Anyone being treated for fibrosis after proton radiation treatment?

@andycapp Hi again. To answer your questions 1) Currently I am not taking any antifibrotics as I do not meet the criteria since my pulmonary function tests have been stable. And people say those drugs make you miserable. If you need them, remember to be sure they are in your Part D drug plan formulary in 2027 so that they count against the capped out of pocket expenses for drugs. 2) I see a Radiation Oncologist to follow radiated area and YES I see a pulmonologist and have actually seen two in recent years, because specialists have subspecialties. My cancer pulmonologist referred me to an ILD pulmonologist (interstitial lung disease). The ILD guy monitors my fibrosis and is very knowledgeable. He decided against an antifibrotic and put me on oxygen for exertion and sleep. I also have normal oxygen saturation levels when just sitting. It drops when I get up! It is important to keep your oxygen in the safe range. He follows me closely because my fibrosis is more dangerous than my cancer which can be managed and is slow growing. Only the fibrosis limits my treatment options now and are dangerous for me . I am recently suffering from a lot of coughing also and I will address it in my upcoming appointment. My overall recommendation is to see a Pulmonologist specialized in interstitial lung disease. Other doctors do not have the depth of knowledge to treat it. For example, Mayo has one Pulmonology group for cancer and a separate Pulmonology group for Interstitial Lung Disease....and keep walking! My first Pulmonologist put in his notes that I was deconditioned, and everybody asked me what that was!!!! I wasn't walking after my first surgery and he didn't like that!