Affinitor - Pneumonitis

Posted by tsabe2 @tsabe2, May 22, 2020

Hi,
I’m wondering if anyone had pneumonitis as a side effect from taking affinitor/everolimus? If so, what was your experience in alleviating shortness of breath? Did you use O2, steroids an inhaler? Many thanks.

I’ve only been on it a little over a week. So far, so good!

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@ja5747

I’ve only been on it a little over a week. So far, so good!

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Hello @ja5747

I see that it has been a little over a month since you started taking Zeloda. How are you doing?

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@hopeful33250

Hello @ja5747

I see that it has been a little over a month since you started taking Zeloda. How are you doing?

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Side effects (mouth sores, hand/foot syndrome, abdominal pain) started appearing shortly after I wrote my last post. Because of this, the second cycle was adjusted to 10 days on, 11 days off ( first cycle was 14 days on, 7 days off). Still have same side effects which are more intense and lasting longer than the first time. Cycle 3 will start this weekend, and we are going to try 7 days on, 7 days off, then repeat a second time. Hopefully this will mitigate side effects!

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I so appreciate your update, @ja5747, and I'm sorry to hear of the side effects you have experienced. I pray that this next round of treatment will be more tolerable for you. Did the mouth sores cause you to lose weight or were you able to eat a somewhat normal diet?

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@hopeful33250

I so appreciate your update, @ja5747, and I'm sorry to hear of the side effects you have experienced. I pray that this next round of treatment will be more tolerable for you. Did the mouth sores cause you to lose weight or were you able to eat a somewhat normal diet?

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Eating is more difficult, but I have managed to make it work so have not lost weight as a result.

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@ja5747

Eating is more difficult, but I have managed to make it work so have not lost weight as a result.

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@ja5747 That is a good thing. You need to keep a balanced diet/nutrition when you are going through treatment. Take care!

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