Answer for thrombocytopenia?

I have been seeing a hematologist for 4 years for low platelets. I still have no answers. Recently I had a Blood Smear for Morphology which showed large platelets. I looked up causes for low platelets and large platelets and came upon MYH9. I have all 3 things that go with it....kidney disease, hearing loss and early onset cataracts. I will ask on Thurs at my next appt. Does anyone have this?