Anyone experience Lupus with joint pain in the spine but not fingers?

Posted by connecting29 @connecting29, Apr 2 8:54am

Trying to weed out which autoimmune dx I have going on. Chronic, long-term sx, chronic UTI's from age 2, GERD, IBS, migraines, 2 slipped disks. Acute sx, fatigue, malaise, low grade temperature, red cheeks and chin, diff. taking deep breaths, severe itching, bruising on lower extremities and small pancake size rash on thigh. Recent stage 2 kidney dx. Thanks

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Do you have positive blood tests? I have spine pain but tend not to blame it on my lupus. Interesting that you are considering an autoimmune cause. Let us know!

Depending on your age, stage 2 CKD could be pretty good, from what my doctors say. If you are young, that is another story 🙂

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@windyshores

Do you have positive blood tests? I have spine pain but tend not to blame it on my lupus. Interesting that you are considering an autoimmune cause. Let us know!

Depending on your age, stage 2 CKD could be pretty good, from what my doctors say. If you are young, that is another story 🙂

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CRP and ANA negative. Age 45

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Your symptoms sound very uncomfortable and some are even concerning, but they may not be autoimmune. It is hard but in my experience, you have to deal with each one on its own. The low grade temp and breathing issues sound the most concerning to me. I have fractures and they affect taking a deep breath sometimes: maybe your slipped discs are a factor?

What does your primary care doctor say? Do you have an allergist for the rashes, or a dermatologist (who could biopsy them). Neurologist or orthopedist for spine issues?

Do you feel supported? Sorry you are going through this.

ps Stage 2 CKD (eGFR 60-89) is considered normal if no protein is in urine (age is factored in to the eGFR). https://my.clevelandclinic.org/health/diagnostics/21593-estimated-glomerular-filtration-rate-egfr

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I do think an autoimmune condition could be causing your symptoms and would pursue finding the cause. What happens when you can’t take a deep breath? Pain? Pleurisy causes chest pain with deep breathing, usually sharp, and is a symptom of lupus. Low grade fevers, fatigue, red cheeks, rashes, itching and kidney problems can all occur in lupus as well. These symptoms need thorough evaluation by a rheumatologist and a biopsy with immunoflourescent studies of the thigh rash by a dermatologist might give you a diagnosis the quickest. The immunoflourescent studies on the biopsy are essential.
Lots of Drs think spinal pain is not part of autoimmune disorders but I totally disagree. Sometimes symptoms of AI disorders precede the lab evidence by months or years. The lab tests should be repeated every 6 months or so to watch for changes and some are more likely to show positive when you’re most symptomatic. A rheumatologist will do the most comprehensive testing. I hope you get to the bottom of this soon so you can be treated and feel better. You must be persistent and sometimes pesty to get what you need.

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A skin biopsy may be a really good approach for determining autoimmune activity. Or something else.

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