Anyone have dumping syndrome post esophagectomy?

Hi,

Wow, you are eating early! I was not allowed to eat until May after a November surgery. Of course, I had complications that earned me an extra 5 day stay at the St. Mary's resort. Restarting the GI tract was difficult.
Hang in there!

Tom

Thanks. I can’t eat bread muffins, pasta without becoming lightheaded, retching and diarrhea. It’s almost 4 mos. since surgery and still using j-tube for supplemental feedings. I have no feeling of hunger or desire to eat. Hope this ends soon. I appreciate your input.

Hi,

I had an esophagectomy in November 2020. We did the trifecta; mild chemo, proton beam radiation and an esophagectomy. To the best of my knowledge, I have not experienced any dumping syndrome. My abdomen is still not happy though, experiencing a constant aching throbbing.

I pretty much eat what I want to, but much less than before my stomach was stretched. In the restaurant, I think soup, appetizers, starters, kids meals. For some reason, any McDonalds food instigates a vomit. Not sure why, I love McDonalds food. Some uncooked veggies can be problematic and best to avoid; 'raw' onions, 'steamed' beans. Proteins seems to go down well.

Cheers,
Tom

Thank you

My episodes have all had to do with kinds or amounts of food. They're now mild, beginning with weakness, followed by sweating. I lie down for 30-60 minutes, sometimes falling asleep, until it passes.

What did you do to relieve the symptoms? I have tried a high protein, low carbohydrate diet with a little success but I hate eating because it makes me sick. I am still supplementing with tube feedings.

I had my esophagectomy 8 years ago at Mayo and had a recurrence 3 years ago and underwent proton radiation also at Mayo and am now in remission. I had a few serious episodes of dumping syndrome 6-12 months post-surgery and am still having milder episodes maybe 2 or 3 times a month.