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Any success having Lateral Femoral Cutaneous fixed?
My left outer thigh feels on fire, sharp sudden stabbing pains, constant numbness, tingling and prickly feeling.
They have done X-rays, MRI and what they called ‘nerve test’ yet no one said what’s causing the discomfort for years, the Orthopedic has concentrated on lumbar issues and recommended Physical Therapy of which is causing more pain.
I found the term Lateral Femoral Cutaneous Nerve Entrapment on line and it describes and shows pics of exact location of the discomfort in my thigh.
I’m wondering if anyone has had any success in finding help to fix a Lateral Femoral Cutaneous Nerve Entrapment, and what type of Specialist diagnose the issue?
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@teachdydx
Update 6 weeks post op.
Hi, I wanted you all to know I had my 6 week visit this week with my doctor and I am doing very well. The majr nerve pain seems to be over. I have occasional twinges and they may continue some time as I heal fully, but I am much much better. I hardly even take a Tylenol and only occasionally use the 5% lidocaine patch. I am beginning to believe the surgery worked. I am very tired, but still healing and also not used to being able to walk or stand. I see him again in 2 months.
I am however, starting to have deep resentment for the many doctors I saw who dismissed me when I suggested that my condition was meralgia paresthetica. All the drugs they suggested and injections I actually had......the PT, all of the pain....... and I was right.
Good luck to all. BTW my surgery was covered by insurance, Medicare.
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1 Reaction@laurenthewise1 My tenth ( and hopefully final) doctor is a neurosurgeon. I gave him my four year history in detail and he was sure it was meralgia paresthetica and that only surgery would help as I had tried everything else. He said it was rare that it went on this long and it is a rare surgery. I am much better after only 6 weeks ( First two to three were a b*tch). Lauren, you can message me and I will give you more info.
Good luck. joni
Hi,
I've only had a diagnosis for 10 days of Meralgia Parestetica and it is extremely painful in my right thight and sometimes my hip.
I know it will take a long time to set up an epidural injection so in the meantime, I'm just trying to grin and bear it!
I have had CRPS in the past and this pain reviles it!!
@yucca13 , I am 5 months out of surgery. Since my last post I have had good weeks and bad weeks. I am still getting thigh pain, nowhere near what it was, but depresses me that it is not over ( yet). I wear a lidocaine 5% patch every night. I think it helps calm the nerves.
The injections ( all 8) did nothing. I hope they work for you.
- joan
@teachdydx Thank you for your reply, Joan.
I'm sorry to hear that you are still not completely out of pain.
This is really a horrendous condition as far as the pain is concerned.
That is discouraging that the injections did nothing and that surgery has not taken away all of the thigh pain.
I hope it goes away soon.
@yucca13 It is considerably better. They told me it may take 6 months. I am not there yet.... and I read that the longer you had the pain, the longer the recovery. I had it over 4 years before I found my neurosurgeon and was officially diagnosed, having been through 10 doctors and scores of tests, and treatments (for things that were not causal, just guesses from idiot baffled doctors who would not listen), many painful. I never gave up. I knew what it was from the early days, no one listened. I was told to carry a smaller purse and get PT. You are lucky to be diagnosed. Yes, it is excruciating. They also found a small tumor there, a neuroma which also added to the pain, and no test found, or shall I say, no radiologist found not even with the MRN, the MRI of the nerves.
Good luck. You are halfway there........ diagnosed!