Anyone here dealing with peripheral neuropathy?
Liked by John, Volunteer Mentor, peggyj4411, jazzy27, heather074 ... see all
@rwinney . You have such a great attitude I know you will be o.k.
Liked by John, Volunteer Mentor, rwinney
I know everyone's situation is different. I can only attest that PT therapy and yoga and a some needling helped me "cure" my pudendal compression/neuralgia very quickly (8-10 weeks). And I was in pain. I cannot take pills hardly at all due to my general sensitivity and psychology. Wishing you the best!
Liked by John, Volunteer Mentor, rwinney
Thanks my friend. Oh you bet I will! I'll have weekends off, woo hoooo! A disabled girl, in Covid times, stuck in a hotel. 🤪
Rachel, we knew you were dealing with a lot but this gives us a clear picture of it, thank-you for describing it in detail. It is incredible that you seem to be able to stay a pretty positive person overall while dealing with SO MUCH.
Yes, Linda does not take any type of drugs or other medications as she can't take the side effects. She is also allergic to all painkillers such as aspirin, ibuprofen, Tylenol or any of the others. She is allergic to a number of other things as well (including all antihistamines). The one thing that gives her relief is marijuana, but she will only use it up to twice a week as it loses its effectiveness if she does it too often. She is trying to incorporate kratom but has been having some trouble with it so far. Interestingly she finds if she has a strong drink on a given day (she only will drink twice a week max) she usually has a good pain day on the day following the drink day (figure that one out). She says she got a lot from Dr. Sletton's video and she can't wait to hear how you do at the 3 week Mayo thing. I think there are so many people that are interested here that you'd have an avid following if you decided to post a daily blog while there.
Liked by rwinney
@jesfactsmon I feel bad about Linda's allergies. How difficult that must be. Thankfully marijuana and alcohol provides relief for her, here and there. I will indeed post as I can. I'm pretty open and honest so no problem taking others along to learn.
@jamesinsonoma Hi James and welcome to Connect. I'm sorry to hear of your diagnosis. I have small fiber polyneuropathy from a B12 deficiency. I have full body pain that is debilitating. I take Norco (hydrocodone), medical marijuana and Lyrica, along with a plethora of supplements such as R- Alpha Lipoic Acid, Acetyl L Carnitine, magnesium, B12, Omega 3, Hemp oil, etc… Let me know if you have any further questions. Be well.
Rachel
Liked by John, Volunteer Mentor, lioness
Thanks Jane. It will be a big undertaking for me. I certainly will share all I can.
Liked by John, Volunteer Mentor, lioness
@jesfactsmon Hi Hank, I have read so much about Central Sensitization and with all of Linda's allergies/med intolerances, I would imagine she does have Central Sensitization. One of the characteristics of this disorder is an intolerance to chemicals. There can also be intolerances to loud sound, too much light…. just thought I would give you this info. I am pretty sure I have it, too. Not easy. Lori
Liked by rwinney
@lorirenee1 I will second that possibility for Linda. Great call. I'm a migraine sufferer but even without one, I am intolerant to smell, light, noise, chaos…been like this for quite a while now and it has increased since my neuropathy. My body is oversensitive to the littlest things like bumping my hand or a tiny cut, etc..
Conflicting, between my eye disease, chronic migraine and neuropathy. Too much trauma, too much stress, too much pain. It scientifically makes sense.
Lori, have you watched Dr. Slettons video? I first saw it in February and a lightbulb went off. I sat watching it with my husband and our jaws both dropped. I had no idea this diagnosis existed but, it sure made sense for me, finally.
Wishing you a pleasant day. 🌻
Rachel
@rwinney
Aw, thanks Helen. I appreciate your kind words and support.
Liked by John, Volunteer Mentor