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Anyone on cabozantinib after Y90

Posted by nana120 @nana120, Jul 30 11:11am

Five months after my Y90 my NET specialist said he may try me on cabozantinib. An MRI showed dissipation of the tumor treated, but two more tumors showed up. We will wait 3 more months to see if the new tumors show growth before starting it.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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nana120 | @nana120 | Jul 31 1:02pm

Thanks for your reply and sharing your experience. I read about some side effects and you confirmed them. How often do you take them? I can see why patients bail out, but it would be great to see result stats.

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zacharycat | @zacharycat | Jul 31 5:14pm
In reply to @nana120 "Thanks for your reply and sharing your experience. I read about some side effects and you..." + (show)
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Thanks for your reply and sharing your experience. I read about some side effects and you confirmed them. How often do you take them? I can see why patients bail out, but it would be great to see result stats.

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I take it once a day. Usually first thing in the morning, as it should be taken two hours after eating and an hour before the next meal.

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