1. < Lung Cancer

Any experience with Colchicine for pleural inflammation?

Posted by pb50 @pb50, Dec 4, 2023

Some of you have listened to me whine and moan about persistent rib and diaphragm pain following a left lower lobectomy six months ago. Recently my Rheumatologist put me on a 16 day course of Prednisone for an RA flare and coincidentally my rib and diaphragm pain went away. Totally!! So I learned that it’s inflammation. I went back to him today and he wrote me a script for Colchicine - a drug typically used for gout symptoms. He knows it to be sometimes effective in pleural Inflammation. (Unlike my pulmonologist who said “sometimes these things happen” but could never detail what ‘these things’ were).

Wondering if any of you have taken it for this?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

M.R. Nootz | @mrnootz | Dec 7, 2023

30 days after my top left lobectomy and a wedge taken out the left lower lung I added lots of B12 gummies to the Colchicine .06 in order to up my red blood cell count and lower my inflammation. I am now at 75 days post surgery and feeling no real pain, just a random zap every few days. However, my surgeon thinks I have no pain because as the head of Thoracic surgery at the Mayo Clinic she believes she is just that good at cutting into people. I also take lots of vitamin D3 and a K2 pill once a day.

REPLY
1 reply
pb50 | @pb50 | Dec 7, 2023
In reply to @mrnootz "30 days after my top left lobectomy and a wedge taken out the left lower lung..." + (show)
@mrnootz

30 days after my top left lobectomy and a wedge taken out the left lower lung I added lots of B12 gummies to the Colchicine .06 in order to up my red blood cell count and lower my inflammation. I am now at 75 days post surgery and feeling no real pain, just a random zap every few days. However, my surgeon thinks I have no pain because as the head of Thoracic surgery at the Mayo Clinic she believes she is just that good at cutting into people. I also take lots of vitamin D3 and a K2 pill once a day.

Jump to this post

Well she just may be that good! 😊 I have read that the upper left is the most complex lobectomy because of all the disconnects and reconnects. I am already taking B12 and have been reading about K2 - I may order that today.

It seems like the Colchicine is working but more like a pain pill yesterday than an anti inflammatory. I took 0.6mg at 8 in the morning. It was at peak effectiveness around 2 hours later- and lasted until 5 pm-ish before it began to wane. I took the second dose around 8pm.

This morning ribs felt better early so maybe the longer benefit is kicking in.

I’m hopeful. And thanks so much for the response. I was getting nervous I was breaking new ground here. I trust my rheumatologist with my life so I wasn’t really scared tho 🙂

But while the diaphragm would still rather I don’t take deep breaths, the ribs don’t seem like as much of a painful obstacle.

Thanks again!!

REPLY
Please sign in or register to post a reply.