allergic reaction to bone cement

Posted by denver @denver, Apr 1, 2019

After 1 1/2 years of pain, swelling getting worse, I was tested for allergies. I will have to have another TKR custom without the bone cement. I am devastated at no one checking for allergies as I have numerous strange food allergies. I am told I may have to wait up to 10 mos for the revision as the FDA only approves a small number of these revisions per surgeons annually. This is because it's not a money maker for the hospitals, so it's limited. Another disappointment as now the hardware is coming loose from the bones and is unstable/more painful. Please pass on my bad experience so others don't suffer. Surgeons should be asking about allergies in this era of more and more people allergic to foods/environmental substances.

@ardis3

Thank your for your reply. Has your surgeon given you any ideas what can be done. Revision? Please keep me posted with your progress.

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See surgeon on the 18th this month.

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@martydav

See surgeon on the 18th this month.

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Have seen him yet. Will keep you posted.

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@ardis3

Had TKR in January and Manual Manipulation in March. Always had pain since surgery. Pain getting worse on outside of knee. Where was your pain located. Wondering if I’m allergic also. My surgeon retired and the surgeon who took over ignored my pain concerns and said “stop think about your knee all the time and just live with it”.

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Hi Ardis, see if you can get in with Dr Mark Tuttle at PSL in Denver. Get tested first- it's quick and will give you more information. I'm so sorry you are having a bad outcome. I am doing great now after getting a revision with Dr. Tuttle. I am allergic to the bone cement used in the first TKR>

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Thank you. I live near Boston, Ma . May contact your doctor to see if he can recommend a surgeon who does more then average revisions.

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@ardis3

Thank you. I live near Boston, Ma . May contact your doctor to see if he can recommend a surgeon who does more then average revisions.

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Not easy finding a really good revision surgeon.

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@martydav

I had a reverse shoulder replacement and have been in therapy for two months . I have severe pain over my bicep , especially at night. It feels like a large belt around my arm squeezing me to death . The pain wakes me up at night.
It feels like therapy is not doing anything but making the pain worse. Should I think about being allergic to cement?

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@martydav, Good evening, I thought maybe I just might be able to understand what is going on with your shoulder and the cement. I had a reverse shoulder replacement and have had no problems so it makes me wonder if I have cement or do not have cement. I am attaching a link to a study that was completed with some results that may help you with your decision on a revision.
https://online.boneandjoint.org.uk/doi/abs/10.1302/1358-992X.95BSUPP_34.ISTA2013-482
The pain in your bicep is also discouraging, to say the least. Is there any chance that you have been too aggressive with weight lifting or another PT exercise? What has your PT said about this pain? I have had this kind of pain on occasion and it was usually because I slept on it wrong or I used too much weight when doing the curls. I felt so cocky that I doubled the weight way too soon.

I, too have had a rotator cuff repair on the other shoulder from falling down the stairs. Good thing I didn't create a nightmare on the reverse replacement…the surgeon told me not to fall because he couldn't fix me.

I am sure that you and your PT have discussed and worked on the Fascia in that area. My biceps on both arms seem to suffer from restrictions and the entire area tightens up. Just today I had to have my MFR therapist work on my wrists because they too had become tight and sore. It is such a relief when they release. In case it would be helpful……here is a link to the information about Myofascial Release Therapy.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Let me know what else might be helpful for you.

May you be free of suffering and the causes of suffering,
Chris

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@martydav

I had a reverse shoulder replacement and have been in therapy for two months . I have severe pain over my bicep , especially at night. It feels like a large belt around my arm squeezing me to death . The pain wakes me up at night.
It feels like therapy is not doing anything but making the pain worse. Should I think about being allergic to cement?

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It can only help to have allergy testing. This way you have an answer as to why you’re not improving. And the doctors need to know about it. Plus they know you know about being allergic a nd they can’t blow you off re not responding to therapy. You have to be your own advocate.

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@irish283

It can only help to have allergy testing. This way you have an answer as to why you’re not improving. And the doctors need to know about it. Plus they know you know about being allergic a nd they can’t blow you off re not responding to therapy. You have to be your own advocate.

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Will get tested.

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@ardis3

Not easy finding a really good revision surgeon.

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I know .

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Hope the new knee helps..I too am suffering for 7 years with this new knee replacement but no one can find anything wrong. They x-ray and say all is well. The surgeon said he wished all his patients knees looked this good. I just go home and spend a lot of time crying on the inside.

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@torpedo I have the same thing with my right hip replacement. The surgeon who did the replacement can find nothing wrong. But an MRI shows a torn ligament which he refuses to acknowledge is there. A doctor at Mayo confirms the tear and cause of the pain. The tear was done during hip replacement and can't be fixed!

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@suzanne2

@torpedo I have the same thing with my right hip replacement. The surgeon who did the replacement can find nothing wrong. But an MRI shows a torn ligament which he refuses to acknowledge is there. A doctor at Mayo confirms the tear and cause of the pain. The tear was done during hip replacement and can't be fixed!

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That seems most unusual that the torn ligament can't be repaired..I'm so sorry that you have to surffer in such a way.

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