Anyone out there with Thymoma/Thymic Carcinoma

Posted by allisonsnow @allisonsnow, Jan 5, 2017

Am just trying to find anyone to have a discussion with that is currently or has had the struggle with either of these cancers.

Interested in more discussions like this? Go to the Cancer Support Group.

annesgl | @annesgl | Jul 3, 2018

In reply to @shaycoe12 "Yes I had my thymus gland removed in April very painful operation but I recovered very..." + (show)

Can you tell me why robotic surgery was chosen. I'm surprised and sorry that you were left in pain. Nerves were disturbed? I'm looking for a speedy recovery.

shaycoe12 | @shaycoe12 | Jul 3, 2018

In reply to @shaycoe12 "Yes I had my thymus gland removed in April very painful operation but I recovered very..." + (show)

Yes I didn't have a biopsy either and he did robotic surgery it was my thoracic surgeon I hope it goes well please keep me posted.

annesgl | @annesgl | Jul 3, 2018

In reply to @shaycoe12 "Yes I had my thymus gland removed in April very painful operation but I recovered very..." + (show)

I have an enlarged thymus and the Thoracic surgeon recommended that it should be removed. He recommended not having a biopsy prior to the surgery. He is sending me to another surgeon who I see in a couple of days so I'll get a second opinion. I'm mostly concerned about the procedure and am hoping I can have laparoscopic surgery.

Colleen Young, Connect Director | @colleenyoung | Jul 3, 2018

In reply to @shaycoe12 "Yes I had my thymus gland removed in April very painful operation but I recovered very..." + (show)

Welcome to Connect, @annesgl
We look forward to getting to know more about you. Do you also have thymoma/thymic carcinoma?

shaycoe12 | @shaycoe12 | Jul 3, 2018

In reply to @shaycoe12 "Yes I had my thymus gland removed in April very painful operation but I recovered very..." + (show)

Robotic surgery

shaycoe12 | @shaycoe12 | Jul 3, 2018

In reply to @hopeful33250 "Hello @shaycoe12 and welcome to Mayo Connect I appreciate your posting about your successful surgery. I..." + (show)

Hi Teresa yes I had robotic thymectomy and although it was quite painful for at least six weeks it was successful with little complications I was taking a medication for a while but now my pulmonologist says that he don't think I will have to worry about it coming back my chest has no feeling and itches a lot on the inside because the nerves we're disturbed the doctor said that my feeling should return soon and I take a nerve medication for that. He said that in my case it was better to remove it.

annesgl | @annesgl | Jul 1, 2018

In reply to @shaycoe12 "Yes I had my thymus gland removed in April very painful operation but I recovered very..." + (show)

What procedure was used to remove your thymus gland?

Teresa, Volunteer Mentor | @hopeful33250 | Jun 28, 2018

Hello @shaycoe12 and welcome to Mayo Connect

I appreciate your posting about your successful surgery. I am glad to hear that your recovery went so well.

Please feel free to share more about your surgical experience if you are comfortable doing so. Will you need any follow-up treatment?

I look forward to hearing from you.

Teresa

shaycoe12 | @shaycoe12 | Jun 28, 2018

Yes I had my thymus gland removed in April very painful operation but I recovered very well.

allisonsnow | @allisonsnow | Jun 28, 2018

@andylevine
Glad to hear that your scan turned out so well ! Always heartening to hear the GOOD news. I am going thru an active stage so my protocol is different. I go every 3 months or more when in treatment. The one time they waited 6 months it came back showing a recurrence. Makes me leary of when they will suggest 6 months again. But that is not for a while so no sense worrying about it now. But back to your question ...it does sound like what I have heard..

Again congratulations on the clean scan.