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Any Adhesive Arachnoiditis members here?

Posted by jeannels @jeannels, Oct 25, 2017

Hi. My husband has AA. I searched for physicians who specialize in AA and got an old post from 2014. Any updates? We are seeking a specialist somewhere near Maryland and are currently in a Pain Management Clinic, in a dead-end insufficient treatment protocol that will not operate beyond their narrow parameters, which are not working well. He got transferred when his PCP retired, along with 67 other Chronic Pain patients. He is the only one with Intractable Pain and it appears that no amount of educating the NP and MD is going to make a difference. Anyway, I am trying again to find answers after nearly 12 years of his doing very well and having several pain free hours a day on the regimen that various PCPs had him on. Thank you for any help or advice or links or news.

I wish pain-free days and restful nights for each of you. Gentle hugs.

-Jeanne

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carolynhughes75 | @carolynhughes75 | Nov 18, 2025
In reply to @karencornett "Looking for Rx and natural remedies or treatments for adhesive arachnoiditis" + (show)
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Looking for Rx and natural remedies or treatments for adhesive arachnoiditis

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@karencornett
My doctor prescribes Indomethacin. It is the only thing that helps. That drug is on Dr Forrest Tenant's protocol. Must be taken with food.

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laura1970 | @laura1970 | Nov 20, 2025
In reply to @tkdesign "Best bet is to connect with Dr Forest Tennant in California...retired dr that has dedicated nearly..." + (show)
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Best bet is to connect with Dr Forest Tennant in California...retired dr that has dedicated nearly all his time to researching solutions for treatment for this. https://arachnoiditishope.com
You can email him and he'll answer. I use many natural remedies to help with this condition. The top recommendations are steroids and strong NSAIDS of course, but I cannot use these and have found other things that can help. Dr. Tennant has suggestions also.

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@tkdesign I believe dr tenant died. His website is still up though

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laura1970 | @laura1970 | Nov 20, 2025
In reply to @tkdesign "Best bet is to connect with Dr Forest Tennant in California...retired dr that has dedicated nearly..." + (show)
Profile picture for tkdesign @tkdesign

Best bet is to connect with Dr Forest Tennant in California...retired dr that has dedicated nearly all his time to researching solutions for treatment for this. https://arachnoiditishope.com
You can email him and he'll answer. I use many natural remedies to help with this condition. The top recommendations are steroids and strong NSAIDS of course, but I cannot use these and have found other things that can help. Dr. Tennant has suggestions also.

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@tkdesign I heard a rumor that dr Tennant died. Do u know if it is true?

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tkdesign | @tkdesign | Nov 21, 2025
In reply to @laura1970 "@tkdesign I heard a rumor that dr Tennant died. Do u know if it is true?" + (show)
Profile picture for laura1970 @laura1970

@tkdesign I heard a rumor that dr Tennant died. Do u know if it is true?

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@laura1970 Not as far as I know. He's still been corresponding by email and making videos.

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