Aging
I’m not or ever really have been a person that worried about my looks but since being diagnosed with PMR in September 24 and being on prednisone and Actumra infusion I think I’ve aged 25 years in looks. Anyone else
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I think it comes at a bad time. Statistics say its an over 55 disease. Although we know its not limited by age. Mine hit at 68. The aging process is well underway. Seems 30-50 sort of holds its own. 60-70 has some big changes. I am 72. I am afraid 70-80 is going to be brutal. But then you add in all the other conditions that start popping up and medications. Welcome to the golden years.
@nanniepie, @tuckerp and all... Well. welcome to reality and our new world of crazy medical surprises and medications that affect our entire body. I'm a 78 year old woman, in about 2 weeks! Thrilled to have this birthday. Aging is a good thing to me, as I'm alive, enjoying life at whatever stage or level I can at the moment. It is a roller-coaster with high good days, and low not so good days. I suppose a bunch depends on how you perceive this part of life, and how you accept the changes you see in your face, your body and your life. I found a couple years ago that that is the key to my joy in life. Acceptance...
You didn't mention your age, so I'm not sure where you are in this process. But, I suggest you use Perplexity or Google...I've disowned Google due to my perceived bias on that site. Perplexity is free and I am thrilled with the clear, unbiased information I get on the site, with no sponsored links! Anyway, do your research. Check the effects you may have of medications. Steroids, Prednisone and such, have impacted my life in many ways.
I have multiple autoimmune diseases, including PMR, and have taken Prednisone off and on for decades. My body reacts in fairly normal ways, as I understand it... I gain weight-yucky! Usually, 2040 pounds, depending on the dosage strength. My belly is enlarged, partially due to the Prednisone and I believe partially due to a loss of height in the last decade. I was until several years ago, 5'10". I am now 5'6" tall. Quite a loss in height that surely is partially causing my belly to enlarge as organs find comfortable places to hang out... Not a medical diagnosis, just logical and from my point of view trying to see my feet from above!
Steroids often affect he bone density, can cause multiple issues, so be sure to openly discuss these things with your physician. Be assertive, not aggressive, and thank him for helping you understand what to expect. I have a love/hate relationship with steroids... They save my life! They reduce pain greatly... give me much needed energy, do often make me talk too much, but tough! That can be handled if I want to be better. There are many positives from these drugs but they also have side effects, so ask questions, go on respected sites to research the illness and treatments. Be your own advocate. And, accept the facts of your life as it unfolds. Otherwise, you'll stay in the fight or flight life-style and do yourself more harm. Cause more stress. Research. Ask questions. Accept your illness and treatment as your life, then work like crazy to get better!
PMR attacked me after I had a 2nd Covid infection, last October. 1st was in July, recovering well with Paxlovid. October was different, more severe, had 3 days of Remvesidere infusions, developed Covid pneumonia and was in bed at home on my bi-pap with O2 added for 3-4 days to keep my O2 level above 90, the magic number. I was completely surprised by PMR, had no idea what was happening and it was rough. I am still having issues but staying on my sweet spot of 8 mg Prednisone daily and 7.5 mg Methotrexate weekly to stablelize the symptoms. It's working fairly well, although I may be having a flare. Seeing the Rheumatologist and blood-work next week, so we'll see.
My additional treatments: therapy pool rehab for entire body relief from pain, stress, muscle issues, etc.; CBD at night to help with stress relief, pain, relaxation and sleep; I take multiple supplements, with my doctor's knowledge; suggest what exercise is suitable for you; and do attack your attitude toward life and the changes. I use facial creams I've used and loved for years, that I think help me be more lovely!!!! I'm not attempting to be young, but to be the best I can be with what I have and will have... with whatever illnesses and meds and junk that comes to me. Fight like the dickens. Accept the situation. Love where you are and be your best self!
Blessings as you join us in this crazy journey... Elizabeth
Thank you for your positive and joyful input. You make your own music with your words and thoughts. Thanks for sharing.
Thank you so much Elizabeth your reply was so very very helpful. I think I’m just having a really pity party with my self and yet I know I have so much to be grateful for. A good family and support system and good Drs. I’m 76 years young 😂 and truly never saw this coming but I’m sure none of us did. I’m going to re read your reply a few times to hopefully let all its goodness sink in. Thank you. This is truly a great support group.
@nanniepie, @williamjmillerdmd, @tuckerp, and all... Thank you so much for your kind words and thoughts. I do hope my words from my life and heart help you through this very tough time in your life. You know, it's tough after we retire. Working for years is difficult, but I do believe these aging years are when the hard work begins. We are adjusting to a completely different place in the world. Our world grows smaller, friends move, are ill, no longer available as also happens with family. So, we must make a new life and learn new battle techniques, new relaxation tricks and how to deal with so many health surprises we never expect or even know about...
But, this is also the time, at least for me, I am finding the truest me inside. It's been a long rough journey into aging. Full of fighting for survival, to be seen and heard, to be understood... But, as a life-long Southern gal, I found I have a steel spine. I am a steel magnolia! And this is a wonderful awakening of myself, my best self as I use walls for stability, walk and do everything slowly, hurt a bunch and often, and all that goes with getting older. You know, I'm thrilled to be having these challenges, to be alive. I will fight, win some, lose some, but with God holding me close and my Connect friends, Mayo with the caring and wonderful staff and doctors, I will go forward. As will you!
Blessings, Elizabeth
Well said "Steel Magnolia", there is not much more anyone can add to your heartfelt words. Through my life journey I have found that what has helped me the most is an "attitude of gratitude" and every day "trying" to be a little kinder.
Keep smiling 😃 🤗
Attitude of gratitude is new to me… but great words for many of us. Accept the challenge of each and every day as your next step in this great journey of life. There are always bumps in the road but I’m sure you and I can overcome those little obstacles and grow from them to be stronger for ourselves and the others who need our strength and support. God Bless
You’re welcome. Thank you.