Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@johnbishop

Todd, so sorry to hear about your wife’s troubles. You are doing the right thing exploring all options and like John Burns says – don’t give up hope. There also is a Facebook group – “Our Neuropathy Friends” that is quite active and has over 3000 group members. You might want to join the group and post questions there too. I’ve been struggling with my peripheral neuropathy for over 10 years but have just recently started searching for cause and possible treatments being one that hates going to the doctor. If you are an avid reader or like to read, I would recommend the book “Wahl’s Protocol” by Dr. Terry Wahl. She has an amazing story on her research into autoimmune diseases and how diet plays a part. I’m halfway through the book and am attempting to try the first part of the diet but I’m 73 and so set it my ways it’s a daily struggle. Good luck in your journey and please never give up. Know that there are others out there praying for you.

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Sorry if this is a dumb question – have you seen a doctor that is a specialist in the foot area? I know Rochester Mayo Clinic has a pretty good reputation in the hand clinic downtown and I think it’s the same for the feet but I don’t know anyone that has seen them. I’ve been to the hand clinic for carpal tunnel.

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It’s nice to see some research into trying to fix the problem and not the symptoms…

Nerve wrapping nanofiber mesh promoting regeneration – National Institute for Materials Science (NIMS), February 28, 2017:
http://bit.ly/2n0tcu5
New Research may pave the way for peripheral nerve damage repair – Researchers from Plymouth University are the first to identify the role of a bodily protein in peripheral nerve self-repair, Journal of Cell Biology, 30 January 2017:
http://bit.ly/2n3yGAm

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@johnbishop

Todd, so sorry to hear about your wife’s troubles. You are doing the right thing exploring all options and like John Burns says – don’t give up hope. There also is a Facebook group – “Our Neuropathy Friends” that is quite active and has over 3000 group members. You might want to join the group and post questions there too. I’ve been struggling with my peripheral neuropathy for over 10 years but have just recently started searching for cause and possible treatments being one that hates going to the doctor. If you are an avid reader or like to read, I would recommend the book “Wahl’s Protocol” by Dr. Terry Wahl. She has an amazing story on her research into autoimmune diseases and how diet plays a part. I’m halfway through the book and am attempting to try the first part of the diet but I’m 73 and so set it my ways it’s a daily struggle. Good luck in your journey and please never give up. Know that there are others out there praying for you.

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Mayo was where I was denied even an appointment.

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@johnbishop

Todd, so sorry to hear about your wife’s troubles. You are doing the right thing exploring all options and like John Burns says – don’t give up hope. There also is a Facebook group – “Our Neuropathy Friends” that is quite active and has over 3000 group members. You might want to join the group and post questions there too. I’ve been struggling with my peripheral neuropathy for over 10 years but have just recently started searching for cause and possible treatments being one that hates going to the doctor. If you are an avid reader or like to read, I would recommend the book “Wahl’s Protocol” by Dr. Terry Wahl. She has an amazing story on her research into autoimmune diseases and how diet plays a part. I’m halfway through the book and am attempting to try the first part of the diet but I’m 73 and so set it my ways it’s a daily struggle. Good luck in your journey and please never give up. Know that there are others out there praying for you.

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Sorry to hear that.

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Is anyone on here dealing with CIDP (chronic inflammatory demylenating polyneuropathy )?

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I am a Vietnam War Vet with agent orange we think ha ha..I have Peripheral neuropathy of the feet and spine. Med’s Turmeric Curcumin 2000 mg. or more with pepper.Plus Gabapentin 600 mg.Three times a day. But the best thing that helps me is my Laser TouchOne for pain.So what ya say! HOOT””

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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Gabapentin 300 mg. at bedtime works wonders – along with 300 mg. twice a day

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Mine has come on suddenly and my doctor doesn’t know what is causing it. Have 2 herniated discs in
Lower back so he is presuming that is why. I’m not sure it is. The buzzing and vibrating and numbness freak me out. Going to PT now. Are there any natural products that help?

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I was diagnosed with Transverse Myelitis in 1999 and diabetes in 2011. Burning, pins and needles in my feet and calves, I have tried Verizon’s anti depressants but the side effects are worse than the pain. The pain gets worse when I get too hot or when it gets cold and damp outside. Just started using magnesium oil spray, I how not really noticed a difference yet.

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I take Lyrica, but it doesn’t help much. Tried Gabepentin and gained weight guickly. My legs also swelled up. I guess I’m not really dealing with neuropathy at this time. My lower body bothers me all day long. My legs, butt, groin & feet. I’m wondering if something like Valium would help. I don’t want to get hooked on a drug, but would love to have something to alleviate my nerve pain.

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I developed peripheral neuropathy because of chemo. My oncologist says the only thing studies have proven effective is gabapentin (neurotoxin) It doesn’t work for everyone and if the dose isn’t high enough it won’t work at all. I think it has gotten slightly better but my fingers and toes and soles are pretty numb and cold makes it worse. I know others suffer more severely and at least I’m not in pain but you might want to ask your doctor about medication. I’m glad to read above there may be new treatments down the pipe. Ones based on science, not snake oil

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Hello,
Just joined this very informative site a few minutes ago.
Here is my story :
In November of 2014 I fell off an escalator and landed full body weight on my right side. I tore all the ligaments in my right ankle and trough physical therapy learned that I had CRPS ( Chronic Reginal Pain Syndrome or RSD ) . My left top of the foot would be firey red and require a cold wash cloth at night to keep the heat down. The last doctor I went to said I know longer have the CRPS as the symptoms magically went away. I do have chronic pins and needs and can barely walk. My life is horrible, all I do is sleep and then come downstairs and watch TV or read on my IPad. This is now way to live and I even tried to commit suicide with a failed attempt. Currently talking Cymbalta and Gapentin for pain and they do help.
Any suggestions or feedback would be appreciated .

Thanks for reading this ❤️

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