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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: Mar 20 11:43am | Replies (222)

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@fronterae

Hi! I’m 51 now, but a year ago I was diagnosed with ALH. My doctor did an excisional biopsy. He sent me to an oncologist and she suggested tamoxifen ( but I’m not using it because all the side effects that it can cause). I’m in a close monitoring with mri and mammograms every 6 months. I had DNA testing and was negative. But my sister had DCIS at the age of 36. In June 2023 I had my mri and in July 2023 my mammogram which again came back with 3-4 clusters of microcalcifications. I did one biopsy in August 1st and after that one I did another in August 16 in other area. Both came back with ALH. I just received a call from the breast surgeon’s office that I’ll be close monitoring and that he’s not recommending surgery this time. So I need to wait until my next mammogram in December. This situation make me anxious and nervous.
My insurance provided me with an expert opinion, I’m waiting from them to collect all my medical records in order to receive the the expert opinion/second opinion. Once I receive that opinion I’ll decide if I’m staying with the my breast surgeon or find a new one.

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Replies to "Hi! I’m 51 now, but a year ago I was diagnosed with ALH. My doctor did..."

I’m living with the same diagnosis. Had surgery in February. I also was on Tamoxifen for four months. I had to go off also because of the very severe side effects . My mom and sister had this diagnosis . I have anxiety about what’s next . Five biopsies and surgery . I’m 68..