Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@lynsorensen

Medical marijuana has given me an almost pain free life after years of doctors putting me on opioids. I get the CBD oil capsules which is NOT hallucinogenic at all. I take one each morning with breakfast. And I got a jar of the ointment to massage any ‘hot spots’ that occur. When I get that sharp pain in my leg or shoulder, I rub it in and the pain is gone in 10 minutes.

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Which brand of cream do you use?

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@kimgibson1

Which brand of cream do you use?

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@kimgibson1 Hi again Kim, I replied to question in the other discussion you just posted as well. I am not sure whether there is a specific discussion on Connect about cbd oil specifically, but one thing you could do is put just "cbd" into the search box (top of page, click little hourglass icon) and you will find a myriad of posts (I just looked, there's a lot!), some of which will most certainly talk about cdb oil. I'm not sure how to contact posters who have not posted in a while, such as the two people you have tried to reply to. Very likely they may not be paying much attention to this forum right now. Wishing you luck in your quest, Hank

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I have had neuropathy from diabetes for years. I use the anodyne therapy shoe & pads but not sure that helps much anymore. It did in the early years.Also a foot circulator that massages the bottoms of my feet & can also heat up. That seems to help some. What I found that has helped the most & so far the neuropathy has only gone a little ways above my ankle. I use (Co. name order online:) Integrative Therapeutic THERACURMIN* HP. bioavailable cur cumin. My Dr. put me on this years ago & I take 2 in am & 2 in pm. It is the only turmeric/curcumin that has helped my neuropathy & I tried many other ones. No luck. Returned them. Also I use : STOP PAIN spray & roll on & it is the only one that helps my pain in my feet. If my feet are hurting badly at night & I can't get to sleep, I put this on, don't feel much but shortly pain subsides & I go to sleep. I have tried many other things…..Vick's, Bio-freeze, aspercreme etc. etc. When I told my neurologist/homeopathic doctor (same doctor) about it, she had never heard of it, immediately looked it up & said "Oh it has __??____in it. Good. That helps pain. Keep using it." I am so very blessed to have this Dr. who helps me with additional supplements for my diabetes, kidney (only have one & it has a stent in the artery, anemia, extensive cell bloodwork, & she gives me an injection of Sarapin. (from Pitcher plant) for my bad back. I tried pain management for 6 months. They couldn't help, saw excellent back doctor & he said my back was so bad with many different things wrong, the only answer was surgery. At this time, I could hardly walk & used a cane all the time. I saw a print- out in her office . Headline said SARAPIN FOR PAIN. I asked her if she thought it would help my bad back, after explaining all the problems & her reply was…." It's homeopathic, no side effects, insurance will pay for it & I believe it will help. IT DID INDEED!!!!! I only use a cane if walking a really long distance. I have no pain & can lift up the bag of 20 lb. bird seed, carefully, with no problems. If it flares up with sciatica pain, I get extra shots & it helps or goes away. I thank God above every day for this doctor, that I found her, & that she gives sarapin injections to me, once a month in my lower back. Sarapin has been a MIRACLE for me & so has the products for my neuropathy. I do notice something different with my neuropathy. They say if you have it, you can't feel if you step on something or cut your foot. My feet are extremely sensitive & if I step on a tiny pebble, it hurts & feels like a huge rock. I also many years ago had the electronic tests for numbness in feet & it definitely is neuropathy. So far, hands & arms seem fairly good. God bless & I hope this helps.

PS: I have told others about sarapin & their doctors reply was: " It doesn't help or only helps a little. " To that I reply: B.S. It's a miracle for me & well worth trying for back pain & perhaps any pain. I didn't ask that!! But give it a try.

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@jeba

I have had neuropathy from diabetes for years. I use the anodyne therapy shoe & pads but not sure that helps much anymore. It did in the early years.Also a foot circulator that massages the bottoms of my feet & can also heat up. That seems to help some. What I found that has helped the most & so far the neuropathy has only gone a little ways above my ankle. I use (Co. name order online:) Integrative Therapeutic THERACURMIN* HP. bioavailable cur cumin. My Dr. put me on this years ago & I take 2 in am & 2 in pm. It is the only turmeric/curcumin that has helped my neuropathy & I tried many other ones. No luck. Returned them. Also I use : STOP PAIN spray & roll on & it is the only one that helps my pain in my feet. If my feet are hurting badly at night & I can't get to sleep, I put this on, don't feel much but shortly pain subsides & I go to sleep. I have tried many other things…..Vick's, Bio-freeze, aspercreme etc. etc. When I told my neurologist/homeopathic doctor (same doctor) about it, she had never heard of it, immediately looked it up & said "Oh it has __??____in it. Good. That helps pain. Keep using it." I am so very blessed to have this Dr. who helps me with additional supplements for my diabetes, kidney (only have one & it has a stent in the artery, anemia, extensive cell bloodwork, & she gives me an injection of Sarapin. (from Pitcher plant) for my bad back. I tried pain management for 6 months. They couldn't help, saw excellent back doctor & he said my back was so bad with many different things wrong, the only answer was surgery. At this time, I could hardly walk & used a cane all the time. I saw a print- out in her office . Headline said SARAPIN FOR PAIN. I asked her if she thought it would help my bad back, after explaining all the problems & her reply was…." It's homeopathic, no side effects, insurance will pay for it & I believe it will help. IT DID INDEED!!!!! I only use a cane if walking a really long distance. I have no pain & can lift up the bag of 20 lb. bird seed, carefully, with no problems. If it flares up with sciatica pain, I get extra shots & it helps or goes away. I thank God above every day for this doctor, that I found her, & that she gives sarapin injections to me, once a month in my lower back. Sarapin has been a MIRACLE for me & so has the products for my neuropathy. I do notice something different with my neuropathy. They say if you have it, you can't feel if you step on something or cut your foot. My feet are extremely sensitive & if I step on a tiny pebble, it hurts & feels like a huge rock. I also many years ago had the electronic tests for numbness in feet & it definitely is neuropathy. So far, hands & arms seem fairly good. God bless & I hope this helps.

PS: I have told others about sarapin & their doctors reply was: " It doesn't help or only helps a little. " To that I reply: B.S. It's a miracle for me & well worth trying for back pain & perhaps any pain. I didn't ask that!! But give it a try.

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@jeba
Welcome to Mayo Connect, and thank-you for all of your suggestions based on your personal experience. I am a caregiver for my wife who has peripheral neuropathy (PN) in her feet also, also mostly up to her ankles and only occasionally higher but not usually.

Your suggestions are very interesting. I will put Theracurmin on my list of things to explore further. Also the STOP PAIN spray sounds interesting as well. Worth taking for a test drive. Finally, the sarapin for back pain should be something some people here will probably want to try out.

Great you found a doctor you love, that is GOLDEN. Don't let her get away! You really seem to be something of a success story compared to many other PN sufferers. The fact that you are not only coping but thriving (or so it sounds) is amazing. Great that your walking has improved and your need for a cane has reduced. So I assume you have your diabetes under control, correct? Any other health issues besides that, the PN and the back/sciatic issue?

I hope you will share more of your great ideas here and i also hope you will partake of the deep knowledge base available here from so many (sadly) very experienced pain sufferers. I have learned a tremendous amount on Connect including some unique suggestions (like yours) for my wife to try that I otherwise would never have heard about. Plus, there is great support to be found here from wonderful quality people. Look forward to hearing more from you!

Best, Hank

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@jesfactsmon

@jeba
Welcome to Mayo Connect, and thank-you for all of your suggestions based on your personal experience. I am a caregiver for my wife who has peripheral neuropathy (PN) in her feet also, also mostly up to her ankles and only occasionally higher but not usually.

Your suggestions are very interesting. I will put Theracurmin on my list of things to explore further. Also the STOP PAIN spray sounds interesting as well. Worth taking for a test drive. Finally, the sarapin for back pain should be something some people here will probably want to try out.

Great you found a doctor you love, that is GOLDEN. Don't let her get away! You really seem to be something of a success story compared to many other PN sufferers. The fact that you are not only coping but thriving (or so it sounds) is amazing. Great that your walking has improved and your need for a cane has reduced. So I assume you have your diabetes under control, correct? Any other health issues besides that, the PN and the back/sciatic issue?

I hope you will share more of your great ideas here and i also hope you will partake of the deep knowledge base available here from so many (sadly) very experienced pain sufferers. I have learned a tremendous amount on Connect including some unique suggestions (like yours) for my wife to try that I otherwise would never have heard about. Plus, there is great support to be found here from wonderful quality people. Look forward to hearing more from you!

Best, Hank

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@jeba
Just ordered the Theracurmin that you mentioned. It sounds pretty good. The price is pretty high though. It says on the bottle directions that you can take 2 caps/day for seven days then cut back to one a day. Is that what you do? Thanks, Hank

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@jeba

I have had neuropathy from diabetes for years. I use the anodyne therapy shoe & pads but not sure that helps much anymore. It did in the early years.Also a foot circulator that massages the bottoms of my feet & can also heat up. That seems to help some. What I found that has helped the most & so far the neuropathy has only gone a little ways above my ankle. I use (Co. name order online:) Integrative Therapeutic THERACURMIN* HP. bioavailable cur cumin. My Dr. put me on this years ago & I take 2 in am & 2 in pm. It is the only turmeric/curcumin that has helped my neuropathy & I tried many other ones. No luck. Returned them. Also I use : STOP PAIN spray & roll on & it is the only one that helps my pain in my feet. If my feet are hurting badly at night & I can't get to sleep, I put this on, don't feel much but shortly pain subsides & I go to sleep. I have tried many other things…..Vick's, Bio-freeze, aspercreme etc. etc. When I told my neurologist/homeopathic doctor (same doctor) about it, she had never heard of it, immediately looked it up & said "Oh it has __??____in it. Good. That helps pain. Keep using it." I am so very blessed to have this Dr. who helps me with additional supplements for my diabetes, kidney (only have one & it has a stent in the artery, anemia, extensive cell bloodwork, & she gives me an injection of Sarapin. (from Pitcher plant) for my bad back. I tried pain management for 6 months. They couldn't help, saw excellent back doctor & he said my back was so bad with many different things wrong, the only answer was surgery. At this time, I could hardly walk & used a cane all the time. I saw a print- out in her office . Headline said SARAPIN FOR PAIN. I asked her if she thought it would help my bad back, after explaining all the problems & her reply was…." It's homeopathic, no side effects, insurance will pay for it & I believe it will help. IT DID INDEED!!!!! I only use a cane if walking a really long distance. I have no pain & can lift up the bag of 20 lb. bird seed, carefully, with no problems. If it flares up with sciatica pain, I get extra shots & it helps or goes away. I thank God above every day for this doctor, that I found her, & that she gives sarapin injections to me, once a month in my lower back. Sarapin has been a MIRACLE for me & so has the products for my neuropathy. I do notice something different with my neuropathy. They say if you have it, you can't feel if you step on something or cut your foot. My feet are extremely sensitive & if I step on a tiny pebble, it hurts & feels like a huge rock. I also many years ago had the electronic tests for numbness in feet & it definitely is neuropathy. So far, hands & arms seem fairly good. God bless & I hope this helps.

PS: I have told others about sarapin & their doctors reply was: " It doesn't help or only helps a little. " To that I reply: B.S. It's a miracle for me & well worth trying for back pain & perhaps any pain. I didn't ask that!! But give it a try.

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Hello @jeba, I would like to add my welcome to Connect along with @jesfactsmon and other members. Thank you for sharing your experience and what helps you. The Theracurmin HP sounds helpful for inflammation and joint health. I take a liquid turmeric supplement more for keeping my PMR at bay and helping with joint inflammation. I've tried various capsules but they didn't seem to work as well for me. There is a recent study (March 2020) about bioavailability that supports the Theracurmin HP at least compared to other capsule forms.

Highly Bioavailable Forms of Curcumin and Promising Avenues for Curcumin-Based Research and Application: A Review:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7144558/

I may have to give it a try. Thank you!

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@johnbishop

Hello @jeba, I would like to add my welcome to Connect along with @jesfactsmon and other members. Thank you for sharing your experience and what helps you. The Theracurmin HP sounds helpful for inflammation and joint health. I take a liquid turmeric supplement more for keeping my PMR at bay and helping with joint inflammation. I've tried various capsules but they didn't seem to work as well for me. There is a recent study (March 2020) about bioavailability that supports the Theracurmin HP at least compared to other capsule forms.

Highly Bioavailable Forms of Curcumin and Promising Avenues for Curcumin-Based Research and Application: A Review:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7144558/

I may have to give it a try. Thank you!

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Hello and a big huge welcome to the group @jeba!! I know you will find a great deal of support, encouragement, inspiration and information here. Warmest regards, Sunnyflower 😊. @jesfactsmon

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Hi Hank,
I take 2 of the curcumin in a.m. & 2 in p.m. as per Dr. orders. And I think of myself in good health but if I list everything I have had, all the surgeries I’ve had etc It sounds pretty bad. I still have my tonsils but gall bladder, appendix (7 yrs later), hysterectomy, right kidney removal in 1997 (encapsulated cancer, so removed all of right kidney), had a stroke several yrs ago, have high BP, diabetes; bad back, bladder repair (yrs ago,) etc. But I control my diabetes, still, with just medication daily. Had to have that increased 2 yrs ago. So I feel like I’m in good health as long as I don’t think about my problems & I can keep moving & caring for my house, gardening, cooking my meals, trimming my dead roses daily (don’t like seeing roses dying & falling apart), cut my flowers & roses & bring them in to enjoy inside every couple of days, use my pool, feed my hummingbirds, squirrels & regular birds & just keep plugging along & thanking God daily for giving me life still & letting me be here to enjoy my family…..1 daughter, 3 sons from 52-63, grandkids (8) from 13 to 33, 5 great grandkids….7,5,3, 1 1/2, & 5 months! I feel truly blessed & I live with my best buddy…..my adopted dog, Sadie, who is 14 now & so far in great shape! She’s a medium size dog & probably part bijon, & maybe part havanese. She’s white with a tiny bit of beige & super soft, non allergic fur. I stay up too late watching Netflix (12:30-2:30am) & usually sleep till 10:30am. You can guess I’m retired. That’s my story!!😃😃
Sorry I’m so long winded!!!

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Hank,
The Theracurcumin is pricey but as I said “It’s the only one that has ever helped me.” I tried several. I hope it helps your wife too. Also I paid attention last night when I went to bed. My PN was hurting a lot so I used the Stop Pain roll on & in a few minutes it eased off & asleep I went! Stop Pain comes in spray & roll on. I like roll on as I can be more direct rolling it on than spraying. Walmart has best price on it.

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@jeba

Hank,
The Theracurcumin is pricey but as I said “It’s the only one that has ever helped me.” I tried several. I hope it helps your wife too. Also I paid attention last night when I went to bed. My PN was hurting a lot so I used the Stop Pain roll on & in a few minutes it eased off & asleep I went! Stop Pain comes in spray & roll on. I like roll on as I can be more direct rolling it on than spraying. Walmart has best price on it.

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@jeba
Well aren't you just a veritable wealth of information! All very useful. Have ordered the Theracurmin as I said before, and Linda (my better half) asked me yesterday whether I'd ordered the Stop Pain yet (she's SO impatient!), so we love that you posted this. Linda has been using Pentrex (roll on) for about 6 months and has appreciated some pain relief (~30%) before bedtime. But she always loves to try something new.

I am happy to hear about your full life and your extensive progeny. Wow, so many kids, grandkids and g.grandkids. So in about 13 years you might have your first g.g.grandkid, eh? You are something! So happy to hear such a great story from someone who was dealt a life of many health problems. Please stay with us here, we need you! Best, Hank

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@jeba

Hi Hank,
I take 2 of the curcumin in a.m. & 2 in p.m. as per Dr. orders. And I think of myself in good health but if I list everything I have had, all the surgeries I’ve had etc It sounds pretty bad. I still have my tonsils but gall bladder, appendix (7 yrs later), hysterectomy, right kidney removal in 1997 (encapsulated cancer, so removed all of right kidney), had a stroke several yrs ago, have high BP, diabetes; bad back, bladder repair (yrs ago,) etc. But I control my diabetes, still, with just medication daily. Had to have that increased 2 yrs ago. So I feel like I’m in good health as long as I don’t think about my problems & I can keep moving & caring for my house, gardening, cooking my meals, trimming my dead roses daily (don’t like seeing roses dying & falling apart), cut my flowers & roses & bring them in to enjoy inside every couple of days, use my pool, feed my hummingbirds, squirrels & regular birds & just keep plugging along & thanking God daily for giving me life still & letting me be here to enjoy my family…..1 daughter, 3 sons from 52-63, grandkids (8) from 13 to 33, 5 great grandkids….7,5,3, 1 1/2, & 5 months! I feel truly blessed & I live with my best buddy…..my adopted dog, Sadie, who is 14 now & so far in great shape! She’s a medium size dog & probably part bijon, & maybe part havanese. She’s white with a tiny bit of beige & super soft, non allergic fur. I stay up too late watching Netflix (12:30-2:30am) & usually sleep till 10:30am. You can guess I’m retired. That’s my story!!😃😃
Sorry I’m so long winded!!!

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@jeba Thanks so much for your neuropathy suggestions and for sharing so much about an interesting, happy life! I loved reading it! Lori Renee

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