Anyone have chronic lymphocytic leukemia (CLL)?

@JustinMcClanahan agreed, always speak to your Dr and be guided by that advice and treatment. Additionally, i believe it would be advantageous to seek the advice of a Naturopath for possible complimentary therapies that can further help with treatment.

@mcconachie , agreed

I'd like to remind members of the community guidelines, https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/.

In particular:

Respect all members and Share your story, not medical advice:
-Share your own experiences. But do not tell others what they should do.
- Experience does not replace professional medical advice. It does not replace a diagnosis. It does not replace treatment. See the full Disclaimer.
- Do not ignore professional medical advice. Do not delay seeking medical advice.

When discussing supplements, it is always best to seek the guidance of your provider or a specialist. Some may be harmless to take, but some supplements and vitamins can interact with medications and cause unwanted side-effects or change how a medication works. Anecdotal experiences should not replace expert guidance.

Finally, treat others with respect, even when you disagree.

I have read through all of the comments and just want to say please tone down your bristles and egos. Don’t get upset if people answer with their points of view. It is good to hear all sides then everyone decides for themselves. But continuing to flail each other distorts what this site is actually for… cool down

https://www.cancer.gov/about-cancer/treatment/cam/hp/vitamin-c-pdq
Here is a small snippet of info for your viewing pleasure. There is tons of info out there. I won’t spin my wheels looking for studies because there are few. We know why too. Big Pharma doesn’t fund these studies because there is no money in it for them. They can’t patent a vitamin. This substantiates why there are few studies. This doesn’t mean that there aren’t great benefits for professional iv use.
Instead of attacking the great results and quality of life that my mother has been fortunate enough to receive, it would do you well to look outside the box for your ‘amazing’ claim to knowledge. There is info all over the place if you look.
I don’t wish to carry on with feeding your egocentric tantrum, as I am very busy taking care of my mom and have more important ways to spend my time.

Thank-you

@shelli3300 I've done a ton of research and just completed a clinical trial at Mayo Rochester under the care of a CLL specialist who only treats this one disease. I'm also a CLL patient at the NIH and participate in a study there as well. I'm confident in my knowledge of the disease and its treatment options and have read countless research papers. Can you please provide supporting scientific evidence (a research paper perhaps) which supports your claim? CLL is highly heterogeneous. While your mother may be in the 30% indolent category the rest of us are not. Stating unscientific facts giving false hope to many patients offering treatment options unsupported by science, or the CLL community as a whole, is unhelpful. Again, seeking guidance by a true CLL specialist at Mayo is a smart move, jumping on unproven supplementation is not.

Perhaps this CLL Society link will help
https://cllsociety.org/2026/07/use-of-supplements-in-cll-sll/
Vitamin D is the only supplementation which has some scientific support.

Or this one more specific
https://onlinelibrary.wiley.com/doi/10.1155/2013/972913
"In many normal and malignant cells, increased GSH [glutathione] level is associated with a proliferative response and is essential for cell cycle progression"

Adding GSH may actually be doing harm.

@pearl72 I am super sorry I didn’t see your question until now.
Oncologists are not taught about this therapy, as because it is technically a vitamin, there aren’t the studies that substantiate its use due to it not being part of ‘big pharma’; it is a specialty of Naturopaths. By mouth, only small amount can be tolerated or absorbed, but thru I.V at much larger doses, it is a game changer and becomes cytotoxic to cancer cells. If you can find a Naturopath that is authorized to perform it, this would be an additional best recourse. Cancer patients have also told me repeatedly how it helps them greatly with the side effects from Chemo

FYI, when my mother was diagnosed, it had metastasized to her liver; this was when her liver enzymes were out the roof. This was in early 2022. Since then, her enzymes have normalized. I’m not sure why you assume you know everything about this, you clearly don’t. You would be well advised to do more research.
A congratulations regarding her progress instead of a brow beating with more jargon about ‘the science’ is a more appropriate response.
Thank-you

@shelli3300 Well I'm glad to hear that. 30% of CLL patients have favorable markers and indolent courses (the lucky ones) which never need treatment, but the remaining 70% will have progression requiring treatment with proven drugs like BTK or BCL2 inhibitors. In fact, a fair percentage need treatment at diagnosis or within a year or two as I did. To suggest Vitamin C and Glutathione are somehow an effective treatment for CLL is irresponsible and is not supported by scientific evidence. Again, I don't believe you will find a true CLL specialist who would support your claim, but I am glad your mother is doing well.

@tomatack, thankyou for your opinion..you say there is no data. I beg to differ; my mothers drastic improvement has suggested otherwise. This is the only data I am interested in, respectfully.
She is being followed by an Oncologist fyi and has been since day 1. This Oncologist states that she is one of the lucky ones....