Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@freckle1

I"ve discovered a doctor with both Western medicine and acupuncture credentials. About 20 mins walk. Maybe I should give it another go. But I'm not aware of any credible evidence that it works.

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Welcome @freckle1, You mentioned you have Chemo Induced Peripheral Neuropathy. You might find the following discussion helpful:
--- Chemotherapy-induced neuropathy: What helps get rid of it?: https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/

There are several other CIPN related discussions that might be helpful, here is a link to the search results listing the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=chemo%20induced%20neuropathy

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@stephencroll

I’m a vet ..served on Okinawa and largely escaped the war. I have PN ..Idiopathic. Not much can be done other than exercise to keep my legs strong.
I want to thank you for your service to our country and wish you well as you struggle with you health problems.

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Thank you so very much for your service and to all the Vets here.

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@freckle1

Thanks. I have Chemo Induced Peripheral Neuropathy. Gave acupuncture a go for about 6 months. No improvement.

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@freckle1
Have you tried taking Alpha Lipoic Acid and Acetyl L Carnitine supplements for neuropathy pain? They have helped me with some severe small fiber nerve damage/neuropathy pain. I also use Salonpas brand Lidocaine patches (unscented) and capsaicin nerve pain creams.

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@dlydailyhope

@freckle1
Have you tried taking Alpha Lipoic Acid and Acetyl L Carnitine supplements for neuropathy pain? They have helped me with some severe small fiber nerve damage/neuropathy pain. I also use Salonpas brand Lidocaine patches (unscented) and capsaicin nerve pain creams.

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Alpha Lipoic Acid has definitely helped some, pregablin helping with none of terrible side effects like Gabapentin did. Haven't tried Acetyl L Carnitine. Solonpas patches didn't help unfortunately. But everyone's body and condition is somewhat different . Trials and Error sadly.

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I have been dealing with this condition for almost two years now and although I talked my PC doctor about it, she has not yet addressed concerns to my satisfaction I heard about the mayo hospital online while researching

my condition in my hands and feet. I am at a place where I cannot walk any distance anymore and have trouble sleeping at night because the sensitivity in my feet makes it hard to put cover over my feet. I am still looking for anything that will help ?

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