Anyone forego radiation? Research, personal experience, outcomes

Posted by crspedsrn @crspedsrn, Oct 2 10:28pm

I’m 71 year old recently diagnosed with stage one grade 3 triple positive lobular cancer. To date I have had a lumpectomy and two sentinel lymph nodes removed. I finished chemotherapy and still have nine months of Herceptin infusions remaining. I am possibly starting radiation in several weeks and then will be placed on hormone therapy after that, the radiation oncologist told me I am at high risk of developing breast lymphedema from the radiation. I researched this side effect and is one that I definitely do not want. I have looked at studies that have shown radiation can be omitted in my age group with little impact when you have had a lumpectomy, chemotherapy, Herceptin and hormone therapy. I am wondering if anyone else has faced this decision or forgotten radiation treatment. Thank you for your consideration and answering this question.

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Profile picture for luckbme @luckbme

The trouble is there are so many variables. But talking with oncologist can help considerably. You might notice the doctor leaning toward one treatment, but will also tell you other options. If he's a good doctor that is; and you have to decide that by observing and listening. We're all different, but I've not heard of many (Any?) doctors who do not always say radiation is next and just assume you will go along with it. Double negative there. Sorry. I just think doctors try to cover themselves. All of them.

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@luckbme - Doctors cover themselves and each other. You are right, we have to listen carefully and observe...as well as know our risks. Getting second opinions was the best thing I did for myself in this situation.

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Profile picture for crspedsrn @crspedsrn

@roz24
i am grade 3 her2 positive, idk if that is why they want radiation

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@crspedsrn - yes. Grade 3 is considered aggressive. I am sorry. That is what I had too.

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