After Bravo they want to do esophageal manometry - any experience?

@jlharsh How do you think a numeric diagnosis would help? I was not looking for the number of GI procedures. It all started with getting ill and losing my voice. I do feel like my pain from IH is good enough here what I was concerned about was the stent. Is the stent working or blocked. I want a care plan. I want to know how tests guide treatment and how I could have a better quality of life. Unfortunately since the probe is larger and it took a great deal of force to get past my nasal anatomy how a larger tube could even pass and how many learner would be watching. It is hard for me to breathe through pain with an observes even 2 extra. I can’t explain why I feel this way, but I feel the need to hide my pain. I don’t want people to see it on my face, I used to be able to do well with a doctor leading me through painful things by telling me what was going on. I feel information helps me and it might scare others, but it helps me even if it’s something really hard. Not knowing risks alternatives and signing blank consent forms is difficult. After neuro surgery I woke to vomiting, urinary retention and severe pain. Clear expectations help me. It is better for me and the nurses if I know what might happen.

My fiend just got back from Mayo for a 2nd work up on a neurology disease. He said it’s different. He is treated with respect and the doctor is in charge. Here the doctors need to comply with clinic managers, check in people and the doctor must comply with medical assistants who say they know more than the atending and the residents. One actually told me the doctor and surgical nurse were wrong. I trusted my doc and the surgical nurse and didn’t believe the OR technician even though she was old.

For me I need to know why I need another upper GI right after the other. It is hard to care for myself alone after surgery and procedures with general anesthesia all alone.

@9yearspast I am waiting. I actually have been avoiding the situation. I have to write a note to my doctor explaining that I still have questions about what she saw during my endoscopy and also want more information on the results of the Bravo test. I am annoyed that all I got from her were basically 2 sentences. I am not having any further tests without an explanation as to why she wants to do them and what she is looking for. My symptoms are minor and if she saw little evidence of irritation during the endoscopy after years of my current symptoms I’m wondering if I can just be monitored with endoscopies. I just got a message from her that my biopsies were all negative but she wants me to have an endoscopy next year to recheck a stomach nodule. So that’s where I am right now, I need to talk to my doctor. I have not read anything here about anyones experience with esophageal manometry. I do understand the procedure from reading up on it. Thank you.

@sylvermoon8 you take very good care. I thank you for writing.

I had an esophageal manometry a few yrs ago. Not the most pleasant test, but very helpful with dx of acalasia.

Hi @vsell1960 - will you share more about what the esophageal manometry was like and why this was not the most pleasant test? How long did it take? Would you do it again, for the diagnosis benefit?

I’d like to know the same thing.