1. < Chronic Pain
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Any advice for CRPS?

Posted by maggieaz @maggieaz, Feb 3 8:06pm

I just received this diagnosis after seeing numerous doctors for one and a half years after a failed back surgery. I am wondering if anyone has found a remedy or solution or anything that could be helpful for the pain and or the psychological impact. Thank you.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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grannyzoo | @grannyzoo | Feb 6 7:32am
In reply to @maggieaz "@grannyzoo Thank you for sharing. I will try to find the group that you mentioned. I..." + (show)
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@grannyzoo
Thank you for sharing. I will try to find the group that you mentioned. I am assuming this is an online support group??
I appreciate your input and caring.

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@maggieaz yes.

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grannyzoo | @grannyzoo | Feb 6 7:34am
In reply to @rivermaya34 "@grannyzoo @maggieaz I also have gone gluten free and cleaned up my diet (for gastroparesis sake)..." + (show)
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@grannyzoo @maggieaz I also have gone gluten free and cleaned up my diet (for gastroparesis sake) - fruits, veggies, clean meat, healthy snacks and no processed food (I'm not willing to give up coffee lol) - and that has given me longer "tolerable" windows to eat and not feel as bad, but personally, it has not helped me any with the CRPS pain (but that's only me - clearly, it is working for others, as listed here above, and that's WONDERFUL!). I live in SC area, and my BS reps are also great (my implant also allows for MRI's, but only at one location). I wouldn't trade them for anything. I would second going to a teaching hospital - there's a big one here near me - and my friend has also been to Duke and loves it. I am both hopeful and excited that you will find the relief you need! Good luck!

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@rivermaya34 You, too! The diet took about 4 years for me. It was difficult to kick both caffeine and sugar. I was drinking 8 cups of tea a day with sugar.

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georgescraftjr | @georgescraftjr | Feb 6 10:40am
In reply to @maggieaz "@grannyzoo Thank you for sharing. I will try to find the group that you mentioned. I..." + (show)
Profile picture for maggieaz @maggieaz

@grannyzoo
Thank you for sharing. I will try to find the group that you mentioned. I am assuming this is an online support group??
I appreciate your input and caring.

Jump to this post

@maggieaz

Welcome.

In case you don't know this, you can also message people privately in this group.

Hope you find the right doctors who will be able to help you. In the meantime, you might want to read this book: "The Way Out: A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain," by Alan Gordon with Alon Ziv.

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maggieaz | @maggieaz | Feb 6 10:45am
In reply to @georgescraftjr "@maggieaz Welcome. In case you don't know this, you can also message people privately in this..." + (show)
Profile picture for georgescraftjr @georgescraftjr

@maggieaz

Welcome.

In case you don't know this, you can also message people privately in this group.

Hope you find the right doctors who will be able to help you. In the meantime, you might want to read this book: "The Way Out: A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain," by Alan Gordon with Alon Ziv.

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@georgescraftjr
Thank you for the recommendation. I will look for this book. I am very open to suggestions and ideas from others.

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georgescraftjr | @georgescraftjr | Feb 6 11:45am

Please don't thank me. You will thank yourself for reading the book. Hopefully, it will safe you years of not barking up the wrong tree:
https://www.amazon.com/Way-Out-Revolutionary-Scientifically-Approach/dp/059308683X

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rivermaya34 | @rivermaya34 | Feb 7 11:16pm
In reply to @grannyzoo "@rivermaya34 You, too! The diet took about 4 years for me. It was difficult to kick..." + (show)
Profile picture for grannyzoo @grannyzoo

@rivermaya34 You, too! The diet took about 4 years for me. It was difficult to kick both caffeine and sugar. I was drinking 8 cups of tea a day with sugar.

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@grannyzoo Wowie!! I'm impressed! I must stay dehydrated lol, because the only times when I've reached (and surpassed) 8 oz x 8 / day is when I've been in the Caribbean. Otherwise, I don't do very well with taking in enough liquids. But, thanks for the well wishes - glad to know it can be done!

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grannyzoo | @grannyzoo | Feb 8 4:12am
In reply to @georgescraftjr "@maggieaz Welcome. In case you don't know this, you can also message people privately in this..." + (show)
Profile picture for georgescraftjr @georgescraftjr

@maggieaz

Welcome.

In case you don't know this, you can also message people privately in this group.

Hope you find the right doctors who will be able to help you. In the meantime, you might want to read this book: "The Way Out: A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain," by Alan Gordon with Alon Ziv.

Jump to this post

@georgescraftjr thank you for sharing this book title. Anything a person can do to stop CRPS pain is appreciated!

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