I'm scheduled to have SI JOINT fusion next Wednesday. I'm terrified.
Has anyone had a positive experience? I've been through it all, PT, shots, tens, the whole 9. My back burns so badly, it's hard for me to even clean up the kitchen at night. Vacuuming is torture.
Am I right to be afraid?
Should I not do it?
I'm also supposed to have the other side done in 4 months. The neurosurgeon says I will lose 2° of rotation.
My family thinks I'm crazy for even considering this surgery.
Is there anything special I should know? Ie, sleeping, sitting, bathing, etc.
I know exactly what your having.
The problem is your SI joint has lost its ability and you are having bone on bone. What SI joint fusion it stables the joint. I know what you have gone through. I had no where go to get it done. 😩 Mayo Rochter help me out. They are the best. I couldn't find anyone to help. If you trust your doctor GO FOR IT. Good Luck
This is congenital anomaly which I also have. The lover back has a transitional vertebra that does not fuse at birth. It would in theory be a part of the pelvis, but as it is separated (partially or completely on both sides) it is considered a spine issue - not an orthopedic one. It is a bone-on-bone issue. It is not a true vertebra.
Decisions, decisions, decisions: To fuse or not to fuse.
42 yr old, active female. Suffered a traumatic weight lifting injury about 2 yrs ago and have been dealing with chronic lower back and SI joint pain ever since. Recently underwent Ifuse SI joint fusion which has provided about 70% relief from SI joint pain, but am now dealing with compensation in my hips which have mild OA but have really flared up as my activity levels increased after the fusion 4 months ago. I also have some disc bulging / stenosis in the lumbar spine which according to MRI is mildly affecting the left side L5 nerve but I’m aware of any symptoms (yet). Trying to navigate options of which specialist can help get to the root cause of my complications and make sure I’m not setting myself up for more /worse injuries down the road. I’m not attempting to get back into high impact cross fit but do want to be able to stay fit & active. Thanks for any help!
42 yr old, active female. Suffered a traumatic weight lifting injury about 2 yrs ago and have been dealing with chronic lower back and SI joint pain ever since. Recently underwent Ifuse SI joint fusion which has provided about 70% relief from SI joint pain, but am now dealing with compensation in my hips which have mild OA but have really flared up as my activity levels increased after the fusion 4 months ago. I also have some disc bulging / stenosis in the lumbar spine which according to MRI is mildly affecting the left side L5 nerve but I’m aware of any symptoms (yet). Trying to navigate options of which specialist can help get to the root cause of my complications and make sure I’m not setting myself up for more /worse injuries down the road. I’m not attempting to get back into high impact cross fit but do want to be able to stay fit & active. Thanks for any help!
Good morning.
Can't say I have had surgery for that problem but I did find out that I had partial SI sacralization which predisposes me for what happened to you. Some of what you mention are likely related.
I am an exercise physiologist by training and might suggest you consider discussion with a provider regarding how your body mechanics have changed that are impacting your activities. You might need to keep this in mind moving forward to what your body needs most.
Take care of yourself, listen to your body and your support system and get the level of activity that you need!
42 yr old, active female. Suffered a traumatic weight lifting injury about 2 yrs ago and have been dealing with chronic lower back and SI joint pain ever since. Recently underwent Ifuse SI joint fusion which has provided about 70% relief from SI joint pain, but am now dealing with compensation in my hips which have mild OA but have really flared up as my activity levels increased after the fusion 4 months ago. I also have some disc bulging / stenosis in the lumbar spine which according to MRI is mildly affecting the left side L5 nerve but I’m aware of any symptoms (yet). Trying to navigate options of which specialist can help get to the root cause of my complications and make sure I’m not setting myself up for more /worse injuries down the road. I’m not attempting to get back into high impact cross fit but do want to be able to stay fit & active. Thanks for any help!
Hello @al21, I'd like to invite @cmeadows09, @fourof5zs and @suzfuse46 to this discussion as they have all shared their experiences with an SI joint fusion.
42 yr old, active female. Suffered a traumatic weight lifting injury about 2 yrs ago and have been dealing with chronic lower back and SI joint pain ever since. Recently underwent Ifuse SI joint fusion which has provided about 70% relief from SI joint pain, but am now dealing with compensation in my hips which have mild OA but have really flared up as my activity levels increased after the fusion 4 months ago. I also have some disc bulging / stenosis in the lumbar spine which according to MRI is mildly affecting the left side L5 nerve but I’m aware of any symptoms (yet). Trying to navigate options of which specialist can help get to the root cause of my complications and make sure I’m not setting myself up for more /worse injuries down the road. I’m not attempting to get back into high impact cross fit but do want to be able to stay fit & active. Thanks for any help!
The 2017 lumbar surgery for scoliosis, herniation, stenosis from L1 to SI left me with a tingling sensation and skin extremely sensitive to touch in the SI area. In 2019 I had replacement of screws in my lumbar spine and extended the fusion from the SI into the pelvic bones. It didn't improve my pain level or function but it seems to have gotten worse. Five years later, it hasn't been addressed or any further investigation by any of my doctors I have been working with for cervical and thoracic problems. I would say that follow up with your doctors while the problem is still current or find a specialist who is willing to listen and come up with a feasible solution. I wish you the best of luck.
42 yr old, active female. Suffered a traumatic weight lifting injury about 2 yrs ago and have been dealing with chronic lower back and SI joint pain ever since. Recently underwent Ifuse SI joint fusion which has provided about 70% relief from SI joint pain, but am now dealing with compensation in my hips which have mild OA but have really flared up as my activity levels increased after the fusion 4 months ago. I also have some disc bulging / stenosis in the lumbar spine which according to MRI is mildly affecting the left side L5 nerve but I’m aware of any symptoms (yet). Trying to navigate options of which specialist can help get to the root cause of my complications and make sure I’m not setting myself up for more /worse injuries down the road. I’m not attempting to get back into high impact cross fit but do want to be able to stay fit & active. Thanks for any help!
With all respect, CrossFit is a dangerous activity. The fusion should help contain pain and sciatica, but yeah, impact sports are now off the table. I'm glad you have some relief from the SI pain after surgery.
I'm a former marathoner and my lumbar spine is a disaster area. I have every lumbar pathology, but got relief about 10 years ago with laminotomies at S1, L5, and L4. I am putting off fusion for as long as possible. I am in the gym every day and I work on stretching, core, cardio and strength. I took up spinning about a year ago and love it. (I also had both knees replaced in 2022, so impact work is off my table too!)
To feed the need for fitness, I suggest giving spin a try. I challenge myself with different routines, and take a class or two at the gym, but much prefer working out on my own. I sweat easily anyway, and after a 45 minute spin session, I'm tired but feel extremely cleaned out from the sweating.
So that's my exercise suggestion. I also work with a trainer twice a week and that keeps my workout routine from becoming routine, if you take my meaning. I lost 30 lbs last year, from 190 to 160 (ironic because I weighed in the 140s when I ran marathons). I turn 70 in a few weeks and feel great.
As for a specialist, I'd find a spine surgeon/neurologist in his/her late 30s to late 40s with a good pedigree from med school and residency - Mayo and Cleveland Clinic produce some great orthopedic surgeons.
I hope that helps. I remember how hard it was when I had to stop running, so I get how you may be feeling. Look back on your accomplishments with pride and write your next chapter.
Good morning.
Can't say I have had surgery for that problem but I did find out that I had partial SI sacralization which predisposes me for what happened to you. Some of what you mention are likely related.
I am an exercise physiologist by training and might suggest you consider discussion with a provider regarding how your body mechanics have changed that are impacting your activities. You might need to keep this in mind moving forward to what your body needs most.
Take care of yourself, listen to your body and your support system and get the level of activity that you need!
Good Morning.
You might want to ask your primary care provider for a referral to a provider that specializes in the spine and can address the SI related surgery (if it is contributing). Some ortho address but if the nerves in the back are involved, then you might need to consider physical therapy as your day-to-day work activities might be an issue as well as many jobs are not good for your back and core health.
"Once they fix one thing, another problem surfaces." Keep that in mind as you look forward to improving your health. If you need to back off to reduce symptoms, maybe the road to go.
I have had a few back problems and have partial sacralization. The PT helped me develop a program to alleviate almost all my symptoms. Work with your provider(s) ask questions, stay positive- you've got this!
It's great that the neurologist didn't find an organic problem - that means you should be able to get this under control.
One thing to remember - do EVERYTHING in moderation - sit a little, move a little, exercise a little, walk a little - and gradually add as your body tolerates. Building strength and endurance will take time.
Since you asked about activity, I will tell you that, when I was in chronic intense pain last year from arthritis, the pain doc's first recommendation was PT. The last thing my poor body wanted to do was to move! But she was exactly correct, and I saw a PT for many weeks. I now have a ready list of exercises and stretches I do daily, and some I can add when specific aches and pains crop up. I also walk or do physical labor every day. Maybe you can get a referral for PT from the neurologist or your primary provider to break the cycle of pain.
Finally, there a a couple of home remedies that can sometimes help with acute pain -
Move - if you have been sitting, get up and walk, bend, twist for at least 5 minutes - even when it hurts.
Lie on your back, knees bent, ice pack on most painful area, for 20-30 minutes. Repeat as needed. Larger gel packs or a two pound bag of frozen peas or corn work - refreeze & reuse.
Remember, it took 3 years to get to this level of pain, so it will take some time and effort to reduce. Do everything in moderation - when you are sitting, get up and move a few minutes every hour or even half hour. When you are walking, take a break every few minutes - even leaning against a wall or tree can help.
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I know exactly what your having.
The problem is your SI joint has lost its ability and you are having bone on bone. What SI joint fusion it stables the joint. I know what you have gone through. I had no where go to get it done. 😩 Mayo Rochter help me out. They are the best. I couldn't find anyone to help. If you trust your doctor GO FOR IT. Good Luck
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Helpful -
Hug
3 ReactionsThis is congenital anomaly which I also have. The lover back has a transitional vertebra that does not fuse at birth. It would in theory be a part of the pelvis, but as it is separated (partially or completely on both sides) it is considered a spine issue - not an orthopedic one. It is a bone-on-bone issue. It is not a true vertebra.
Decisions, decisions, decisions: To fuse or not to fuse.
42 yr old, active female. Suffered a traumatic weight lifting injury about 2 yrs ago and have been dealing with chronic lower back and SI joint pain ever since. Recently underwent Ifuse SI joint fusion which has provided about 70% relief from SI joint pain, but am now dealing with compensation in my hips which have mild OA but have really flared up as my activity levels increased after the fusion 4 months ago. I also have some disc bulging / stenosis in the lumbar spine which according to MRI is mildly affecting the left side L5 nerve but I’m aware of any symptoms (yet). Trying to navigate options of which specialist can help get to the root cause of my complications and make sure I’m not setting myself up for more /worse injuries down the road. I’m not attempting to get back into high impact cross fit but do want to be able to stay fit & active. Thanks for any help!
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Like -
Helpful -
Hug
1 ReactionGood morning.
Can't say I have had surgery for that problem but I did find out that I had partial SI sacralization which predisposes me for what happened to you. Some of what you mention are likely related.
I am an exercise physiologist by training and might suggest you consider discussion with a provider regarding how your body mechanics have changed that are impacting your activities. You might need to keep this in mind moving forward to what your body needs most.
Take care of yourself, listen to your body and your support system and get the level of activity that you need!
-
Like -
Helpful -
Hug
3 ReactionsHello @al21, I'd like to invite @cmeadows09, @fourof5zs and @suzfuse46 to this discussion as they have all shared their experiences with an SI joint fusion.
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Helpful -
Hug
1 ReactionThe 2017 lumbar surgery for scoliosis, herniation, stenosis from L1 to SI left me with a tingling sensation and skin extremely sensitive to touch in the SI area. In 2019 I had replacement of screws in my lumbar spine and extended the fusion from the SI into the pelvic bones. It didn't improve my pain level or function but it seems to have gotten worse. Five years later, it hasn't been addressed or any further investigation by any of my doctors I have been working with for cervical and thoracic problems. I would say that follow up with your doctors while the problem is still current or find a specialist who is willing to listen and come up with a feasible solution. I wish you the best of luck.
-
Like -
Helpful -
Hug
1 ReactionWith all respect, CrossFit is a dangerous activity. The fusion should help contain pain and sciatica, but yeah, impact sports are now off the table. I'm glad you have some relief from the SI pain after surgery.
I'm a former marathoner and my lumbar spine is a disaster area. I have every lumbar pathology, but got relief about 10 years ago with laminotomies at S1, L5, and L4. I am putting off fusion for as long as possible. I am in the gym every day and I work on stretching, core, cardio and strength. I took up spinning about a year ago and love it. (I also had both knees replaced in 2022, so impact work is off my table too!)
To feed the need for fitness, I suggest giving spin a try. I challenge myself with different routines, and take a class or two at the gym, but much prefer working out on my own. I sweat easily anyway, and after a 45 minute spin session, I'm tired but feel extremely cleaned out from the sweating.
So that's my exercise suggestion. I also work with a trainer twice a week and that keeps my workout routine from becoming routine, if you take my meaning. I lost 30 lbs last year, from 190 to 160 (ironic because I weighed in the 140s when I ran marathons). I turn 70 in a few weeks and feel great.
As for a specialist, I'd find a spine surgeon/neurologist in his/her late 30s to late 40s with a good pedigree from med school and residency - Mayo and Cleveland Clinic produce some great orthopedic surgeons.
I hope that helps. I remember how hard it was when I had to stop running, so I get how you may be feeling. Look back on your accomplishments with pride and write your next chapter.
All the best to you! Joe
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2 ReactionsHow does one even get a diagnosis about that are?
Good Morning.
You might want to ask your primary care provider for a referral to a provider that specializes in the spine and can address the SI related surgery (if it is contributing). Some ortho address but if the nerves in the back are involved, then you might need to consider physical therapy as your day-to-day work activities might be an issue as well as many jobs are not good for your back and core health.
"Once they fix one thing, another problem surfaces." Keep that in mind as you look forward to improving your health. If you need to back off to reduce symptoms, maybe the road to go.
I have had a few back problems and have partial sacralization. The PT helped me develop a program to alleviate almost all my symptoms. Work with your provider(s) ask questions, stay positive- you've got this!
Motion is lotion for arthritis.