Anyone have a positive Cologuard test?

Posted by dazlin @dazlin, Nov 21, 2019

My test results came back positive. I asked what did it show, because they test for 11 different cancers or categories. They said, it just states either negative or positive for cancer. I had problems a few years back and did a colonoscopy, which came back ok. Now this!! I'm reading theres a 13 percent chance of false positive. Right now I'm extremely distraught about having to go through all Consults, tests, and dreaded preps. Orders are in for Consult with gastro, but they're booked out through January or February in Mayo. I have not received any notice for appointment yet. Dont know what to think or do.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

Profile picture for SusanEllen66 @SusanEllen66

Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal.
How annoying…

Jump to this post

I had positive, also. It turned out to be a pre-cancer polyp. If I hadn't had the Cologuard, that polyp would be cancer before my next colonoscopy.

REPLY
Profile picture for SusanEllen66 @SusanEllen66

Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal.
How annoying…

Jump to this post

Good news, @SusanEllen66. Phew. Kinda like taking your car in when a light is on in the dash and then the car mechanic determines nothing is wrong.

REPLY
Profile picture for SusanEllen66 @SusanEllen66

Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal.
How annoying…

Jump to this post

Hmmm. If it was me I’d be celebrating. Small annoyance compared to alternative.

REPLY
Profile picture for SusanEllen66 @SusanEllen66

Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal.
How annoying…

Jump to this post

How wonderful that your colonoscopy was normal! You should be relieved instead of annoyed.

REPLY
Profile picture for dbchip @dbchip

I had my first Colonoscopy at 51 (average no family risk factors). I was good and I was told to come back in 10 years for another. Fast forward I was due for one this year and opted for Cologuard screening instead. It came back abnormal and now I need to follow up with a Colonoscopy. I was on the fence in the first place and should have done Colonoscopy. Now my anxiety is up and I am not trying to go down the rabbit hole about this. I feel fine and have no GI symptoms to speak of. I have read a lot about false positives (my PCP told me 13%) and I have suffer in the past from hemorrhoids/fissures. Anyone else have this experience that they can share? I just wished now I would have gone with my first instinct and just gotten colonoscopy.

Jump to this post

Okay did Cologuard, the results were positive. I went for a colonoscopy and it was normal.
How annoying…

REPLY
Profile picture for dbchip @dbchip

I had my first Colonoscopy at 51 (average no family risk factors). I was good and I was told to come back in 10 years for another. Fast forward I was due for one this year and opted for Cologuard screening instead. It came back abnormal and now I need to follow up with a Colonoscopy. I was on the fence in the first place and should have done Colonoscopy. Now my anxiety is up and I am not trying to go down the rabbit hole about this. I feel fine and have no GI symptoms to speak of. I have read a lot about false positives (my PCP told me 13%) and I have suffer in the past from hemorrhoids/fissures. Anyone else have this experience that they can share? I just wished now I would have gone with my first instinct and just gotten colonoscopy.

Jump to this post

For anyone who is interested, I thought it might be useful to post a link to this study, which looks at patient attitudes and experiences that positively and negatively influenced whether they completed the mt-sDNA test kit (Cologard) and expected to do so in the future:

- Attitudes and Experiential Factors Associated with Completion of mt-sDNA Test Kit for Colorectal Cancer Screening https://journals.sagepub.com/doi/full/10.1177/23743735231213765

This was published in the Journal of Patient Experience in 2023. It does involve some Mayo Clinic and Exact Sciences (the maker of Cologard) authors. It touches on the patient anxiety that @dbchip mentions, but it is not entirely focused on the emotional side of its use (i.e., some of it looks at comfort, embarrassment, ease of use and following instructions, etc.)

REPLY
Profile picture for dbchip @dbchip

I had my first Colonoscopy at 51 (average no family risk factors). I was good and I was told to come back in 10 years for another. Fast forward I was due for one this year and opted for Cologuard screening instead. It came back abnormal and now I need to follow up with a Colonoscopy. I was on the fence in the first place and should have done Colonoscopy. Now my anxiety is up and I am not trying to go down the rabbit hole about this. I feel fine and have no GI symptoms to speak of. I have read a lot about false positives (my PCP told me 13%) and I have suffer in the past from hemorrhoids/fissures. Anyone else have this experience that they can share? I just wished now I would have gone with my first instinct and just gotten colonoscopy.

Jump to this post

An acquaintance had cologuard because he didn't want the colonoscopy. It came back positive. He had the colonoscopy, had a polyp removed, and he's good to go with screening every 5 years. Plus I had read that some doctors say don't use cologuard if you have hemorrhoids, because of the presence of blood triggers the positive response. Seems like you either have nothing, or you have something that probably can be easily handled with a colonoscopy. Don't stress yourself unless you learn otherwise. BTW, the first time I was referred to the hospital for follow up breast imaging due to a suspect mammogram, I worked myself up into a tizzy. Turned out nothing wrong, a lot of false positives there too. Good luck!

REPLY
Profile picture for waterlilly @waterlilly

Don't understand stress of Cologuard. To me it is reassurance. I need colonoscopy every 5 yrs due to polyps. My dr does cologuard in between. I had a positive - showed polyp. Had colonoscopy to remove- precancer. If I hadn't had it done, by next colonoscopy would have been cancer.

Jump to this post

Cologuard is better than nothing. Many reports on here about the test's stress inducing impact when ++ result is found. Many times false ++. If it is working for you great but for many people better just to get the colonoscopy.

REPLY
Profile picture for dbchip @dbchip

Cons:
Not as accurate.
Can't determine what you have.

I have colonoscopy every 3 years, same as Cologuard. They developed the Cologuard to get people to screen since so many don't.

Jump to this post

I am on 3-year recall also, have history of polyps. Better to bite the bullet and get the colonoscopy which is the gold standard.

REPLY
Profile picture for dbchip @dbchip

Cons:
Not as accurate.
Can't determine what you have.

I have colonoscopy every 3 years, same as Cologuard. They developed the Cologuard to get people to screen since so many don't.

Jump to this post

Yes, but no harm getting one in between colonoscopy. Mine was accurate. My G.I. doctor told me one of three possibilities with test- can show cancer, polyps or nothing is wrong.

REPLY
Please sign in or register to post a reply.