Anyone found help?

Posted by Pattileigh @leighsingley7, Dec 20, 2025

Just found Out I have neuropathy. Need those who want to share their experience with this disease!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Hello Pattileigh @leighsingley7, Welcome to Connect. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Sorry to hear that you have joined our club. The best thing you can do to help yourself is learn as much as you can about neuropathy. You are not alone and there is a lot of experience here on Connect. Here's a list of the discussions where folks are discussing "neuropathy what helps" - https://connect.mayoclinic.org/search/.

If you haven't seen the Foundation for Peripheral Neuropathy website it has a lot of tips and suggestions to help you through your journey with this condition - https://www.foundationforpn.org/living-well/. They also have a YouTube Channel where they have all of their past webinars for different neuropathy topics - https://www.youtube.com/@foundationforperipheralneu4122.

You mentioned you just found out you have neuropathy. Do you mind sharing a little more about your diagnosis and what symptoms you have?

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Nothing has helped me. getting worse over time. any advice to stop the spread?

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How did you learn that you have neuropathy? Do you know the cause of your neuropathy? You might want to get an EMG test from a neurologist to see what, if any, kind of nerve damage you have. Try to stay positive. My neuropathy is not painful and I take vitamin supplements to help rebuild nerves and sustain my health. I wish you the best.

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Profile picture for arcuri24 @arcuri24

How did you learn that you have neuropathy? Do you know the cause of your neuropathy? You might want to get an EMG test from a neurologist to see what, if any, kind of nerve damage you have. Try to stay positive. My neuropathy is not painful and I take vitamin supplements to help rebuild nerves and sustain my health. I wish you the best.

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@arcuri24 Learned from my PCP! One of my doctors did suggest an EMG. Didn't follow up with it! MY BAD!
I am trying to get in to see a podiatrist! Will see what she suggests!
THANKS AGAIN!
SUNDANCE aka RB

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My podiatry office offered me the EMG test but I had already taken it via my neurologist. I did get a circulation test in the podiatrist's office. I was only 2 pts. below normal range. And, not all podiatrists will treat neuropathy. I had one that refused to treat me and simply sent me on my merry way with listings of neurologists--some which were no longer in practice. Finding good physicians these days--in any field--is like finding a rare gem. Good luck and keep investigating--you will find answers!

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Hi,
I found out I had Diabetes II 5 years ago, before I was allowed a spinal fusion. Surgeon asked if we knew I was Diabetic? I said no.

A few months later I had spinal fusion. First operation failed. Surgeon redid fusion with a donor’s disc due to the lack of being able to retry my disc.

Anyhow now, 5 years later I had a SCS inserted in my back due to severe Diabetic neuropathy. I am so disappointed ☹️ that this did absolutely nothing for my legs and feet. I was thinking of getting a different model inserted, however, I decided against this.

I am left with the model we know was definitely not what I had tested for a full week before agreeing and had no pain.

I am stating all of this to let people know the Doctors will not guarantee which model they use and not guarantee relief because they change distributors. He did not tell us any of this before or after my surgery.

Be sure what doctors tell you before agreeing so easily.

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