1. < Prostate Cancer

Advice on Penis pumps

Posted by graybeard46 @graybeard46, Jan 5 8:37am

I am 4 months post prostate surgery and soon to start radiation since some cancer still evident. The mental stress of cancer is bad enough but not having sex with my wife adds greatly to my getting down . I bought a pump from menmd a month ago but not able to get rigid enough for sex and the rubber tension ring is semi painful and makes any amount of of pleasure difficult. I’m tempted to try injections but with radiation and hormone treatments which kill my testosterone, maybe I should be more patient?

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graybeard46 | @graybeard46 | Feb 8 11:09am
In reply to @heavyphil "Graybeard, once again I am forced to give you a little smack off the back of..." + (show)
@heavyphil

Graybeard, once again I am forced to give you a little smack off the back of your head!😁
Just yesterday I visited my friend Billy, a retired town judge, who had a stroke 2 yrs ago while fishing off Shelter Island. He is in a wheelchair and has tried everything to try to walk again; he’s doing some crazy alternative medicine thing now drinking DMSO and getting electropulse therapy or something. I told him he has nothing to lose at this point. He’s on medication for depression cause he just wants to die.
He said all he dreams about is walking with a cane - a cane, not even walking like he used to!! That’s how bad his experience has been.
So imagine being wheelchair bound for the rest of your life and your doctor said you could get out of that chair forever….BUT, you’d be impotent.
I know what my choice would be….

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I’ll take the cane

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heavyphil | @heavyphil | Feb 8 8:55am
In reply to @graybeard46 "lol, hit the nail on the head , what’s important to one is not to another,..." + (show)
@graybeard46

lol, hit the nail on the head , what’s important to one is not to another, I asked my wife how would feel if you had to live the rest of your life in a wheelchair, that’s how I feel

Jump to this post

Graybeard, once again I am forced to give you a little smack off the back of your head!😁
Just yesterday I visited my friend Billy, a retired town judge, who had a stroke 2 yrs ago while fishing off Shelter Island. He is in a wheelchair and has tried everything to try to walk again; he’s doing some crazy alternative medicine thing now drinking DMSO and getting electropulse therapy or something. I told him he has nothing to lose at this point. He’s on medication for depression cause he just wants to die.
He said all he dreams about is walking with a cane - a cane, not even walking like he used to!! That’s how bad his experience has been.
So imagine being wheelchair bound for the rest of your life and your doctor said you could get out of that chair forever….BUT, you’d be impotent.
I know what my choice would be….

REPLY
1 reply
heavyphil | @heavyphil | Feb 8 5:28am
In reply to @tryjcr "One of the reasons I said no to treatment .I was 9 Gleason with pse of..." + (show)
@tryjcr

One of the reasons I said no to treatment .I was 9 Gleason with pse of 56 oh yeah group 5. It has spread. My entire life was women. T the point of being sick. LOL. One wife playmate other S jet pilot. Then in between more than you can count. Sy one point not bragging I was an athlete. Walking down the street in fl. Girls would pull over they on vacation would ask take your shirt off so we can take a picture with you. More pics of me in bars there getting ,3 way kisses or boobs from ,2 or 3 girls. So I said no when I heard im potence. Problem is I ended up that way now. So tired hard to get up. Bad bone pain
I'm good with it I guess
I do wake up scared some days. Just got moving fast enough I guess
I stay to myself. I know people are sick of me actually telling them how I feel when I get asked. Good luck.

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So are you happy with your decision? Regrets?

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jeffMar | @jeffmarc | Feb 7 5:24pm

After using the penis pump for a few months, I got a really bad rash from the water-based lubricant they use. Well, that was the end of the penis pump.

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graybeard46 | @graybeard46 | Feb 7 4:48pm
In reply to @peterj116 "Agree. What happened to "Do no harm"? You pay (a lot) for a quality service. He..." + (show)
@peterj116

Agree. What happened to "Do no harm"?
You pay (a lot) for a quality service. He works for you.
You're not getting what you paid for & a doctor who's ready to give up already, is worthless.
Go somewhere else.

How would he like it if he took his pride & joy car to a mechanic & the guy said "Yeah, this is stuffed. Push it over a cliff. That'll be 500 bucks, thanks."

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lol, hit the nail on the head , what’s important to one is not to another, I asked my wife how would feel if you had to live the rest of your life in a wheelchair, that’s how I feel

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1 reply
peterj116 | @peterj116 | Feb 7 3:38pm
In reply to @heavyphil "Graybeard - no wonder you are depressed dealing with this imbecile! Sorry, no amount of letters..." + (show)
@heavyphil

Graybeard - no wonder you are depressed dealing with this imbecile! Sorry, no amount of letters after your name makes you “smart” or a TopDoc when you talk to patients in this manner.
Not saying that he should agree with your version of treatment, but He should be offering words of encouragement and solutions to your problems - NOT telling you “Dude, you’re gonna be dead soon, hug your grandkids…”
I think you should dump this guy after your treatment is complete - OR leave him now and get a second opinion on continuing ADT.
Who knows, maybe some other doc will agree with him that you do only have 5 yrs left and you should spend them screwing your brains out….just sayin…

Jump to this post

Agree. What happened to "Do no harm"?
You pay (a lot) for a quality service. He works for you.
You're not getting what you paid for & a doctor who's ready to give up already, is worthless.
Go somewhere else.

How would he like it if he took his pride & joy car to a mechanic & the guy said "Yeah, this is stuffed. Push it over a cliff. That'll be 500 bucks, thanks."

REPLY
1 reply
jeffMar | @jeffmarc | Feb 7 11:22am
In reply to @stevieg "Wow that’s so cold I just relocated and go to a new onocologist tomorrow I’m going..." + (show)
@stevieg

Wow that’s so cold I just relocated and go to a new onocologist tomorrow I’m going to explain the terrible side effects I’ve been on Lupron almost a year now finished 46 radiation treatments last may but the have doubled the dosage of the lupron and extended treatments from 3 to 6 months and it feels like side effects doubled also

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They do give you double the amount of Lupron in a six month shot versus a three month shot the Lupron dissolves it a very slow rate and is supposed to dissolve at the exact same rate whether it’s a three month or a six month shot. I wonder if something else could be the reason for your problems, But you never know how Lupron will affect every Different person, you may be an exception.

The effects of Lupron get worse over time. The brain fog the muscle deterioration take time to happen. Even the hot flashes may not appear at the beginning.

A one Month Lupron shot is 1/3 of the amount of a three month shot. Maybe you want to try that next time Just to see if that makes a difference for you.

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graybeard46 | @graybeard46 | Feb 7 7:05am
In reply to @johnici "Glad to see you say when treatments are over you will keep trying. I did not..." + (show)
@johnici

Glad to see you say when treatments are over you will keep trying. I did not realize you were doing hormone. One reason I went to a lot of effort was hormone was yet to come and would suppress ( loss of libido effect.). Kinda "make hay while the sun shines" approach.
Once treatment is over if you persevere with the pump you will get ok with the pain/discomfort and results will come. (no pun intended). Good luck.

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Wild horses couldn’t keep me from trying even if I have to find a young cadaver lol😂

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heavyphil | @heavyphil | Feb 7 6:18am
In reply to @graybeard46 "Coincidentally on this subject , I just got off a zoom appointment with my oncologist who..." + (show)
@graybeard46

Coincidentally on this subject , I just got off a zoom appointment with my oncologist who is very cold and God like . Reason for meeting was to ask if I really needed my second hormone shot when radiation is completed ? I told him I was anxious to work on getting my sex life back knowing that the hormone shot lasts about 3 months. His response was like a knife in my heart. He said at my age after what I’ve been through, my sex life is over even with penis injections . He said if sex was so important you should not have had surgery and enjoy the maybe 5 yrs you would have left . I’m trying not to believe him but he is a poor example of a top Dr. at a top Boston Hospital

Jump to this post

Graybeard - no wonder you are depressed dealing with this imbecile! Sorry, no amount of letters after your name makes you “smart” or a TopDoc when you talk to patients in this manner.
Not saying that he should agree with your version of treatment, but He should be offering words of encouragement and solutions to your problems - NOT telling you “Dude, you’re gonna be dead soon, hug your grandkids…”
I think you should dump this guy after your treatment is complete - OR leave him now and get a second opinion on continuing ADT.
Who knows, maybe some other doc will agree with him that you do only have 5 yrs left and you should spend them screwing your brains out….just sayin…

REPLY
1 reply
johnici | @johnici | Feb 6 8:13pm
In reply to @graybeard46 "John, I’m happy for you with the results you described. Had my surgery in 8/24 and..." + (show)
@graybeard46

John, I’m happy for you with the results you described. Had my surgery in 8/24 and 2 yrs younger than you , got a pump months ago with little luck and now going thru hormone treatments and radiation I get too frustrated to try the pump every day. The ring hurts and the few times I was hard enough for sex , the pleasure that I dream having again wasn’t there. I was lucky having sex several times a week for 40 yrs with a younger wife who would have been happy with once a week wanted to please me. Can’t help but think she is not suffering as I am . When treatments are over I will try anything and everything to feel normal once again including injections. Good luck

Jump to this post

Glad to see you say when treatments are over you will keep trying. I did not realize you were doing hormone. One reason I went to a lot of effort was hormone was yet to come and would suppress ( loss of libido effect.). Kinda "make hay while the sun shines" approach.
Once treatment is over if you persevere with the pump you will get ok with the pain/discomfort and results will come. (no pun intended). Good luck.

REPLY
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