1. < Neuroendocrine Tumors (NETs)
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Any one with stomach NET undergone total gastrectomy

Posted by ashokediga @ashokediga, 4 days ago

Stage 2 stomach NET(multiple minor nets) ,regional mitosis to lymph node
What is the better treatment plan?
Is total gastrectomy better at age 30?
Is there any organizations that help for monthly injections?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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Turkey, Volunteer Mentor | @tomrennie | 3 days ago

@ashokediga Hi and welcome to Mayo Connect. As patients and caregivers, we can't say what the best treatment plan is. We are not medical professionals. But, we can share our experiences with our treatment. What treatment options are being presented to you? What monthly injection will you be getting?

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ashokediga | @ashokediga | 3 days ago
In reply to @tomrennie "@ashokediga Hi and welcome to Mayo Connect. As patients and caregivers, we can't say what the..." + (show)
Profile picture for Turkey, Volunteer Mentor @tomrennie

@ashokediga Hi and welcome to Mayo Connect. As patients and caregivers, we can't say what the best treatment plan is. We are not medical professionals. But, we can share our experiences with our treatment. What treatment options are being presented to you? What monthly injection will you be getting?

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@tomrennie Hi ,we have given two choices:
1)Lanreotide ,Octreotide every 3 weeks once
2)total gastrectomy

Based on our financial condition,doctors suggested go with 2nd option

Now I would like to know the life style and complications post total gastrectomy

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Teresa, Volunteer Mentor | @hopeful33250 | 3 days ago
In reply to @ashokediga "@tomrennie Hi ,we have given two choices: 1)Lanreotide ,Octreotide every 3 weeks once 2)total gastrectomy Based..." + (show)
Profile picture for ashokediga @ashokediga

@tomrennie Hi ,we have given two choices:
1)Lanreotide ,Octreotide every 3 weeks once
2)total gastrectomy

Based on our financial condition,doctors suggested go with 2nd option

Now I would like to know the life style and complications post total gastrectomy

Jump to this post

@ashokediga

We have discussion groups on Mayo Connect where members discuss their lives after a total gastrectomy. Here are links to those discussions:
https://connect.mayoclinic.org/discussion/total-gastrectomy/
https://connect.mayoclinic.org/discussion/gastrectomie-and-bile-reflux/
I would encourage you to read the posts in these groups. I would also like to invite @lauriejane to this discussion, as she has also mentioned having a total gastrectomy last year.

Regarding the cost of the monthly injections, it might be a good question to ask your doctor. Often, a doctor's office can search out and get help with medications not covered by your health care plan.

How are you feeling?

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