Anyone dealing with MDS?

I was diagnosed with MDS in December. It was found after a Bone Marrow Biopsy and MRD blood test as part of my on going treatment for AML. It was explained to me that MDS can be a precursor to AML however in my case since my AML was so evident they didn’t look for MDS and started me immediately on induction therapy for AML. I am in remission on maintenance therapy. However have difficulty getting my ANC, Platelets, WBC counts into the normal range. My Hem/Onc MD thinks the MDS maybe the culprit.
I hope your team will request further tests to identify the missing pieces of your health puzzle.

I have the same symptoms and referred to a hematologist/oncologist who did a bone marrow biopsy which showed I have MDS with anemia. Talk to your doctor

@gabuckeye99, are you having further testing to confirm the diagnosis of a myelodysplastic syndrome (MDS)? How are you doing?

I have had low iron and hematocrit for several years but no associated symptoms. My primary care doctor sent me to a hematologist for evaluation. He has been checking my blood work every 4-6 months for almost four years. Yes, I am anemic but the lower blood levels are not to the point where treatment is indicated. Without associated symptoms like fatigue, shortness of breath or weakness, he is taking a wait and see approach. I am 78 years old and feel fine at this point.