Anyone have a stomach NET?

Posted by isaiah5417nt @isaiah5417nt, Mar 26, 2023

Anyone have a stomach NET?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@dinitsa56

Έχεις συμπτώματα που να ενοχλούν την ποιότητα ζωής σου; εγώ εγχειρίστηκα στο στομάχι και μετά 3 χρόνια που εμφανίστηκε και στο πάγκρεας μου δώσανε μια ένεση Somatuline Autogel 120mg να την κάνω δια βίου μια φορά τον μήνα για να μη μεγαλώσουν οι όγκοι.

Translation:
Do you have symptoms that are disturbing your quality of life? I had surgery on my stomach and 3 years later, when it appeared in my pancreas, they gave me a Somatuline Autogel 120mg injection to take once a month for life to keep the tumors from growing.

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Luckily my quality of life hasn't changed much except for occasional stomach pain and being tired a lot. So far this year I've had 4 NETs removed from my stomach. I have an EGD every 3 months because of the number of polyps I have in my stomach. The GI lab at Vanderbilt does EGD with an ultrasound and have found tumors that way. My oncologist at Vanderbilt thinks the NETs will stay in the stomach (hope he's right). I'm not on medication yet due to my tumors being small.

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