Anorectal Squamous Cell Cancer w Protruding Externally From Anal Verge
Hello, I am a new here, 64 yr old female diagnosed with Anorectal Squamous Cell Cancer back in February of 2026. By report, my tumor is localized to anorectal region with inguinal/rectal nodes. No signs of metastatic disease. My cancer was diagnosed at stage 3a and I have a small piece of it that protruded externally from the my anus verge. I had a seven week treatment plan which included Radiation Therapy (IMRT) five days a week, along with oral chemo therapy daily of 5-FU, and two infusions of mitomycin, one at the beginning and one at the end of the treatment. I completed my treatment plan 5 weeks ago. Now I am in my sit and wait period after finishing my treatment. Will not know the out come until mid July this year when they do a follow up PET.
I am doing okay, as far as the radiation I’m healing very well, much better than I thought it would be these past four weeks. I have normal BM’s now, just don’t have good control over them. When my body says “I got go, I better get up and go!’ Lol! As for the chemo part i did fairly well with very little side effects. I am still very tired, have no energy at all. My activity is very limited. Don’t know if it’s the chemo or the radiation that has drained me. I hope in the next coming month to feel better as I want to return to work in July.
I’m worried, wish I knew what was going on, is it going away, I’m I going to be surgery free, what’s ahead for me, always in my mind daily. This waiting is difficult. I can still feel the tumor protruding from my anus and that really has me concerned. I thought it was shrinking, but it was only hiding out under the inflammation from the radiation treatment. Did anyone have a tumor protrude externally from their anus?
If you don’t mind sharing, I would love to know more about other’s journey with anal cancer post treatment. I would so appreciate your sharing your stories.
Hugs to everyone!
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Had anal cancer 2 yrs ago. 3a also. I had proton radiation and understand what you mean by needing to go to the toilet NOW. While some of my sphincter muscle will never be the same the tumor is gone. No surgery necessary. Maybe what you are feeling is scar tissue? Pet scan will tell.