Anyone else have Anal cancer: What treatments did you have?

Anal cancer due to HPV 16. I had IV mitomycin first day and 5 weeks of radiation taking xelota 2x a day on radiation days. The first few weeks were fairly manageable. The last two and the month following were quite difficult. The xelota info said I could get hand and foot rash/peeling. Instead I got it on my face and couldn’t wear my classes or a face mask because my skin peeled and bled. Dose was reduced. My head hair did change texture but did not fall out. Pubic hair did fall out. My radiation oncologist encouraged me to use a vaginal dilator during radiation to move my bladder and ureter to avoid radiation strictures. It was unpleasant but I am able to urinate normally. My bowels are still recovering and I have had a few accidents, but mostly am beginning to trust signals again. My first week of bowel movements was screamingly painful. Sitz baths helped as did steroid ointment for that area. I still wear a pad when going out for security. I was very very tired for several weeks. Not ever a napper, I would lie down to read and end up falling asleep for hours. I am just getting my energy back and my last treatment was end of Nov. I lost over 10 pounds and have had trouble gaining it back. I don’t think my absorption is fully functional yet. My guts still hurt at times and I take meds for pain and lomotil (much better than Imodium) for diarrhea. Pain is getting better and I’m able to reduce meds now. I’ve had a good team that is responsive and supportive. I and hope my upcoming PET scan shows I am cancer free. Good luck on your journey.