Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

ADH diagnosis - no cancer. I’m electing no drugs, just monitoring. Almost 79 - already have some of those side effects, don’t need more
Input???

Caveat: I'm not a health professional, but my guess is they are truly giving you the recommendation they think is correct for the type of lesion you have, based on their own experience and study. But, you are right to weigh their recommendations against your own experience, age, quality of life, and your own particular health situation. I know this is such a difficult thing to do in practice when you hear so many voices coming at you.

I’ve had the surgeon, oncologist, my gyn and internist advise removal. Are they just backing eachother up???

I have DX ADH - no detected cancer. Hard decision because it’s been recommended after a core needle biopsy followed by MRI to have the lesion removed by excisional biopsy. I’ve decided to do “watchful waiting” with mammograms, MRI and possibly preventative drugs. I’m almost 79 with underlying health issues and the low % of ADH Women advancing to cancer convinced me. Another factor is incidence of mis diagnosis or over treatment.

Hi there -- I am having a likely benign lump surgically removed in August 2023 at recommendation of pathologist and surgeon, but I'm meeting with second-opinion breast surgeon tomorrow to see if they can dial in a diagnosis before we head to surgery. Maybe it'll head off surgery, but I'm accepting that it probably won't. I'm 52, no family history, my health is wonderfully blessedly normal. Small spot showed up on routine mammogram Nov. 2021, ultrasound/biopsy confirmed "benign epithelial lesion." 6-month follow up showed nothing, so I was returned to yearly screening, and boom, the lump grew in a year's time when I got my next mammo. First they suspected Phyllodes because in a year, it grew from millimeters in size to about the size of a peanut (2.1x2.5 cm). First biopsy pathology report indicated ADH which put me in the same exact headspace you're in and led me to this forum. But they also had to send the samples out to other pathologists because they weren't sure of actual diagnosis. Now I have the report and it says there is no atypia. "You're a mystery," the surgeon said to me, "But we would be really, REALLY surprised if this was cancer." I. Hate. Surprises. Now they're just scattering out a bunch of benign differential diagnoses including Phyllodes, PASH, fibroadenoma. I know Phyllodes can also be (or become) malignant in some cases, so for that reason alone, I want it out. Even though I'd rather not have to go through surgery, we all want to know exactly what this mass IS. Bonus will be that I don't have to biopsy this same danged spot ever again! I totally understand your frustration and confusion about what to do. Can you get a second or third opinion to help guide you?

My MRI showed no spread to lymph nodes and confirmed the ADH DX

The above post was a continuation of my previous post on ADH

Original diagnosis from breast ultrasound due to a lump was ADH, atypical ductal hyperplasia( no cancer detected) but biopsy recommended due to size of the tumor. MRI to further check and definitely suspicious so now another excise biopsy to test more of the tumor advised. No final report but images point to a cancerous issue. I’m 78 yrs old and wondering if I should do a close monitoring to get a sense of the progression instead of puting myself through that. It’s likely they will want to remove the complete mass. Any input would be appreciated.

My doctor told me the MRI is the best “tool” for detection. I’ll post the findings.

That sounds like a good option since it’s less invasive. I didn’t know how much an MRI can detect or diagnose. I hope you can avoid surgery!