I was advised to avoid soy, but it seems to be in everything. Tips?

Posted by aej1954 @aej1954, Feb 4, 2022

Hello, I have recently been diagnosed with stage 1 breast cancer and have started taking anestrozole. My oncologist advised me to avoid soy. I did not think that much about it at the time but it seems soy is in everything! Mayonnaise even. Has anyone had this problem?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@aej1954

I start my radiation next week. This is all that was recommended since mine was so small and not in the lymph nodes. Thank you for clarifying the soy issue. I will be reading the labels for sure. Soy is in so many foods. The hardest thing is the side affects of the anestrozole. I wake up several times during the night and have bone pain and headaches, however it is getting a little better. But still a very big adjustment. I’m just thankful mine was caught early and only radiation is required. Thanks again for your helpful reply!

Jump to this post

Did anyone blame Anestrozole type meds cause trigger fingers.
Dr is blaming arthritis!

REPLY
@mari

Did anyone blame Anestrozole type meds cause trigger fingers.
Dr is blaming arthritis!

Jump to this post

This conversation has many people discussing side effects of anastrazole.
https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/

REPLY
@mari

Did anyone blame Anestrozole type meds cause trigger fingers.
Dr is blaming arthritis!

Jump to this post

Funny you should ask. I have been on Anastrozole for 21 months and I have had one trigger finger surgery and now have a trigger thumb that I am having an injection for tomorrow. Did you know the drug causes type 2 diabetes? I was told I will go blind due to the fact I now have diabetic retinopathy. Check what your blood glucose was before you started this drug. I am 70 and diabetes doesn't run in our family. However, I didn't know one of the many side effects of this drug is making you a diabetic.

REPLY
@aej1954

I start my radiation next week. This is all that was recommended since mine was so small and not in the lymph nodes. Thank you for clarifying the soy issue. I will be reading the labels for sure. Soy is in so many foods. The hardest thing is the side affects of the anestrozole. I wake up several times during the night and have bone pain and headaches, however it is getting a little better. But still a very big adjustment. I’m just thankful mine was caught early and only radiation is required. Thanks again for your helpful reply!

Jump to this post

Really question taking the anastrozole. I have been taking it for 21 months after my bi-lateral mastectomy and now I am type 2 diabetic. I was told yesterday I have diabetic retinopathy in my left eye and will lose my eyesight. No one told me that was a life changing side effect. This drug is dangerous. I have had one hand surgery for a trigger finger and now injections into my thump for a trigger thump. The drug is wreaking havoc on my entire body. I am trying to wean myself off slowly so I can stop it all together. The oncologist wanted me on it for five years, if you read what has happened to other women who took this drug and now what they are dealing with, it's not worth it. Big pharma is using us as ginny pigs. Please check your blood sugar before you started taking the pills and every month while you are if you continue. With this drug you need to take high amounts of calcium to keep up with what it robs from your bones, however that isn't good for your body either. Please ask your dr. point blank questions. I have found the most honest person is your pharmacist.

REPLY
@deechase

I have taken Tylenol Arthritis for my pre-anastrozole issues with pain, and this seems to have done a nice job of covering pain. I had other side effects, which caused me to have to stop taking the anastrozole, but bone pain was alleviated by Tylenol Arthritis. Please be advised that this is different than regular Tylenol or Tylenol Extra Strength. Tylenol Arthritis, taken as directed on the bottle, 2 tablets, three times a day (I.e. every eight hours) is safe as per my doctor's advice.

Jump to this post

I am 70, bi-lateral mastectomy, took anastrozole for 21 months now and was diagnosed with type 2 diabetes and yesterday diabetic retinopathy. I was told I will lose my eyesight in my left eye. Diabetes is one of the side effects of this drug that my oncologist didn't tell me about. Always get a printout of your bloodwork when you leave your oncologists office. Keep an eye on your blood glucose because they won't. The reason is, he deals with cancer not diabetes. Really? Big pharma only cares about the money they are making and oh look, now I have to take more drugs to survive what this drug has done. We are only ginny pigs.

REPLY
@mari

Did anyone blame Anestrozole type meds cause trigger fingers.
Dr is blaming arthritis!

Jump to this post

I have trigger thumb. I did mention to my oncologist and he said it was not from med. I also started having hip joint pain back last May , enough that I had to stop going to gym. Trigger thumb just all of a sudden started during the night when it got stuck and I couldn’t straighten it. This has been since November.
I stopped my Anastrozole for 3 months. It didn’t improve any of my issues, so I started it up again. I’ve taken it for 2 years 2 months counting the break away from it. Unfortunately, arthritis gets the blame for everything that doctors can’t explain or do not want to deal with. Best of luck to you. 🙏🏼

REPLY
@sequoia

I have trigger thumb. I did mention to my oncologist and he said it was not from med. I also started having hip joint pain back last May , enough that I had to stop going to gym. Trigger thumb just all of a sudden started during the night when it got stuck and I couldn’t straighten it. This has been since November.
I stopped my Anastrozole for 3 months. It didn’t improve any of my issues, so I started it up again. I’ve taken it for 2 years 2 months counting the break away from it. Unfortunately, arthritis gets the blame for everything that doctors can’t explain or do not want to deal with. Best of luck to you. 🙏🏼

Jump to this post

Yes my cancer dr blames Arthritis for my trigger finger.

REPLY
@mari

Yes my cancer dr blames Arthritis for my trigger finger.

Jump to this post

Even though my trigger thumb did not improve when stopped Anastrozole for 3 months - I Still think it is the cause. Maybe 3 months is not enough or the damage was already done. I keep working my thumb to try snd improve the trigger thumb. Good luck w/ yours

REPLY

Hi all, it looks like this discussion has veered off topic from soy and AIs to joint pain, arthritis and trigger thumb side effects. It's a great topic that I think deserves its own discussion.

Please start a new discussion in the Breast Cancer group https://connect.mayoclinic.org/group/breast-cancer/
Or you may add to this one:
- Can joint pain of aromatase inhibiters (AIs) be reversed completely? https://connect.mayoclinic.org/discussion/can-joint-pain-of-aromatase-inhibiters-ais-be-reversed-completely/

Thank you.

REPLY
@colleenyoung

Hi all, it looks like this discussion has veered off topic from soy and AIs to joint pain, arthritis and trigger thumb side effects. It's a great topic that I think deserves its own discussion.

Please start a new discussion in the Breast Cancer group https://connect.mayoclinic.org/group/breast-cancer/
Or you may add to this one:
- Can joint pain of aromatase inhibiters (AIs) be reversed completely? https://connect.mayoclinic.org/discussion/can-joint-pain-of-aromatase-inhibiters-ais-be-reversed-completely/

Thank you.

Jump to this post

I just want to add, in case people are scared by these posts, that many of us took aromatase inhibitors like anastrazole and did fine. Also it usually takes years to develop retinopathy from diabetes so I am wondering how it happened so fast. It is possible the diabetes pre-dated the med? I will post in the new thread and responses should go there too.

REPLY
Please sign in or register to post a reply.