1. < Prostate Cancer

Anyone on Pluvicto (Lu 177), a new drug for prostate cancer?

Posted by dedehans @dedehans, Aug 20, 2022

My close friend has had Pluvecto treatment suggested to him by oncologists. It is relatively new, having been approved by the FDA in March 2022. Have any of you been given this drug? I have read it is radioactive material and patient needs to stay away 6 ft from others for at least 3 days so as not to contaminate them. He has not yet decided whether to take the treatment or not as he is feeling awful enough as is.

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dmrice | @dmrice | Apr 3, 2023
In reply to @colleenyoung "@dlylecpa, how is your husband doing? Has Pluvicto helped to relieve his pain?" + (show)
@colleenyoung

@dlylecpa, how is your husband doing? Has Pluvicto helped to relieve his pain?

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Where is he getting treatments Pluvicto is almost impossible to get. How many treatments do the drs believe he should get?

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1 reply
dlylecpa | @dlylecpa | Apr 3, 2023
In reply to @ncoic "In late 2021 I halted all further treatments. No more radiation no more cryo surgery, etc...." + (show)
@ncoic

In late 2021 I halted all further treatments. No more radiation no more cryo surgery, etc. My Doc said to wait until Lutetium was approved and we would go that route. So, next week I begin Pluvicto. Will run every six weeks until the end of may. Then 6 more weeks for final consultation. I admit I am deeply concerned about how I will react to this radical treatment.

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How did your pluvicto treatments go? Can you describe side effects? Any scans since that time? My husband has just started treatment. He is not doing great with the side effects. Fatigue, Nausea, and Pain.

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dlylecpa | @dlylecpa | Apr 3, 2023
In reply to @bamaples "I soon will have Pluvicto treatment #4. I have had all the side effects including severe..." + (show)
@bamaples

I soon will have Pluvicto treatment #4. I have had all the side effects including severe Fitgue, Vomiting, etc. How can you tell if Pluvicto is working and worth suffering thru all the side effects?

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How are you doing with your Pluvicto treatment? My husband just started his 3 weeks ago. He has had pretty severe side effects and pain. Do you have a lot of pain in the spots where you have bone lessions? Have you had any scans since taking your treatments? any improvements? Are you finished with treatments?

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dlylecpa | @dlylecpa | Apr 3, 2023

My husband had his first pluvicto treatment 3 weeks ago. He has been in severe pain and severe headaches. Have you not had any pain, Particularly in spots where there is cancer lesions? Are you taking pain medication or prednisone now?

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dlylecpa | @dlylecpa | Apr 3, 2023
In reply to @colleenyoung "@dlylecpa, how is your husband doing? Has Pluvicto helped to relieve his pain?" + (show)
@colleenyoung

@dlylecpa, how is your husband doing? Has Pluvicto helped to relieve his pain?

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My husband is having good days and bad days. He ended up in the hospital for a low sodium episode. We think it was because he was drinking so much water it diluted his sodium count. He was really sick but got better quickly. Lesson to be learned drink some electrolytes. He is still having a good bit of pain but is managing. This is the 3rd week after the first treatment. Hopefully it gets better from here, at least until treatment #2.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 2, 2023
In reply to @dlylecpa "My husband has stage 4 metastatic prostate cancer too, and received his 1st Pluvicto treatment last..." + (show)
@dlylecpa

My husband has stage 4 metastatic prostate cancer too, and received his 1st Pluvicto treatment last Tuesday. He has been in extreme pain in his leg(shin) and hip (where he had a hip replacement about a 3 years ago.) We know he has some cancer in his bone in the hip but not sure about the shin. He has had an terrible headache off and on throughout the days. Anyone have any similar side effects and what are you using to help with them?

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@dlylecpa, how is your husband doing? Has Pluvicto helped to relieve his pain?

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2 replies
agustinferrari | @agustinferrari | Mar 21, 2023
In reply to @robert570 "When I first got diagnosed I was 52. I went in for the prosectomy and was..." + (show)
@robert570

When I first got diagnosed I was 52. I went in for the prosectomy and was off for maybe 6 weeks. I went back to work and received radiation treatments while I was working. That was part one. After the radiation treatments were done My Urologist told me that I should go on disability because he was sending me to the oncologist, and I was going to have a tough road ahead. I was to have chemotherapy because the scans showed I had bone metastases on my neck and spine. I immediately filed for disability with the the help of my doctors and it was approved the first time. I filled out the papers myself. I did read that Stage 4 Prostate cancer is approved for disability.

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Thank u!!!

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robert570 | @robert570 | Mar 21, 2023
In reply to @agustinferrari "Question were u able to work during all this time? I’m 47 recently diagnosed with stage..." + (show)
@agustinferrari

Question were u able to work during all this time? I’m 47 recently diagnosed with stage IV metastatic PC…

Jump to this post

When I first got diagnosed I was 52. I went in for the prosectomy and was off for maybe 6 weeks. I went back to work and received radiation treatments while I was working. That was part one. After the radiation treatments were done My Urologist told me that I should go on disability because he was sending me to the oncologist, and I was going to have a tough road ahead. I was to have chemotherapy because the scans showed I had bone metastases on my neck and spine. I immediately filed for disability with the the help of my doctors and it was approved the first time. I filled out the papers myself. I did read that Stage 4 Prostate cancer is approved for disability.

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1 reply
robert570 | @robert570 | Mar 21, 2023
In reply to @dmrice "I am glad you are doing well and hope the Pluvicto does great things for you...." + (show)
@dmrice

I am glad you are doing well and hope the Pluvicto does great things for you. May I ask where you are getting treatment? I am considering Pluvicto but hear it is difficult to get.

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University Hospital of Cleveland. I live 70 miles from there.

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agustinferrari | @agustinferrari | Mar 20, 2023
In reply to @robert570 "I just got my first Pluvicto treatment this past Friday. I have been in stage 4..." + (show)
@robert570

I just got my first Pluvicto treatment this past Friday. I have been in stage 4 since 2014. Here's a brief story on my journey. I was diagnosed with Aggressive Prostate cancer at the age of 52, the fall of 2013. My Gleason score was a 9 and my PSA was around 10. I had my surgery to remove my prostate May of 2014. My PSA fell 2 after that. I have bone mets on my spine in the center of my back and neck. The Xgeva shots have worked and the muscle has grown around the fractures and the bones have stabilized. Nothing has spread any further. I have received in this order, Radiation from having my prostate removed, Taxotere chemotherapy, Zytiga and Prednisone, remission for up to almost 4 years, then Xtandi, followed by 13 rounds of Jevtana which just ended this February. March 17 was my first Pluvicto infusion. Through the whole process I have had minimal side effects, the worst being fatigued.

Jump to this post

Question were u able to work during all this time? I’m 47 recently diagnosed with stage IV metastatic PC…

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