Anyone have the following experiences with long covid?

@smdawson540 I wish you all the best. I experience exercise limitations and am currently moderating at 10 minutes elliptical (for leg strength not cardio fitness), 6 squats, and 6 pushups. Where once I was 45 minutes aerobic (cardio and resistance). Pre Mayo I was told by local neurologist "keep exercising, it'll make you feel better", wrong!!! One of my primary symptoms was Exercise Intolerance. The 45 minutes would destroy me and I would need to lay down for hours to recover. Same with chores around the house with Post Exertion Malaise (PEM). I don't experience that anymore with my reduced level (and all the other elements of my Mayo plan). One of the best analogies I was introduced to my Mayo was that you must treat yourself like an injured athlete. You can't just back out there at the same level, you need to work up to it. Hopefully you can start super simple and ultimately work your way back.

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Have you both been tested for POTS. Your descriptions remind me of who I was 3 months ago. For over 3 years, I had significant PEM and major exercise limitations. Finally, my Neurologist tested me for POTS (Tilt Table Test), diagnosed me with POTS, and now, I'm taking a med called Pyridostigmine. I am back to my full energy self. A friend reported that she heard on the news that Long Covid patients are diagnosed with POTS 5x more than the general population.
Hope this information helps.

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I've had two tilt tables, no POTS. First tilt revealed "some level of dysautonomia", and second said "no dysautonomia". What the medical professionals told me was that the difference (they were separated by about 1 year) was that my body was healing.

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@smdawson540 I wish you all the best. I experience exercise limitations and am currently moderating at 10 minutes elliptical (for leg strength not cardio fitness), 6 squats, and 6 pushups. Where once I was 45 minutes aerobic (cardio and resistance). Pre Mayo I was told by local neurologist "keep exercising, it'll make you feel better", wrong!!! One of my primary symptoms was Exercise Intolerance. The 45 minutes would destroy me and I would need to lay down for hours to recover. Same with chores around the house with Post Exertion Malaise (PEM). I don't experience that anymore with my reduced level (and all the other elements of my Mayo plan). One of the best analogies I was introduced to my Mayo was that you must treat yourself like an injured athlete. You can't just back out there at the same level, you need to work up to it. Hopefully you can start super simple and ultimately work your way back.

Jump to this post

Have you both been tested for POTS. Your descriptions remind me of who I was 3 months ago. For over 3 years, I had significant PEM and major exercise limitations. Finally, my Neurologist tested me for POTS (Tilt Table Test), diagnosed me with POTS, and now, I'm taking a med called Pyridostigmine. I am back to my full energy self. A friend reported that she heard on the news that Long Covid patients are diagnosed with POTS 5x more than the general population.
Hope this information helps.

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Exercise zaps all my energy. Have to rest for 2-3 days after a workout that would normally give me energy. I wonder the role mitochondria play in this issue. Thanks for your well wishes. Wishing you all the best as well.

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@buttasu What if any supplements are you on?

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