Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

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Hi, yes I’m on a waiting list. When I looked into this site it said be somewhat careful of what u write as anyone can read it…which is why I am replying by email.I dont know yet how it would work out 4 me. I really want to go back 2 work, but I work with kids. Not really sur the 2 r compatible. But I will find out! Thanks.Envoyé de mon

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

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It may be pretty new. My doctor sent me to a small specialty pharmacy that had some kind of special promotion for the drug, which meant no co-pay (I’m on medicare and Blue Cross). When I saw my doctor (a pain management specialist) this morning he asked me if it had cost me anything; I took that to mean it’s pretty expensive if you have to pay for it, which suggests it hasn’t been on the market long (given Big Pharma’s behavior here in the US!). I know it’s not yet available in generic form. The manufacturer is Xenoport. I don’t know how your prescriptions work under Canada’s health care system, but if it’s free or at all reasonable for you, it’s worth a try. Check on the internet for more info on Horizant; perhaps make a printout for your doctor and pharmacist. It’s a timed-release pill, and it can therefore be taken in higher dosages, and it may be absorbed by one’s system in a different way from regular gabapentin. It was first prescribed for patients with night-time restless leg syndrome, but it has done wonders for the burning in my leg. It hasn’t completely eliminated the pain, but it is much more tolerable and I can concentrate on other things. I take one tablet, 600 mg daily. I take it at 5:00 p.m., which is what is recommended for people with restless leg, and it helps me sleep, as the burning often disrupted my sleep. The website lists some side effects, but fortunately I haven’t experienced any of them. Good luck!

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

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to upnorthnancy – when speaking of medical marijuana does one usually mean the tincture of oil that one can buy on-line? @ladyjane85

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

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Not sure what working with kids has to do with using medicinal cannabis? Many children use it for seizure disorders and various other disorders.

Nancy Shermoen~

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

No medical marijuana is a mixture of CBD and THC. I believe CBD is hemp oil and legal to buy online everywhere. It is the THC  part that is only legal in certain states but is the part that is most effective. Mayo Clinic has a good article on their guidelines which you may want to check out. One of the moderators on this connection site emailed it to me.Nancy Shermoen~

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

P.S. I do order the oil from SOL CBD.com and I am not sure if it helps or not. Some people swear by it but I cannot say it does much for me. However when I was in Colorado I went to a dispensary and bought a balm that is half CBD and half THC each 50mg and I LOVE it. Also got relief from an edible combination of CBD and THC.Nancy Shermoen~

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

Yes I have read the difference between CBD + THC but i will also go check out Mayo clinic guidelines. Info is power!
I have read about kids using it to control siezures. But i have to admit that where i work i have a very difficult time imagening the principal or my students parents accepting theyr teacher goes out 4 a smoke, wether it be “medical” or not, during recess…although cookies or muffins might be an interesting option. I guess i’ll need more leagal info also for canada. I love what i do and I want to continu doing it.

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@ujeeniack

TRY NEWER FORM OF GABAPENTIN. ALSO,B12.

GET EMG!

Jump to this post

I would never smoke it. I use a balm I rub on my skin wherever the pain presents and I loved the little edible that tastes like a tootsie roll. I saw on Facebook where a skin patch is coming soon. I would much rather take a plant from God then anything big pharma offers.Nancy Shermoen~

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Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

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Hello @fleure, It’s good to be proactive and do your own research. I started a supplement protocol for my SFPN which I only have numbness no pain. I’m fortunate to not have to deal with meds for pain for my SFPN. I have had a couple of bouts of PMR which I’ve had to take prednisone but I am currently titrating off it now for the second time. First bout of PMR was in 2007 and then took the nasty prednisone for about 2+ years and it went into remission until this past March. I had a post in a previous conversation where there is a little more info on how I started the supplements if you want to read… https://connect.mayoclinic.org/reply/reply-8cf9ea91c0d889d/. Good luck!

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

Jump to this post

Does anyone have burning pain and numbness in one foot and ankle that the pain is amplified when staring or walking?  I know there is something wrong in my left foot but a foot surgeon sees busitis and metatarsal pad deterioration but no solutions. I have orthodics, gel pads, and take Gabapentin and compound creams that helps reduce the pain. If anyone has a similar problem, please let me know.

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@fleure

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

Jump to this post

Hello Robert (@robertlclark), are you able to get a second opinion from another specialist? Hopefully someone here has similar symptoms and can answer your question.

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