1. < Neuroendocrine Tumors (NETs)

Anyone have lung NETs lining your pleura?

Posted by lbowers2 @lbowers2, Jun 8 12:55pm

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node. We are waiting results to see if typical or atypical. Anyone have this in this location and what was your treatment plan?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

ggiinnaa | @ggiinnaa | 7 hours ago
In reply to @lbowers2 "Thank you for the feedback. Hope you now are doing well. We received pathology yesterday and..." + (show)
@lbowers2

Thank you for the feedback. Hope you now are doing well. We received pathology yesterday and it is atypical. We are waiting to see if it is aggressive or slow growing in order for treatment. Was yours atypical or typical?

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Typical is good news. These are slow growing. I just had my 4th 6 month ct scan and these have not grown

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annie12345 | @annie12345 | 7 hours ago
In reply to @ggiinnaa "Typical is good news. These are slow growing. I just had my 4th 6 month ct..." + (show)
@ggiinnaa

Typical is good news. These are slow growing. I just had my 4th 6 month ct scan and these have not grown

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I also have slow growing lung nets in both lungs one has grown very slightly over a year.

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