Anybody else have these weird symptoms?

Posted by leeisme @leeisme, Jun 20, 2023

I've had pins and needles on and off for the past year, started in the fingers and toes, moved to the hands and feet, sometimes a vague minor numbness up my left calf. No pain, and I can function ok, but something's not right.

I've also had some really weird neurological symptoms which I believe are related:

Sometimes when I wash my hands, they get colder than they should, as if the water were rubbing alcohol. I've done some googling and can't find any reason for the cold hands, although there are plenty of hits for just cold that doesn't have anything to do with water.

A few times in the last year since this started, my tongue felt tingly, like I'd licked a battery. Just the electric symptoms, no taste. This sensation dissipated after a minute or two. I've found some stuff online, could be anything from pregnancy (not!) to a stroke (not), etc. Or from nerve damage which I must have as I have other symptoms, but I couldn't find a specific diagnosis.

Once when I woke up, a good part of my scalp was numb, it itched a little and I could feel my fingernail scratching it but it did not relieve the itch - like my mouth when I've had novocaine. I only had the sensation once, about six months ago. This sensation dissipated after a minute or two. Google shows "scalp dysesthesia" could be from small fiber neuropathy etc.

Sometimes when I'm wearing socks and sneakers, especially when feet get wet, it feels like there may be wrinkles in the socks but there aren't. I don't get this when just wearing socks, or socks and crocs, or flip flops, or bare feet. Google shows that this may be a symptom of small fiber neuropathy. Has anyone who's been diagnosed with small fiber neuropathy get these symptoms? Or the scalp itch & numbness above?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@johnbishop

Hi @mecha, I think the post you mentioned is the one by @mjpm2406 here - https://connect.mayoclinic.org/comment/310996/.

There are a couple of ways to locate previous posts. If you know it's something you want to save, you can easily bookmark the post by clicking the 3 dots at the bottom right of the post and selecting Bookmark. Then when you want to locate it sometime in the future, you can go to your profile and settings by clicking the profile icon at the top right of a window. Then click your Bookmarks link at the left under your profile description.

I found the above post by using the new and updated search function on Connect at the top of every Connect page. I searched for "family +5 generations +gene +neuropathy" without the quotation marks - here is the search results link - https://connect.mayoclinic.org/search/?search=family++%2B5+generations+%2Bgene+%2Bneuropathy.

Notice that the search results link now lists my reply to your post at the top since it also contains the same search parameters.

Happy Friday!

Jump to this post

Agradezco su interés en tratar de ayudarme en la búsqueda.Seguire buscando,pues esta persona a la que se refiere la primera carta,aún no ha encontrado la causa exacta.Si la encontró el autor del mensaje que había leído yo.anteriormente Su gen dificultoso no había sido heredado por sus hijas,lo que hacía preveer que este problema que había arrastrado por varias generaciones,terminaba con el.
Lamento mucho no haber seguido anteriormente las indicaciones que me ha dado usted ahora para guardar los artículos de mi interés.
Gracias nuevamente y le deseo también un excelente fin de semana

Mecha.C

REPLY
@johnbishop

Hi @mecha, I think the post you mentioned is the one by @mjpm2406 here - https://connect.mayoclinic.org/comment/310996/.

There are a couple of ways to locate previous posts. If you know it's something you want to save, you can easily bookmark the post by clicking the 3 dots at the bottom right of the post and selecting Bookmark. Then when you want to locate it sometime in the future, you can go to your profile and settings by clicking the profile icon at the top right of a window. Then click your Bookmarks link at the left under your profile description.

I found the above post by using the new and updated search function on Connect at the top of every Connect page. I searched for "family +5 generations +gene +neuropathy" without the quotation marks - here is the search results link - https://connect.mayoclinic.org/search/?search=family++%2B5+generations+%2Bgene+%2Bneuropathy.

Notice that the search results link now lists my reply to your post at the top since it also contains the same search parameters.

Happy Friday!

Jump to this post

Thanks for this, John.

REPLY
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