alternative dosages for Tymlos or Forteo

Posted by Laurapearl @laurapearl, Sun, Jul 7 5:24pm

Hi everyone: I’m in my fourth month of Tymlos injections. I’ve noticed from time to time that people mentioned using a variation of the usual dosage of Tymlos or Forteo. For example, instead of one full injection every night, they were injecting every other night, or they were using a reduced amount of the medication in each injection. If you have used an alternative dosage, 1) what was it, 2) why did your doctor suggest it, and 3) how has it worked for you? Thanks!

Hi @laurapearl I thought fellow Connect members @ritafarmer @user_chf56161a and @cirland as they have taken tymlos or forteo and may be able to share if this is something they've experienced.

What is your current dosage? Is your doctor suggesting this?

REPLY
@ethanmcconkey

Hi @laurapearl I thought fellow Connect members @ritafarmer @user_chf56161a and @cirland as they have taken tymlos or forteo and may be able to share if this is something they've experienced.

What is your current dosage? Is your doctor suggesting this?

Jump to this post

I took Forteo for two years about 10 years ago at the recommendation of my rheumatologist. So far as I know, there is only one dosage. It greatly increased my bone density.

REPLY

i am taking the usual prescribed dosage of Tymlos — 80 mcg per daily dose (or 8 clicks of the dosage setter on the pen). The issue for me is that I'm experiencing very strong side effects that have not lessened one bit over time. Some of the anecdotal accounts of alternative dosages that I've seen have mentioned similar things, so I was hoping to learn more about that.

REPLY
@laurapearl

i am taking the usual prescribed dosage of Tymlos — 80 mcg per daily dose (or 8 clicks of the dosage setter on the pen). The issue for me is that I'm experiencing very strong side effects that have not lessened one bit over time. Some of the anecdotal accounts of alternative dosages that I've seen have mentioned similar things, so I was hoping to learn more about that.

Jump to this post

What side effects are you experiencing?

REPLY
@ritafarmer

I took Forteo for two years about 10 years ago at the recommendation of my rheumatologist. So far as I know, there is only one dosage. It greatly increased my bone density.

Jump to this post

I’m taking Forteo now. Just started my 4th month of injections (no side effects so far!). Can you share how much your bone density increased? And what did you follow up with after you finished with the Forteo?

REPLY
@ritafarmer

What side effects are you experiencing?

Jump to this post

With Tymlos, I have a racing heart with palpitations with every dose, as well as nausea and upper stomach pain.

REPLY
@laurapearl

With Tymlos, I have a racing heart with palpitations with every dose, as well as nausea and upper stomach pain.

Jump to this post

@laurapearl, Greetings! I am in my first week. I also experienced the same side effect issues. They got worse and then yesterday I felt great and had no issues. I even wondered if I actually injected the Tymlos. We’ll see how today goes. Please stay in touch. On another note…..I don’t know how much others are paying. Has anyone been successful trying Canada? Have a lovely day. Chris

REPLY

How long have you been on Tymlos? For the first couple months after I started taking Tymlos, I experience nausea and loss of appetite, but these side effects have lessened. I've been taking it for six months and the side effects are minimal.

REPLY
@cireland

How long have you been on Tymlos? For the first couple months after I started taking Tymlos, I experience nausea and loss of appetite, but these side effects have lessened. I've been taking it for six months and the side effects are minimal.

Jump to this post

@cireland Thanks for responding. I finishing my first week? Thanks for the encouraging response. Perhaps our bodies just need to adapt to the medication, Be safe and protected today. Chris

REPLY

I'm in my 4th month of Tymlos and my side effects have not diminished at all (yet).

REPLY

@cireland I notice that folks mention taking this medication in the evening. Is that better than morning. Thanks for posting. Chris

REPLY
@jmanj

I’m taking Forteo now. Just started my 4th month of injections (no side effects so far!). Can you share how much your bone density increased? And what did you follow up with after you finished with the Forteo?

Jump to this post

Spine bone density increased 11%. T score went from-3.9 to -2.8. Femoral neck bone density increased 7%. T score went from -2.6 to -2.0. After forteo, I was on reclast for several years until my doctor recommended Prolia several years ago. It took almost 19byears for the bone density in my spine to increase by 16% and my T score to go from -3.7 to -2.3. I was diagnosed with severe osteoporosis at the age of 41. Now, at the age of 60, I hope that these treatments will prevent me from having the spine and hip fractures that my mother had in her 80's.

Liked by jmanj

REPLY
@artscaping

@cireland I notice that folks mention taking this medication in the evening. Is that better than morning. Thanks for posting. Chris

Jump to this post

I give myself a shot of Tymlos last thing before I go to bed.

REPLY

yes, i inject in the evening also — that way, the side effects don't interfere with starting my day.

REPLY
@cireland

I give myself a shot of Tymlos last thing before I go to bed.

Jump to this post

@cireland, @laurapearl, thank you so much for responding. So…you two prefer the evening and for legitimate reasons. I started with mornings because I am not super great about remembering to take nighttime meds. I set the morning meds out so I don't miss them and I just add the injection to my routine. Now I wonder if I shouldn't try evenings. How do you change from morning to evening? It is great to have your assistance. Thank you and have a peaceful sleep tonight. Chris

REPLY
Please login or register to post a reply.