Always run down with MGUS

I think my fatigue is medication and age, even though I apparently have been diagnosed as having MGUS. I am due for lab work Friday and office visit the following Week. So far, nothing terribly dyramatic, but at 92 I don't think anyone is going to get anxious or super fast reacting.
New Medication for Trigeminal Neuralgia, only one a day, but with the high blood pressure meds, and diuretics, I am ready for a nap by 3, and another one around 8 at night and then sleep 7 hours at night. I mansge to stay awake for meals, and a couple of hours on the computer.
LIFE IS TOUGH. HA! HA!
Gina5009

Bistrot Patty's Paresseux is open and you are all welcome!
(No I barely speak English as my first language. I used a translator. 😂)

@pmm…Chardonnay and popcorn for dinner? Gurl, save me a place. I’ll be right over!! 😅

Deb I always attribute being tired to my rapidly advancing (*@#+!) age.
I guess it doesn’t occur to me that it might be related to the MGUS but it certainly might be.
Some days I have good energy and others, I suggest popcorn and Chardonnay for dinner to avoid making a cooking mess.
I’ve frequently been grateful that MGUS was diagnosed almost at the end of my career. I had planned retirement @ 70 and only had to work a few more months after diagnosis. On those days when my energy is low I catch up on my reading and even nap. In short, if I can pay attention to what my body is telling me, I can adjust my settings and feel better.
I hope you can adjust your sails and feel better too.
Hugs.

I’m so sorry about your kidney involvement and other symptoms. Waiting for information is stressful. When do you go in for a workup?
Let us know how you are doing and if the MGUS has progressed.
Patty

Yes, same as other posts by people mentioning feeling wiped out after activity that usually otherwise wouldn’t do so. I’ve been diagnosed with MGUS since August 2021, 8% IgG Lambda, low IgA back then. Now, I’m MGRS (renal significance) because the last 8weeks I’ve had worsening kidney failure, which is now at stage 3a as of this week. I’m very tired, having changes in urine, as well as other symptoms related to chronic kidney disease (susceptible with IgG Lambda). Lots of bone pain, lots of fatigue, lots of night sweats. Paraprotein jumped up lately, so I think I’m due for another bone marrow biopsy to see if I’m SMM.

Hi I’ve been diagnosed for a few years now and I’ve found that if I do a full day of activity ie shopping or having grandkids The next day I’m wiped out I can’t do anything but sleep and before MGUS I never had anything like it . Xx

I’m with you, don’t get much from hematologist, just that she will do labs every 6 mos to follow my MGUS level.
That’s about all I know, right now I’m fine, and will return for labs in 6 mos.

@debscullum62 Welcome to Mayo Clinic Connect. How did you find us?

Here is information about MGUS from the International Myeloma Foundation: https://www.myeloma.org/what-are-mgus-smm-mm
And what Mayo Clinic has to say: https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362

It's important to note that for many of us, we get a diagnosis of MGUS while labwork is being done for other reasons. Equally important, is the fact that for the vast majority of people the MGUS does not advance to SMM [smoldering multiple myeloma]. Living your life normally and fully, minimizing stress, eating healthy, exercising moderately all will go a long way. Monitoring your health is important to make sure there is not a progression.

I hope this helps you?
Ginger

hi I was diagnosed with MGUS a few years ago and I have had zero information on it All I got told was I need bloods done every 4 months to check levels of which were high They are usually around 8 and all I know is that if they go up to 10 I need to go for further treatment but for what ????