Anal Squamous Cell Carcinoma

Posted by zobesca @zobesca, Feb 22, 2023

Has anybody with squamous cell carcinoma on the inside of your body had it metastasize? I 'just started immunotherapy and wondering if anybody else has followed this path.

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I am 60 and just started carbo taxol last week. Dec 5 2023 diagnosed with poorly differentiated squamous cell with basaloid features. Pet and CT shows mediastinal nodes and bilateral pulmonary nodules. They biopsied one last week - so I’m now waiting. Chemo again mar 18 and apr 18 planned. Radiation planned as well. Most of the 3.5 cm mass was removed but margins were not clear. Kind of in limbo til biopsy results come in. Either Mets or new primary. Prayers for all here !

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I had squamous cell anal cancer in 2003; however it only affected the skin surrounding the anus. I had biopsies after 5 weeks of radiation and 2, in hospital visits for chemo, I was declared cancer free. I have burn marks on both thighs from the radiatiob; but I'm alive. I saw my doctor every 6 months for apprx. 5 years for a biopsy, then every year until 2013 when I was diagnosed with warts which were removed. When I go out to eat, I take 2 immodiums an hour before which keeps me from having an accident and allows me to eat whatever I want. I was having colonoscopies every year for apprx. 5 years. My last colonoscopy which was performed in 2023 showed no cancer and my doctor said no more for 7 years. As long as as I don't overeat, I can avoid having an accident at home. Yes, it was twenty years ago, but I am still dealing with the results and trying new things. Good luck!!

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@celia16

@princessjilly ,
How is the decision making coming along? I don’t have anything to offer on this, but I hope you find the option that’s best for you. I’ll look forward to seeing your updates. 🧸

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Thanks celia16. Appointment with oncologist in 3 days time.Still not making definite decision maybe will feel better after talking to him Will post here then.

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@princessjilly

First time on here. Have just been diagnosed with Anal Squamous Cell cancer stage 2b. From tests done it has not metastisized to any other area. Am meant to already have started Chemo and Radiation but have put it off for a few weeks making decisions. Im nearly 72 and have emphysema so just dont know if I would survive the treatment . Does anyone have any ideas about this?

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@princessjilly ,
How is the decision making coming along? I don’t have anything to offer on this, but I hope you find the option that’s best for you. I’ll look forward to seeing your updates. 🧸

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@terrymayo50

Will you have to wear the colostomy bag for the rest of your life?
I am your age and also diagnosed with Squamous cell cancer in my anus

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Yes, Libby my ostomy, is forever. I named her Libby because she liberated me from the bathroom! Honestly, it’s not so bad. Once you find the right supplies and feel comfortable with what has to be done, it becomes second nature.

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@rioa21

I too have had squamous cell cancer in the anus. I had 6 weeks of chemo and radiation. The radiation was much more difficult for me to handle than the chemo. The burns and diarrhea were very difficult and painful. The radiation destroyed my sphincter muscle and left me with fecal incontinence. That resulted in me having a colostomy. I am now 3 months post op. I am going to be 74 on my next birthday. It’s a hard call to make. I was diagnosed cancer free in September.

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Will you have to wear the colostomy bag for the rest of your life?
I am your age and also diagnosed with Squamous cell cancer in my anus

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@rioa21

I too have had squamous cell cancer in the anus. I had 6 weeks of chemo and radiation. The radiation was much more difficult for me to handle than the chemo. The burns and diarrhea were very difficult and painful. The radiation destroyed my sphincter muscle and left me with fecal incontinence. That resulted in me having a colostomy. I am now 3 months post op. I am going to be 74 on my next birthday. It’s a hard call to make. I was diagnosed cancer free in September.

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Thanks for reply rio21, I hope things continue to improve for you. Still got till next Monday to let oncologist know my decision. Just getting as much info as I can to make that decision.

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@princessjilly

First time on here. Have just been diagnosed with Anal Squamous Cell cancer stage 2b. From tests done it has not metastisized to any other area. Am meant to already have started Chemo and Radiation but have put it off for a few weeks making decisions. Im nearly 72 and have emphysema so just dont know if I would survive the treatment . Does anyone have any ideas about this?

Jump to this post

I too have had squamous cell cancer in the anus. I had 6 weeks of chemo and radiation. The radiation was much more difficult for me to handle than the chemo. The burns and diarrhea were very difficult and painful. The radiation destroyed my sphincter muscle and left me with fecal incontinence. That resulted in me having a colostomy. I am now 3 months post op. I am going to be 74 on my next birthday. It’s a hard call to make. I was diagnosed cancer free in September.

REPLY

First time on here. Have just been diagnosed with Anal Squamous Cell cancer stage 2b. From tests done it has not metastisized to any other area. Am meant to already have started Chemo and Radiation but have put it off for a few weeks making decisions. Im nearly 72 and have emphysema so just dont know if I would survive the treatment . Does anyone have any ideas about this?

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@colleenyoung

Sam, I believe your question was for @zobesca. Looking back through their comments, they were on the immunotherapy called pembrolizumab, which stopped working for them.

Sam, have you decided to move forward with chemoradiation?

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looks like I have no alternative.
will contact oncologist soon

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