Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

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Lisa Lucier, Moderator | @lisalucier | Jun 2 11:22am

In reply to @SusanEllen66 "Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal...." + (show)

Good news, @SusanEllen66. Phew. Kinda like taking your car in when a light is on in the dash and then the car mechanic determines nothing is wrong.

waterlilly | @waterlilly | Jun 2 3:16pm

In reply to @SusanEllen66 "Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal...." + (show)

I had positive, also. It turned out to be a pre-cancer polyp. If I hadn't had the Cologuard, that polyp would be cancer before my next colonoscopy.

12fireflies | @12fireflies | Oct 12 5:18pm

Hi. First, I would start breathing exercises. Begin by lying down, for comfort. It’s very easy. Breathe through your nose, in & hold for a 1.2. count. Repeat for a count of 12.
While lying down, notice how your body feels. The mind stops racing, every part of you relaxes. From your toes to the hair on your head. Keeping notes of how you feel after the exercise. Lie still for a while to feel the difference in your body. This exercise is what you can do anytime of day or night. Wherever you are. It’s helpful when going to bed. (I didn’t notice until I woke up the next morning, how much better I felt)
Another helpful habit is about 1 hour before bed, fill the tub with warm/hot water. To your liking. Pour in a few cups of Epsom salts and soak until the water begins to cool. This practice will help reduce muscle tension all over.
These 2 things will help your mind and body to relax and become accustomed to the feeling. Sometimes I put on some calming music while relaxing in the tub.
My favorite salt to use is pink Himalayan salt. The difference is quite interesting. I changed my salt intake to pink Himalayan salt, for my food prep as well. It’s much better for the body.
I will keep you in my thoughts and prayers. If you would like someone to talk with, I’m available in the evening. Central time. Be good to yourself. Your body will thank you too.

jofree | @jofree | Oct 12 7:12pm

In reply to @12fireflies "Hi. First, I would start breathing exercises. Begin by lying down, for comfort. It’s very easy...." + (show)

@12fireflies
Excellent advice and kind thoughts. Thanks for sharing. Joseph

12fireflies | @12fireflies | Oct 13 1:56pm

In reply to @jofree "@12fireflies Excellent advice and kind thoughts. Thanks for sharing. Joseph" + (show)

@jofree thank you. I share what works for me, nothing else. I have been blessed with several chronic illnesses. This has persuaded me to take care of myself and do a LOT of research!
(which I was already doing) for other people) needed to know for other complicated issues. I would rather know answers up front than to wait to be told. I like homeopathic methods, whereas Dr’s prefer their ways. It all works out the same. Staying positive. 🙏

jofree | @jofree | Oct 13 5:56pm

Great Attitude! Stay positive. Joseph

mvb1213 | @mvb1213 | Oct 14 7:59am

I too had a positive Cologuard the first of September. I tried to book Mayo but was told no Gasterology appointments at this time. I have been trying locally (I live 1 1/2 hours south of Tucson. Have a consult in Tucson on October 28th. I pray no cancer as I had my right kidney removed a year and half ago due to cancer. It makes me a wreck as they tell you your next step is a colonoscopy. I find it harder and harder to see doctors in a timely manner any more.

jofree | @jofree | Oct 14 6:14pm

In reply to @mvb1213 "I too had a positive Cologuard the first of September. I tried to book Mayo but..." + (show)

@mvb1213
Hello @mvb1213
Anxiety of any kind always ramps up the situation and usually we deteriorate very quickly without any answers. When I was first diagnosed with Colon Cancer in 1999, I went to local hospitals and any Doctor that would see me. In my attempts to control my situation I made several bad calls, just to get answers and it could have cost me my life.
After several months and being told to prepare "my will" by a physicians Mayo Clinic Jacksonville called me and I was admitted within three days. I underwent a Colectomy and all of my large colon was removed and I was left with a colostomy. That was in 1999. Currently my wife and I ride our bikes about 100 miles per week, usually in State Parks and we have experienced an affection towards one another that is much greater in affection than when we first met over 35 years ago. Just be patient and pray in your own way for the answers you seek. At 80 year young, I am still learning the significance of having patients, tolerance and understanding of the things I cannot change. One day at the time. That is all any of us ever really have. Bless your patience.
Joseph

vernscw | @vernscw | Oct 15 11:23pm

In reply to @mvb1213 "I too had a positive Cologuard the first of September. I tried to book Mayo but..." + (show)

@mvb1213
Don't give up trying to get into Mayo. The first time I filled out the online form I was told they don't take my insurance. I waited a few weeks and filled out the online form and was told the same as you they were not taking urology patients. I waited a month and called on the phone and received an appointment. I was very happy even though the appointment was for 7 weeks in the future. This was September 2024. I'm also in Arizona.