@jesfactsmon Hi Hank, After reading such an awesome review of Penetrex, the one you posted, I just had to order it. Thanks so much for sharing. I had given up on everything, but this, I just had to try.....Thanks much!!!! Lori
@jesfactsmon Hi Hank, After reading such an awesome review of Penetrex, the one you posted, I just had to order it. Thanks so much for sharing. I had given up on everything, but this, I just had to try.....Thanks much!!!! Lori
Lori, I hope you read the review. It's better to order the roll-on. If you already ordered from Amazon you can probably cancel the order if you do it right away. I've done that many times. Best, Hank
@jesfactsmon Hi Hank, After reading such an awesome review of Penetrex, the one you posted, I just had to order it. Thanks so much for sharing. I had given up on everything, but this, I just had to try.....Thanks much!!!! Lori
Oh okay, I see you said you did order the roll-on. I'm glad. Linda agrees with the reviewer that the roll on is really clean and not greasy. And believe me, if Linda says something is not greasy, believe it. I've never known anyone so down on grease as she is. Just to fill you in a little more, this stuff does not eliminate your pain. But like the reviewer said (and Linda so far agrees) it reduces his pain a few points (Linda says a third, like from an 8 to a 5 for example) which ain't bad. She puts it on and then puts her feet in front of the fan and she says for the first ten minutes, total relief. Then the reduced pain level thereafter. So far. And It may disappoint ultimately, like most things do, but you always gotta hope, right?
@jamesinsonoma Hey James, I replied in this thread to help keep the Journey Stories thread a little more pure.
The doctor is using a device from Nalu Med. Their website is nalumed.com. Check out the Applications tab. For the trail the device will be on the outside of my leg. If successful, it will be embedded just above my foot; one on each leg. The doctor tested me with a nerve block in each foot to see if I would be a good candidate. After the nerve block I was able to walk around for 30+ minutes virtually pain free. The nerve block wore off after a couple of hours. I'll post the results of the trail. The trail is scheduled for late June.
Medical marijuana has given me an almost pain free life after years of doctors putting me on opioids. I get the CBD oil capsules which is NOT hallucinogenic at all. I take one each morning with breakfast. And I got a jar of the ointment to massage any 'hot spots' that occur. When I get that sharp pain in my leg or shoulder, I rub it in and the pain is gone in 10 minutes.
@kimgibson1 Hi again Kim, I replied to question in the other discussion you just posted as well. I am not sure whether there is a specific discussion on Connect about cbd oil specifically, but one thing you could do is put just "cbd" into the search box (top of page, click little hourglass icon) and you will find a myriad of posts (I just looked, there's a lot!), some of which will most certainly talk about cdb oil. I'm not sure how to contact posters who have not posted in a while, such as the two people you have tried to reply to. Very likely they may not be paying much attention to this forum right now. Wishing you luck in your quest, Hank
I have had neuropathy from diabetes for years. I use the anodyne therapy shoe & pads but not sure that helps much anymore. It did in the early years.Also a foot circulator that massages the bottoms of my feet & can also heat up. That seems to help some. What I found that has helped the most & so far the neuropathy has only gone a little ways above my ankle. I use (Co. name order online:) Integrative Therapeutic THERACURMIN* HP. bioavailable cur cumin. My Dr. put me on this years ago & I take 2 in am & 2 in pm. It is the only turmeric/curcumin that has helped my neuropathy & I tried many other ones. No luck. Returned them. Also I use : STOP PAIN spray & roll on & it is the only one that helps my pain in my feet. If my feet are hurting badly at night & I can't get to sleep, I put this on, don't feel much but shortly pain subsides & I go to sleep. I have tried many other things.....Vick's, Bio-freeze, aspercreme etc. etc. When I told my neurologist/homeopathic doctor (same doctor) about it, she had never heard of it, immediately looked it up & said "Oh it has __??____in it. Good. That helps pain. Keep using it." I am so very blessed to have this Dr. who helps me with additional supplements for my diabetes, kidney (only have one & it has a stent in the artery, anemia, extensive cell bloodwork, & she gives me an injection of Sarapin. (from Pitcher plant) for my bad back. I tried pain management for 6 months. They couldn't help, saw excellent back doctor & he said my back was so bad with many different things wrong, the only answer was surgery. At this time, I could hardly walk & used a cane all the time. I saw a print- out in her office . Headline said SARAPIN FOR PAIN. I asked her if she thought it would help my bad back, after explaining all the problems & her reply was...." It's homeopathic, no side effects, insurance will pay for it & I believe it will help. IT DID INDEED!!!!! I only use a cane if walking a really long distance. I have no pain & can lift up the bag of 20 lb. bird seed, carefully, with no problems. If it flares up with sciatica pain, I get extra shots & it helps or goes away. I thank God above every day for this doctor, that I found her, & that she gives sarapin injections to me, once a month in my lower back. Sarapin has been a MIRACLE for me & so has the products for my neuropathy. I do notice something different with my neuropathy. They say if you have it, you can't feel if you step on something or cut your foot. My feet are extremely sensitive & if I step on a tiny pebble, it hurts & feels like a huge rock. I also many years ago had the electronic tests for numbness in feet & it definitely is neuropathy. So far, hands & arms seem fairly good. God bless & I hope this helps.
PS: I have told others about sarapin & their doctors reply was: " It doesn't help or only helps a little. " To that I reply: B.S. It's a miracle for me & well worth trying for back pain & perhaps any pain. I didn't ask that!! But give it a try.
I have had neuropathy from diabetes for years. I use the anodyne therapy shoe & pads but not sure that helps much anymore. It did in the early years.Also a foot circulator that massages the bottoms of my feet & can also heat up. That seems to help some. What I found that has helped the most & so far the neuropathy has only gone a little ways above my ankle. I use (Co. name order online:) Integrative Therapeutic THERACURMIN* HP. bioavailable cur cumin. My Dr. put me on this years ago & I take 2 in am & 2 in pm. It is the only turmeric/curcumin that has helped my neuropathy & I tried many other ones. No luck. Returned them. Also I use : STOP PAIN spray & roll on & it is the only one that helps my pain in my feet. If my feet are hurting badly at night & I can't get to sleep, I put this on, don't feel much but shortly pain subsides & I go to sleep. I have tried many other things.....Vick's, Bio-freeze, aspercreme etc. etc. When I told my neurologist/homeopathic doctor (same doctor) about it, she had never heard of it, immediately looked it up & said "Oh it has __??____in it. Good. That helps pain. Keep using it." I am so very blessed to have this Dr. who helps me with additional supplements for my diabetes, kidney (only have one & it has a stent in the artery, anemia, extensive cell bloodwork, & she gives me an injection of Sarapin. (from Pitcher plant) for my bad back. I tried pain management for 6 months. They couldn't help, saw excellent back doctor & he said my back was so bad with many different things wrong, the only answer was surgery. At this time, I could hardly walk & used a cane all the time. I saw a print- out in her office . Headline said SARAPIN FOR PAIN. I asked her if she thought it would help my bad back, after explaining all the problems & her reply was...." It's homeopathic, no side effects, insurance will pay for it & I believe it will help. IT DID INDEED!!!!! I only use a cane if walking a really long distance. I have no pain & can lift up the bag of 20 lb. bird seed, carefully, with no problems. If it flares up with sciatica pain, I get extra shots & it helps or goes away. I thank God above every day for this doctor, that I found her, & that she gives sarapin injections to me, once a month in my lower back. Sarapin has been a MIRACLE for me & so has the products for my neuropathy. I do notice something different with my neuropathy. They say if you have it, you can't feel if you step on something or cut your foot. My feet are extremely sensitive & if I step on a tiny pebble, it hurts & feels like a huge rock. I also many years ago had the electronic tests for numbness in feet & it definitely is neuropathy. So far, hands & arms seem fairly good. God bless & I hope this helps.
PS: I have told others about sarapin & their doctors reply was: " It doesn't help or only helps a little. " To that I reply: B.S. It's a miracle for me & well worth trying for back pain & perhaps any pain. I didn't ask that!! But give it a try.
@jeba
Welcome to Mayo Connect, and thank-you for all of your suggestions based on your personal experience. I am a caregiver for my wife who has peripheral neuropathy (PN) in her feet also, also mostly up to her ankles and only occasionally higher but not usually.
Your suggestions are very interesting. I will put Theracurmin on my list of things to explore further. Also the STOP PAIN spray sounds interesting as well. Worth taking for a test drive. Finally, the sarapin for back pain should be something some people here will probably want to try out.
Great you found a doctor you love, that is GOLDEN. Don't let her get away! You really seem to be something of a success story compared to many other PN sufferers. The fact that you are not only coping but thriving (or so it sounds) is amazing. Great that your walking has improved and your need for a cane has reduced. So I assume you have your diabetes under control, correct? Any other health issues besides that, the PN and the back/sciatic issue?
I hope you will share more of your great ideas here and i also hope you will partake of the deep knowledge base available here from so many (sadly) very experienced pain sufferers. I have learned a tremendous amount on Connect including some unique suggestions (like yours) for my wife to try that I otherwise would never have heard about. Plus, there is great support to be found here from wonderful quality people. Look forward to hearing more from you!
@jeba
Welcome to Mayo Connect, and thank-you for all of your suggestions based on your personal experience. I am a caregiver for my wife who has peripheral neuropathy (PN) in her feet also, also mostly up to her ankles and only occasionally higher but not usually.
Your suggestions are very interesting. I will put Theracurmin on my list of things to explore further. Also the STOP PAIN spray sounds interesting as well. Worth taking for a test drive. Finally, the sarapin for back pain should be something some people here will probably want to try out.
Great you found a doctor you love, that is GOLDEN. Don't let her get away! You really seem to be something of a success story compared to many other PN sufferers. The fact that you are not only coping but thriving (or so it sounds) is amazing. Great that your walking has improved and your need for a cane has reduced. So I assume you have your diabetes under control, correct? Any other health issues besides that, the PN and the back/sciatic issue?
I hope you will share more of your great ideas here and i also hope you will partake of the deep knowledge base available here from so many (sadly) very experienced pain sufferers. I have learned a tremendous amount on Connect including some unique suggestions (like yours) for my wife to try that I otherwise would never have heard about. Plus, there is great support to be found here from wonderful quality people. Look forward to hearing more from you!
@jeba
Just ordered the Theracurmin that you mentioned. It sounds pretty good. The price is pretty high though. It says on the bottle directions that you can take 2 caps/day for seven days then cut back to one a day. Is that what you do? Thanks, Hank
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@jesfactsmon Hi Hank, After reading such an awesome review of Penetrex, the one you posted, I just had to order it. Thanks so much for sharing. I had given up on everything, but this, I just had to try.....Thanks much!!!! Lori
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1 ReactionLori, I hope you read the review. It's better to order the roll-on. If you already ordered from Amazon you can probably cancel the order if you do it right away. I've done that many times. Best, Hank
Oh okay, I see you said you did order the roll-on. I'm glad. Linda agrees with the reviewer that the roll on is really clean and not greasy. And believe me, if Linda says something is not greasy, believe it. I've never known anyone so down on grease as she is. Just to fill you in a little more, this stuff does not eliminate your pain. But like the reviewer said (and Linda so far agrees) it reduces his pain a few points (Linda says a third, like from an 8 to a 5 for example) which ain't bad. She puts it on and then puts her feet in front of the fan and she says for the first ten minutes, total relief. Then the reduced pain level thereafter. So far. And It may disappoint ultimately, like most things do, but you always gotta hope, right?
-
Like -
Helpful -
Hug
1 Reaction@jamesinsonoma Hey James, I replied in this thread to help keep the Journey Stories thread a little more pure.
The doctor is using a device from Nalu Med. Their website is nalumed.com. Check out the Applications tab. For the trail the device will be on the outside of my leg. If successful, it will be embedded just above my foot; one on each leg. The doctor tested me with a nerve block in each foot to see if I would be a good candidate. After the nerve block I was able to walk around for 30+ minutes virtually pain free. The nerve block wore off after a couple of hours. I'll post the results of the trail. The trail is scheduled for late June.
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1 Reaction@fredjan2016 I look forward to hearing the results of your trial.
Jim
Which brand of cream do you use?
@kimgibson1 Hi again Kim, I replied to question in the other discussion you just posted as well. I am not sure whether there is a specific discussion on Connect about cbd oil specifically, but one thing you could do is put just "cbd" into the search box (top of page, click little hourglass icon) and you will find a myriad of posts (I just looked, there's a lot!), some of which will most certainly talk about cdb oil. I'm not sure how to contact posters who have not posted in a while, such as the two people you have tried to reply to. Very likely they may not be paying much attention to this forum right now. Wishing you luck in your quest, Hank
I have had neuropathy from diabetes for years. I use the anodyne therapy shoe & pads but not sure that helps much anymore. It did in the early years.Also a foot circulator that massages the bottoms of my feet & can also heat up. That seems to help some. What I found that has helped the most & so far the neuropathy has only gone a little ways above my ankle. I use (Co. name order online:) Integrative Therapeutic THERACURMIN* HP. bioavailable cur cumin. My Dr. put me on this years ago & I take 2 in am & 2 in pm. It is the only turmeric/curcumin that has helped my neuropathy & I tried many other ones. No luck. Returned them. Also I use : STOP PAIN spray & roll on & it is the only one that helps my pain in my feet. If my feet are hurting badly at night & I can't get to sleep, I put this on, don't feel much but shortly pain subsides & I go to sleep. I have tried many other things.....Vick's, Bio-freeze, aspercreme etc. etc. When I told my neurologist/homeopathic doctor (same doctor) about it, she had never heard of it, immediately looked it up & said "Oh it has __??____in it. Good. That helps pain. Keep using it." I am so very blessed to have this Dr. who helps me with additional supplements for my diabetes, kidney (only have one & it has a stent in the artery, anemia, extensive cell bloodwork, & she gives me an injection of Sarapin. (from Pitcher plant) for my bad back. I tried pain management for 6 months. They couldn't help, saw excellent back doctor & he said my back was so bad with many different things wrong, the only answer was surgery. At this time, I could hardly walk & used a cane all the time. I saw a print- out in her office . Headline said SARAPIN FOR PAIN. I asked her if she thought it would help my bad back, after explaining all the problems & her reply was...." It's homeopathic, no side effects, insurance will pay for it & I believe it will help. IT DID INDEED!!!!! I only use a cane if walking a really long distance. I have no pain & can lift up the bag of 20 lb. bird seed, carefully, with no problems. If it flares up with sciatica pain, I get extra shots & it helps or goes away. I thank God above every day for this doctor, that I found her, & that she gives sarapin injections to me, once a month in my lower back. Sarapin has been a MIRACLE for me & so has the products for my neuropathy. I do notice something different with my neuropathy. They say if you have it, you can't feel if you step on something or cut your foot. My feet are extremely sensitive & if I step on a tiny pebble, it hurts & feels like a huge rock. I also many years ago had the electronic tests for numbness in feet & it definitely is neuropathy. So far, hands & arms seem fairly good. God bless & I hope this helps.
PS: I have told others about sarapin & their doctors reply was: " It doesn't help or only helps a little. " To that I reply: B.S. It's a miracle for me & well worth trying for back pain & perhaps any pain. I didn't ask that!! But give it a try.
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3 Reactions@jeba
Welcome to Mayo Connect, and thank-you for all of your suggestions based on your personal experience. I am a caregiver for my wife who has peripheral neuropathy (PN) in her feet also, also mostly up to her ankles and only occasionally higher but not usually.
Your suggestions are very interesting. I will put Theracurmin on my list of things to explore further. Also the STOP PAIN spray sounds interesting as well. Worth taking for a test drive. Finally, the sarapin for back pain should be something some people here will probably want to try out.
Great you found a doctor you love, that is GOLDEN. Don't let her get away! You really seem to be something of a success story compared to many other PN sufferers. The fact that you are not only coping but thriving (or so it sounds) is amazing. Great that your walking has improved and your need for a cane has reduced. So I assume you have your diabetes under control, correct? Any other health issues besides that, the PN and the back/sciatic issue?
I hope you will share more of your great ideas here and i also hope you will partake of the deep knowledge base available here from so many (sadly) very experienced pain sufferers. I have learned a tremendous amount on Connect including some unique suggestions (like yours) for my wife to try that I otherwise would never have heard about. Plus, there is great support to be found here from wonderful quality people. Look forward to hearing more from you!
Best, Hank
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2 Reactions@jeba
Just ordered the Theracurmin that you mentioned. It sounds pretty good. The price is pretty high though. It says on the bottle directions that you can take 2 caps/day for seven days then cut back to one a day. Is that what you do? Thanks, Hank
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Hug
1 Reaction