Anyone dealing with Dystonia?

Posted by matttheschmatt @matttheschmatt, Aug 8, 2017

Dealing with back, throat, toe and forearm dystonia post brain injury. Have tried many medications to no avail. Some temporary relief from Botox. Does anyone have any tips fior dealing with this condition?

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Profile picture for dystonia @dystonia

Courage and determination. I have been living with dystonia for 74 years and carbidopa-levodopa works like a miracle for me.

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@dystonia
Can you tell me the dosage you are taking for carbidopa-levodopa? I’m on Sinemet 25-100 tablet 3x a day. They may switch me to another fast acting so I can take it just 2x a day.

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