Am I in the right support group for BMS?

Posted by bgadams @bgadams, Apr 18 11:38am

I was diagnosed with Burning Mouth Syndrome 2 1/2 hears ago. My primary physician first referred me to 2 oral surgeons, neither of which could offer much help. One of them even claimed to have knowledge of the condition. So I was then referred to a neurologist. He felt it was a form of neuropathy caused by a nerve condition. Again, no cure but he is treating me with Lyrica which does help reduce the pain.
Based on that, I looked in the neuropathy section of this group for info. I now notice that it's classified in the skin area for discussions. So my question is, am I seeking the right type of doctor? Should I be seeing a skin doctor instead of a neurologist?

Interested in more discussions like this? Go to the Skin Health Support Group.

gently | @gently | Apr 23 9:52pm

bgadams, I don't know what the right place for burning mouth would be. Maybe depends on the cause? My friend was sent to dentists, they were as much help as your oral surgeons. She tells me that the last recommendation was for R AlA. https://www.amazon.com/r-alpha-lipoic-acid/s?k=r-alpha+lipoic+acid
She hasn't had time to test it yet. I'll be following you to see what you find out. I read that they can take a biopsy and count the nerves. People with burning mouth have a lower number of nerves. They can also take a scraping to make sure that it isn't fungus or bacteria.
Isn't this the strangest thing.

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