Ajovy

Posted by giulia76 @giulia76, Feb 7, 2023

Good morning,

Is anyone taking Ajovy to improve symptoms of small fiber neuropathy or neuropathy in general? I took my first shot two weeks ago. So far so good and I am hoping it will help. Can anyone share their experience?

Thank you,

Giulia

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Hello @giulia76. So glad to hear that you're feeling well the first two weeks post shot!

In another discussion on the topic of migraines, members @taterjoy and @april354 have mentioned taking Ajovy so may be able to come in and share their experience to see if it is helpful at all to you.

How long are you hoping the shot will last to reduce or eliminate symptoms?

REPLY

Hi giulia76 (@giulia76)! Good to hear you're feeling better on Ajovy and hopefully it will be well tolerated and effective ongoing. Amanda is correct, I have self-injected Ajovy every 28 days for about six months, for preventative treatment of classic migraines with aura. I was previously prescribed Emgality by my Neurologist at Mayo Clinic but I was paying out of pocket. When my insurer finally added a CGRP to the forumulary, they provide ONLY Ajovy, so I switched since it is much more affordable. It is very affective in preventing daily migraines to about 4-6 per month (requiring Rescue meds such as Frovatriptan and occassionally, acute injections of Ketorolac). I do not feel it is as effect\ive for my case as Emgality was, as my neurological symptoms were almost nil with Emgality. With Ajovy, I experience more ocular flashing scotoma, afterimages, dry eye syndrome, numbness on lower face, and more severe migraine symptoms when I do have a headache (sometimes need two Frovastain two hours apart instead of one). Both CGRPs given in my abdomen cause acute injection-site reaction (intense itching, redding, and swelling lasting a few days). Not enough to give up on it, as it is very effective overall. I hope you continue to do well on Ajovy!

REPLY
@taterjoy

Hi giulia76 (@giulia76)! Good to hear you're feeling better on Ajovy and hopefully it will be well tolerated and effective ongoing. Amanda is correct, I have self-injected Ajovy every 28 days for about six months, for preventative treatment of classic migraines with aura. I was previously prescribed Emgality by my Neurologist at Mayo Clinic but I was paying out of pocket. When my insurer finally added a CGRP to the forumulary, they provide ONLY Ajovy, so I switched since it is much more affordable. It is very affective in preventing daily migraines to about 4-6 per month (requiring Rescue meds such as Frovatriptan and occassionally, acute injections of Ketorolac). I do not feel it is as effect\ive for my case as Emgality was, as my neurological symptoms were almost nil with Emgality. With Ajovy, I experience more ocular flashing scotoma, afterimages, dry eye syndrome, numbness on lower face, and more severe migraine symptoms when I do have a headache (sometimes need two Frovastain two hours apart instead of one). Both CGRPs given in my abdomen cause acute injection-site reaction (intense itching, redding, and swelling lasting a few days). Not enough to give up on it, as it is very effective overall. I hope you continue to do well on Ajovy!

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Thank you for sharing your experience with me. I really appreciate it. I will keep using it (one shot every 28 days) and hopefully, I won't start having side effects. I read about some very bad experiences and I was a bit concerned, although still willing to try. I am desperate as I feel I am losing control of my body bit by bit. I don't think Ajovy will eliminate symptoms. Perhaps it will help with the migraines I have been experiencing more frequently recently but, just like Pregabalin first and Cymbalta after, it will help to manage the myriad of symptoms I have. I am still researching a cause for my small fiber neuropathy. I am seeing a rheumatologist (the third one) in March and going to a neuromuscular specialist in St. Louis in October. Fingers crossed. Thank you again.

REPLY
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