1. < Osteoporosis & Bone Health

Have you used alternative dosages for Tymlos or Forteo?

Posted by Laurapearl @laurapearl, Jul 7, 2019

Hi everyone: I’m in my fourth month of Tymlos injections. I’ve noticed from time to time that people mentioned using a variation of the usual dosage of Tymlos or Forteo. For example, instead of one full injection every night, they were injecting every other night, or they were using a reduced amount of the medication in each injection. If you have used an alternative dosage, 1) what was it, 2) why did your doctor suggest it, and 3) how has it worked for you? Thanks!

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Ethan McConkey, Moderator | @ethanmcconkey | Jul 7, 2019

Hi @laurapearl I thought fellow Connect members @ritafarmer @user_chf56161a and @cirland as they have taken tymlos or forteo and may be able to share if this is something they've experienced.

What is your current dosage? Is your doctor suggesting this?

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1 reply
ritafarmer | @ritafarmer | Jul 8, 2019
In reply to @ethanmcconkey "Hi @laurapearl I thought fellow Connect members @ritafarmer @user_chf56161a and @cirland as they have taken tymlos..." + (show)
@ethanmcconkey

Hi @laurapearl I thought fellow Connect members @ritafarmer @user_chf56161a and @cirland as they have taken tymlos or forteo and may be able to share if this is something they've experienced.

What is your current dosage? Is your doctor suggesting this?

Jump to this post

I took Forteo for two years about 10 years ago at the recommendation of my rheumatologist. So far as I know, there is only one dosage. It greatly increased my bone density.

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Laurapearl | @laurapearl | Jul 8, 2019

i am taking the usual prescribed dosage of Tymlos — 80 mcg per daily dose (or 8 clicks of the dosage setter on the pen). The issue for me is that I'm experiencing very strong side effects that have not lessened one bit over time. Some of the anecdotal accounts of alternative dosages that I've seen have mentioned similar things, so I was hoping to learn more about that.

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1 reply
ritafarmer | @ritafarmer | Jul 8, 2019
In reply to @laurapearl "i am taking the usual prescribed dosage of Tymlos -- 80 mcg per daily dose (or..." + (show)
@laurapearl

i am taking the usual prescribed dosage of Tymlos — 80 mcg per daily dose (or 8 clicks of the dosage setter on the pen). The issue for me is that I'm experiencing very strong side effects that have not lessened one bit over time. Some of the anecdotal accounts of alternative dosages that I've seen have mentioned similar things, so I was hoping to learn more about that.

Jump to this post

What side effects are you experiencing?

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1 reply
jmanj | @jmanj | Jul 11, 2019
In reply to @ritafarmer "I took Forteo for two years about 10 years ago at the recommendation of my rheumatologist...." + (show)
@ritafarmer

I took Forteo for two years about 10 years ago at the recommendation of my rheumatologist. So far as I know, there is only one dosage. It greatly increased my bone density.

Jump to this post

I’m taking Forteo now. Just started my 4th month of injections (no side effects so far!). Can you share how much your bone density increased? And what did you follow up with after you finished with the Forteo?

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1 reply
Laurapearl | @laurapearl | Jul 11, 2019
In reply to @ritafarmer "What side effects are you experiencing?" + (show)
@ritafarmer

What side effects are you experiencing?

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With Tymlos, I have a racing heart with palpitations with every dose, as well as nausea and upper stomach pain.

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Jul 11, 2019
In reply to @laurapearl "With Tymlos, I have a racing heart with palpitations with every dose, as well as nausea..." + (show)
@laurapearl

With Tymlos, I have a racing heart with palpitations with every dose, as well as nausea and upper stomach pain.

Jump to this post

@laurapearl, Greetings! I am in my first week. I also experienced the same side effect issues. They got worse and then yesterday I felt great and had no issues. I even wondered if I actually injected the Tymlos. We’ll see how today goes. Please stay in touch. On another note…..I don’t know how much others are paying. Has anyone been successful trying Canada? Have a lovely day. Chris

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cireland | @cireland | Jul 11, 2019

How long have you been on Tymlos? For the first couple months after I started taking Tymlos, I experience nausea and loss of appetite, but these side effects have lessened. I've been taking it for six months and the side effects are minimal.

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Jul 11, 2019
In reply to @cireland "How long have you been on Tymlos? For the first couple months after I started taking..." + (show)
@cireland

How long have you been on Tymlos? For the first couple months after I started taking Tymlos, I experience nausea and loss of appetite, but these side effects have lessened. I've been taking it for six months and the side effects are minimal.

Jump to this post

@cireland Thanks for responding. I finishing my first week? Thanks for the encouraging response. Perhaps our bodies just need to adapt to the medication, Be safe and protected today. Chris

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Laurapearl | @laurapearl | Jul 11, 2019

I'm in my 4th month of Tymlos and my side effects have not diminished at all (yet).

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