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Anyone else with a Meningioma near the sinus vein?
Hi, I’m in my late 20s and recently had an MRI on my brain done because I was having what my neurologist said were “non-epileptic seizures.” They found a meningioma near the sinus vein measuring at about 2.2 x 1.9 x 1.7cm. I’m having all the symptoms that were described to me and yet I can’t see a neurosurgeon until February. I’m quite scared, more so since I have a young toddler, but also because my neurologist said it’s so close to the sinus vein and it’s a decent size that she’s a bit concerned herself. I know more times than not they are benign but there still is a chance it could be something more. I’ve learned to take things with a grain of salt as I’ve had a rough life but this is something I never saw coming…
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I’m sorry you’re having to deal with this. It’s not fun and it’s understandably scary. Whether it’s benign or malignant, it’s a thing in your skull that doesn’t belong there. Your skull is large enough for your brain; if you add something else, it’s going to affect you. Have you asked your neurologist for any recommendations of neurosurgeons? She may be able to get you in sooner. That’s awful to wait until February.
I have a meningioma pressing on my L transverse sinus. Because of the location of mine along with the fact that it’s messing with my sinus, they consider my tumor inoperable.
Every person and their tumors are different so don’t be scared by my story. Trust me, my story sucks.
I’d have my neurologist or even my primary doc help me get in with a neurosurgeon sooner to ease your mind so you can enjoy your holidays.
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1 ReactionThank you for the comment. It feels so reassuring to hear others stories. I hope you’re doing well too and enjoy your holiday too.
My neurologist is the one that referred me to the neurosurgeon I’m scheduled with. I have my name on a cancellation list, so I hope that something sooner comes up. I just saw my primary care and had some bloodwork to go over - it seems a lot of my health issues are correlated to the tumor and possible other health issues. I’m hopeful for a good outcome!
Thank you again, I greatly appreciate your kind words so very much. I hope you’re doing well! ❤️
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1 Reaction@namesash, I can imagine that you're scared, especially with a young toddler to take care of. You're not alone and may wish to join this active discussion:
- Meningioma: Anyone else? I'm frightened https://connect.mayoclinic.org/discussion/meningioma-9/
I know that it is stressful to wait until February. If travel is possible, you might consider requesting an appointment at one of the Mayo Clinic locations http://mayocl.in/1mtmR63
In addition to the non-epileptic seizures (scary enough), what other health issues or symptoms are you experiencing?