Diagnosed with Ameloblastoma

I’m going to push for a biopsy prior to any other procedures. Thank you for connecting with me.

Both times I had a biopsy and a pathology report before any more significant treatment.

First round (~2007) I did "conservative" surgery which included two teeth and a big chunk of jawbone + autologous bone transplant + dental implants, which got me though to 2023 - this time I've pushed hard to pursue chemotherapy because my ameloblastoma has a the BRAF V600E mutation - and there is a recently FDA approved oral (pills) chemotherapy for other cancers with that specific mutation.

So, X-ray showed the ‘cyst’. We went to see a maxillofacial surgeon locally and he was concerned about removing it in the office so he referred us to the another surgeon at University of Florida Jacksonville, where they determined that they would do an outpatient procedure to remove it, as well as 2 molars, and do a biopsy at that time. I’m concerned that they should do the biopsy BEFORE this procedure. Your thoughts are appreciated.

Hey, the most common procedure is to do the biopsy before removing it however they may want to do it due to your sons history of cancer however maybe if you menthol in your next appointment that you’d prefer knowing before anything is removed because it’s an intense process to be thrown in at once. Hope you guys are doing well in this time.

That’s my concern actually. As I replied to @tschwerdt, they want to do the procedure and remove 2 molars and do a biopsy at that time.

Hey, hope you’re well. Like mentioned above it can just be a cyst that will need to be removed however most surgeons will do a biopsy to ensure there’s nothing else going on. Ameloblastoma has no known causes such as genetics or lifestyle. We’ll all be here for you regardless of the outcome and wishing your son health and healing.

Hey, hope you’re well. Like mentioned above it can just be a cyst that will need to be removed however most surgeons will do a biopsy to ensure there’s nothing else going on. Ameloblastoma has no known causes such as genetics or lifestyle. We’ll all be here for you regardless of the outcome and wishing your son health and healing.

Hi, @zigvero24 !

Has there been a biopsy to verify the diagnosis of a "cyst"? In my experience, it takes quite awhile (and both times a transfer from the regular pathologist to a specialist pathologist, then more waiting) to get a definitive answer on ameloblastoma.

For me, the first step after dental X-ray discovery and oral surgeon consult was to have a biopsy taken. Both times.