sound like what I have heard..

Again congratulations on the clean scan.

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