Any one with Neuroendocrine tumors getting the shot once a month?

Posted by amygirl @amygirl, Dec 23, 2024

I have heard there is side effects to the once a month shot( unsure of the name) what has any one experienced?

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I was diagnosed several years ago and I have refused the shots to this point. I don't have the symptomology other than Asthma like symptoms that I manage. They sound painful and have side effects besides, how does any one afford them? I am sure I will have to submit sooner or later...

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@lkent

I was diagnosed several years ago and I have refused the shots to this point. I don't have the symptomology other than Asthma like symptoms that I manage. They sound painful and have side effects besides, how does any one afford them? I am sure I will have to submit sooner or later...

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Where is your NETS located? Do you have regular CT or PET scans? The shots are painful but the pain can be managed with Lidocaine cream or patches. The only side effect I’ve experienced is occasional fatigue. I am very thankful that my insurance covers the cost.

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Lungs, inoperable, recent chest x ray picked up something on thyroid. I will have a Pet on Monday and see where it goes.

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