AML successful treatment

Posted by lindagi @lindagi, Jan 6 8:19am

Happy New Year! I want to share a happy treatment update for my wonderful response to Venetoclax and Dacogen (similar to Vidaza) for treatment of my AML. When I was diagnosed 3 years ago I was considered too old for transplant at age 78 here at the Mayo Clinic. I went into remission after my first cycle of treatment and have now stayed in remission for 3 years. My treatment has been ongoing and my team here has tweaked my routine several times to reduce side effects. Currently I am on a 5 week cycle of Venetoclax for 7 days at the same time I get Dacogen infusions for 3 days (recently reduced from 5 days). I will continue on some treatment routine as long as it is working. In the meantime I am enjoying a full life with family and friends although still taking precautions (weekly blood draws, avoiding folks with colds, etc.) .
I have learned a great deal throughout this period, including the variability of patient responses that can occur due to so many factors (genetics, other health conditions, etc.). I have also learned that there is at least one other patient here who is closing in on 5 years of remission with a similar routine! I am sharing my story to encourage you and wish all of you good outcomes as you face your treatment challenges.
Linda

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

@lindagi Thank you for sharing such good news from your corner! It's so important that we fellow blood cancer patients hear about the successes and outcomes of treatments.

Wishing you continued fun and life!
Ginger

REPLY

Linda! Happy New Year, indeed!! Thank you so much for sharing this absolutely positive and encouraging news about your AML treatments. You have no idea how many people will read this who aren’t able to go forward with a bone marrow transplant for their Acute Myeloid Leukemia and are looking for some type of encouragement and hope that it can be treated successfully.

I’m so happy for you! Wishing you continued success and please keep sharing updates! We need good news! Huge hug!!

REPLY
Please sign in or register to post a reply.