Anyone else fighting Costochondritis and DISH?

Posted by hedgehog77990 @hedgehog77990, Jul 25 11:37pm

What do you do to reduce the pain? Help!

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Profile picture for bswpb @bswpb

@vivsterb I never thought it was a heart attack but it keeps coming back because it doesn’t ‘heal’!

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@bswpb Oh I didn't mean it that way towards you. Sorry. I was just putting the info out there for folks that may be new to the disease. It can mimic a heart attack, I was rushed to the ER several times and even admitted to the cardiac unit...UNTIL they finally sent in a rheumatologist to finally diagnose me properly back when it all started in 1994.

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Profile picture for hedgehog77990 @hedgehog77990

Thks everyone for the inputs!!!! Now I dont feel so alone with all the pain I have and know there are others in the same boat. My list of pain areas is long and intertwining, with non stop pain from at least one area and often multiple areas of pain every day all the time. Its so draining and exhausting with pain keeping me up at night; if I become so exhausted and do fall asleep it doesn't last long and I end up waking at 3 or 4 in the morning . Once in a blue moon my aches/pain level is only 2 out of ten so I can breath a sigh of some relief, but that is rare. What do I use to control pain? I use a tens unit, a red light blanket, a heating pad, ice packs, mild stretching, lying on a rolled up towel length wise down the middle of my back on a flat surface, Ibuprofen, Tylenol, Lyrica, and Oxy as a last resort...I have tried half dozen back injections with no affect as well.... an acupuncturist and chiropractor. I am out of ideas and the pain is still draining....Even getting out of my easy chair or in and out of my car or into and out of bed is pain generating. Sometimes I wonder if all. this pain is worth it...

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@hedgehog77990 I have done everything you have except the rolled up pillow, I can't...due to 4 major spinal fusions, last being a 2 part surgery 4 days apart, with it being a full reconstruction of my spine.

But, all your other methods I've "been there, done that." I didn't have any relief with the tens unit (I tried for years). I was stricken with costochondritis way back in 1994. I don't have DISH thank goodness. But, I do have degenerative disc disease.

It's just something we have to live with. Please feel better. Do you have any remission? I do, and it's been a welcomed relief. I have noticed that as the years went by, it became less intense and longer remission periods. As of right now, I can't remember when I've had a flare up...but it is a chronic condition, so it's only a matter of time for the flare to come back, but it seems (with me), that Tylenol helps it tremendously. Like I said, over the years, it seems to be bad, but not unbearable. But, then again, perhaps I'm not noticing it as much because I'm still in a very long recovery from my reconstruction surgery. Who knows...

God bless...

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Profile picture for applejack112 @applejack112

@vivsterb I too have had that most of my adult life and of course was put thru tasts and exrays to rule out the heart.As far as the Dish you will never get rid of it as it is progressive and like in my case starts to fuse your spine.Not much to do withit until simptoms appear.Over 40 years in a truck obviously distroyed my back and know sideways movements are being cumbersome.One of the progressions of dish is the thinning of the discs that give you cushion and in my case lead to a pinched sciatic nerve which left me with poly neuropathy.A word to the wise donot sit in a wooden backed chair for a long period as it will give you pain that is unbearable.

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@applejack112 I don't have DISH. I've had 4 major spinal surgeries due to 2- not at fault car accidents. This last major, major one was this past Jan 26th and 30th. I was in ICU the whole time. They cut me from right under my cervical to my pelvis. Full reconstruction. And, if I had DISH my specialist would have seen. But, my bones have not fused but the disks were in bad shape from the accidents, and degenerative disc disease. I have RA. I also still have Kyphosis. Also, because of my spinal issues, I have been suffering for 9 yrs with peripheral neuropathy and sciatica...oy. That is actually worse than the costochondritis.

But, the costochondritis is bad as well. My rheumatologist told me there is nothing he can do more than giving me anti-inflammatory meds, which I already take for the spine, along with mega doses of Gabapentin.

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Profile picture for vivsterb @vivsterb

@applejack112 I don't have DISH. I've had 4 major spinal surgeries due to 2- not at fault car accidents. This last major, major one was this past Jan 26th and 30th. I was in ICU the whole time. They cut me from right under my cervical to my pelvis. Full reconstruction. And, if I had DISH my specialist would have seen. But, my bones have not fused but the disks were in bad shape from the accidents, and degenerative disc disease. I have RA. I also still have Kyphosis. Also, because of my spinal issues, I have been suffering for 9 yrs with peripheral neuropathy and sciatica...oy. That is actually worse than the costochondritis.

But, the costochondritis is bad as well. My rheumatologist told me there is nothing he can do more than giving me anti-inflammatory meds, which I already take for the spine, along with mega doses of Gabapentin.

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@vivsterb Please get off of gabepentin as the longer your on it the harder it is to get off.All meds only mask the pain and do not correct the issue.Get a dr that can findout what it causeing the issue.

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Profile picture for vivsterb @vivsterb

@bswpb Oh I didn't mean it that way towards you. Sorry. I was just putting the info out there for folks that may be new to the disease. It can mimic a heart attack, I was rushed to the ER several times and even admitted to the cardiac unit...UNTIL they finally sent in a rheumatologist to finally diagnose me properly back when it all started in 1994.

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@vivsterb it was before that when I first had it! It’s insane how easy things cause so much trouble!!!

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Profile picture for applejack112 @applejack112

@vivsterb Please get off of gabepentin as the longer your on it the harder it is to get off.All meds only mask the pain and do not correct the issue.Get a dr that can findout what it causeing the issue.

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@applejack112 I've been on it for 9 yrs. It does help with my peripheral nerve damage in my feet. My nerves were badly compressed (every one decompressed now, including sciatic nerve), all those years, even after the 3 spinal fusions. I had (as stated in my comment above yours), a 4th serious full reconstruction of my spine this past Jan. It was a two day procedure, 4 days apart spent in ICU entire time.

I feel the difference in the burning of my feet from the nerve damage, a lot more if I don't take Gabapentin at least two times a day. Until my spine is full recovered, (takes a yr or more with this surgery), I'm ok with taking Gabapentin.

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As I've mentioned before in this discussion, after all kinds of tests for heart issues, I was diagnosed with costocondritis. My doctor recommend PT and chiropractic. It was very effective. It didn't eliminate the condition, but the widespread and consistent pain went away. If I press on my ribs, I feel pain, but I have no other problems from it. I just avoid press on my ribs.

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In reply to @arflmi33 "What is DISH?" + (show)
Profile picture for arflmi33 @arflmi33

What is DISH?

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@arflmi33 that is the new name.Its rite name is forestiers disease after the man that dicovered it Robert Forestier.Its a progressive disease that grows beteen your vetebrae and over the years it entombs the spine or fuses it and limits your sideway movement.Although its a very invasive it doesnt cause pain until fusion begins.Ive had it since my 40s and after 20yrs it did start to happer my movement alot.The new name for it is Diffused/ideopathic/skelatol/ hypertosis.It means that other than discovering it they know nothing of it hense the ideopathic addage

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Profile picture for vivsterb @vivsterb

@bswpb it actually does not heal. I've had it since 1994. It only goes into remission. Sometimes for days/weeks and even months. But, it will return. It's a very painful inflammation of the main bone in your chest that affects (inflames) your ribs. It can be so bad (like when I get flare ups), that it feels like a heart attack.

But, rest assured, it will not kill you nor cause a heart attack. It's just bad arthritis of the chest bone in between your breasts. Females get it more often than men. Hope that helped.

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@vivsterb I'm a man and i'm suffering with neck/ rib pain from Dish. I've had it for 25 years. How do you control your pain?

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